Restless Legs Syndrome (RLS) Discussion Board

Thanks for all the info! I'll call tomorrow and see what she recommends. If she is less than helpful, I'll call my family doc. He is pretty up to date on RLS or at least he is eager to learn. I'll look into Lyrica. Thanks again for caring.

Ruth

My doctor put me on Gabapentin and the nurse practioner from the neurologist's office took me off saying it caused edema and weight gain.It was working perfectly---but I do have lymphedema ( a mild case). And I'm going to Weight Watchers. Has anyone experienced edema or weight gain while on Gabapent...

I've been taking Mirapex 2 tabs 3 times a day for awhile and it became less effective so my doctor added generic Neurontin 300 mg --take 2 capsules 3 times a day. Ta da!! No more RLS. It feels fantastic!!

Ruth

I joined a few weeks ago. I received lots of info in a packet. It included a nice professional looking pamphlet to give to your doctor. I gave it to mine and he seemed pleased to receive it!

Ruth

Oh my gosh!! I just found this post and I couldn't believe it at first. I take Mirapex 1 mg three times a day! I've been on it for a long time--probably 4 yrs. and I have gained 50 lbs.!!! I've been blaming it on my diabetes. I have severe RLS and I have symptoms all day long, even in my arms. I'm a...

Thank you Susan for suggestions. I really appreciate just having you listen! Today I saw my family doctor and he listened to all my concerns without interruption. He took notes and he looked at and kept the algorithm from Mayo Clinic and a pamphlet for physicians put out by the RLS Org. I joined th...

Hi Susan- Yes I've read about augmentation and I think that is what has happened. That's why I wanted to see my neurologist. He's the one who put me on Mirapex and told me how to increase as needed and not to go further than 1 mg 3 times a day. I'll mention this to my doctor but I don't know how muc...

My symptoms are getting worse also. I have the same severe RLS in legs, arms and trunk--every day. I am at the maximum dose of Mirapex-1mg 3 times a day. I can't get in to see the Neurologist until May 8th and then I will see his nurse practitioner. I am considered a new patient because I haven't be...

Jan and others-- I too take Mirapex ---and temazapam for sleep and yet I keep waking up several times in the night!!! I have diabetes, lymphedema of both legs, arthritis and a new one called Polymyalgia Rheumatica, and sleep apnea that requires the use of a c-pap machine. I see a sleep doctor but he...

Thanks for your input. I haven't slept well for 3 months--due to Prednisone. My family doctor would be willing to prescribe temazepam for sleep if needed. I think I will ask for some to take when I just have to sleep. I am off Prednisone starting today and I will probably go through withdrawal sympt...

I'm white---but then---I'm a nurse

Ruth

Cyndi, Ann, Lynn, Charlene, and Susan--Thanks for your kindness and for all the info. I'm so glad I found you! My RLS has increased in strength and has grown to include arms and shoulders. This has been over a 3 year period. I am now to the maximum dose of Mirapex and it is still working most of the...

Cyndi--I'm so sorry you are in so much pain. My Mirapex is not working this morning and I've been up most of the night with RLS in my arms and legs. Have you tried Vicodin? My doctor allows me to use it carefully and sometimes it works!! Some people become very sleepy when taking this drug but it wa...

Oops! Typo. I'm being weaned off Prednisone because I am super sensitive to its side effects.

Ann--I started out with just 1 tablet .of .5mg. Then that didn't hold and I increased it to 2 a day, etc. and now I have to take 2 pills 3 times a day and the RLS is stronger, more often and now in my arms as well as legs!! Tonight I didn't take my last dose until 9:30PM (usually it's taken a little...