Search found 27 matches

by wigglypain
Thu Sep 06, 2012 11:44 pm
Forum: Prescription Medications
Topic: only 90 day use of opoids
Replies: 4
Views: 850

Re: only 90 day use of opoids

Here is a link to some discussion about this. I get an email every Monday from Pain-Topics.com. This is a very useful mailing for anyone and everyone that pain is a constant in life: m I have gained much knowledge from these emails. I am currently seeing a new pain doctor and I really need to educat...
by wigglypain
Sun Mar 27, 2011 3:00 pm
Forum: General Topics: RLS
Topic: Poll for the more aggressive or severe people. Part 1
Replies: 22
Views: 3319

Yes, my EKD is very painful 24/7.
by wigglypain
Sun Mar 27, 2011 2:58 pm
Forum: General Topics: RLS
Topic: Part 2 of poll questions. OPEN TO ALL
Replies: 34
Views: 6919

No
by wigglypain
Sat Mar 05, 2011 12:37 pm
Forum: General Topics: RLS
Topic: new here, with question
Replies: 19
Views: 2092

For me, Mirapex caused it to move to the arms....any dopamine agonist taken to the point of significant augmentation (and it can happen fast) seems to cause this. For most of us, once it's progressed to new body parts, it stays there even if we stop the drugs. It's sad to say that one of my many fi...
by wigglypain
Fri Mar 04, 2011 10:57 pm
Forum: General Topics: RLS
Topic: new here, with question
Replies: 19
Views: 2092

Well I can vouch for the disease being in the arms as well as in my right chest/shoulder and of course the legs. My arms started being very painful when I was put on Requip(EVIL DRUG, for me) back in 2003. I can not recall the weird painful sensations before trying it. My arms and legs have never be...
by wigglypain
Sat Oct 31, 2009 7:19 pm
Forum: General Topics: RLS
Topic: I got my stimulator and think it would be good for rls
Replies: 7
Views: 1687

Day late and dollar short on this one. I had my Spinal Cord Stimlator placed on 9 July. It works ok as long as I keep my Fentanyl (125mcg changing every 48 hr) With an opiod of some kind and a long acting one at that I get very little releif from the stimulator. My paddle is place on #10 thoracic ve...
by wigglypain
Mon Oct 20, 2008 9:17 pm
Forum: Prescription Medications
Topic: Epidural and RLS
Replies: 4
Views: 1020

Not sure about the epidural, however depending on the drug the use it may be of some benefit. I too have such severe painful Rls. My current med Opana ER( oxymorphone)_ 40 mg. 3x per day and once again I have begun to loose the effectiveness of it. For me it my opiod tolerance id beginning to get th...
by wigglypain
Mon Oct 13, 2008 10:28 pm
Forum: Physical Treatments
Topic: Morton's Neuroma Therapy
Replies: 10
Views: 2531

ViewsAskew wrote:P
ainful wiggies, am I understanding that the doctor's don't think it's RLS at all? That it's really a different problem?


Yes that is the thinking. Alsao refer to my later post.
by wigglypain
Mon Oct 13, 2008 10:19 pm
Forum: Physical Treatments
Topic: Morton's Neuroma Therapy
Replies: 10
Views: 2531

The docs are thinking that untreated neuropathy has caused my to have the RLS symptoms and anxiety of an underlying cause. I have not been taking my Effexor for over three weeks due to my extortionist prescription company. Right now as stated earlier they put me on 2 mg klonopiroblem besides 72 hour...
by wigglypain
Wed Feb 06, 2008 3:40 pm
Forum: Prescription Medications
Topic: Needing Doc in Northern Virginia
Replies: 7
Views: 1145

Thanks CT. Doing well now. Just when I move the fear of find a smuck instead of a doctor fears me the most. Keeping me in the exhausting pain we all know. The excruciating pain down my legs, arms, even my left shoulder and neck. It is at those times when the suicide thoughts creep in. My partner han...
by wigglypain
Tue Feb 05, 2008 5:17 pm
Forum: Prescription Medications
Topic: Needing Doc in Northern Virginia
Replies: 7
Views: 1145

Thanks. Atleast I have able to find flights from DC-Charleston for $140-170(tax deduction, at least). Yes I am keeping an appointment with my current doctor for 12 March. I will se how he feels about me coming back and forth. In the past I have traveled 4hrs one way to see someone. Then he left on s...
by wigglypain
Tue Feb 05, 2008 4:28 pm
Forum: Prescription Medications
Topic: Needing Doc in Northern Virginia
Replies: 7
Views: 1145

Needing Doc in Northern Virginia

Hello all, I am moving to Fairfax/Alexandria area of Virginia the end of this month. What I need to do is locate a doctor who is willing to continue my current medications. I was on Opana ER 30 mg three times a day. I had to drop to MS contin when I lost my insurance. Am also on Percocet 10/325mg fo...
by wigglypain
Fri Dec 28, 2007 3:45 pm
Forum: Prescription Medications
Topic: Dosage
Replies: 12
Views: 1538

Hello all, has been sometime since I was here last. I can identify with this subject very well. I am also a 24/7 RLSer and have been for 4-5 years now. At 42 yrs old that is not comforting, when I realize that as more time goes on the worse it will get. I have been fighting with this since I was abo...
by wigglypain
Wed May 23, 2007 9:39 am
Forum: Prescription Medications
Topic: Extended release hydrocodone?
Replies: 26
Views: 8701

When Stim?

It was a year since I last tried the Sinemet. So I was willing to give it another short shot. One more night and I give up with it. Not sure on when I am going for the stimulator, again. I saw a different doc in Georgia, was driving 215 miles every 2 weeks. Tried a trial stim that worked. Only had o...
by wigglypain
Tue May 22, 2007 9:45 am
Forum: Prescription Medications
Topic: Extended release hydrocodone?
Replies: 26
Views: 8701

Opana Newest Released Long acting

Back again family, pain has been an incredible. My MS contin just stopped working like someone turned a light switch off. Happened during work. Woke up ok, got to work, did a few cases in the non-invasive room. ( Iam an RN to catch some up). Then whamo from 0 to 60 there it was. My manager almost di...