Search found 133 matches

by pamndorr
Thu Aug 28, 2014 10:04 pm
Forum: General Topics: RLS/WED
Topic: Facebook WED sites
Replies: 14
Views: 1806

Re: Facebook WED sites

Thanks for the support and listening to me....and of course the advise. Its been a very long difficult day after a horrible night. I don't know if I can go much longer without my Oxy on board. After the mess last night I had decided to stop taking the Oxy. I didn't take my midnight dose or my noon d...
by pamndorr
Thu Aug 28, 2014 6:13 pm
Forum: General Topics: RLS/WED
Topic: Facebook WED sites
Replies: 14
Views: 1806

Re: Facebook WED sites

My husband WAS my biggest support. He has always stood by me. Telling me he cant believe how strong I am and how well I have done over the years with all the medication changes and life changes because of this disease. That was until yesterday. For some reason he came home and I have no idea why but...
by pamndorr
Thu Aug 28, 2014 5:06 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 115
Views: 34635

Re: WED/RLS doctors

A doctor in Ann Arbor, Michigan, USA. Dr Cathy Anne Goldstein - comes highly recommended by one of our members. The original mention was in this thread. Thanks ViewsAskew for adding Dr. Goldstein for me. She is a pulmonary/neurologist at U of M. She saved my life...truly. I was at the end of what I ...
by pamndorr
Wed Aug 27, 2014 11:05 pm
Forum: General Topics: RLS/WED
Topic: Facebook WED sites
Replies: 14
Views: 1806

Re: Facebook WED sites

Thanks for all your input. I just wanted to make sure it wasn't only me that felt that way in those places. It's too bad they behave the way they do. Facebook is a very quick and convenient way to get information. Especially since you can get to the app on your phone. I just wish others that are vis...
by pamndorr
Wed Aug 27, 2014 3:12 pm
Forum: General Topics: RLS/WED
Topic: Facebook WED sites
Replies: 14
Views: 1806

Facebook WED sites

I am just wondering if the foundation is in anyway connected to the various sites on Facebook. I have been looking around at a few of the sites and I see some pretty alarming information being given out to people. I love the foundation...I trust the people here. I just wonder if anybody else has bee...
by pamndorr
Sun May 11, 2014 8:34 pm
Forum: General Topics: RLS/WED
Topic: I'm still here and still feeling the WED
Replies: 14
Views: 2625

Re: I'm still here and still feeling the WED

I have tried so many different drugs for this. Gabapentin and Neurontin included. They both gave me bad nightmares and leg cramps that would knock me to the ground and I couldn't get up for quite some time..oh yeah and I gained a bunch of weight on both of them in a pretty short time. The only drugs...
by pamndorr
Fri May 09, 2014 5:53 pm
Forum: General Topics: RLS/WED
Topic: I'm still here and still feeling the WED
Replies: 14
Views: 2625

Re: I'm still here and still feeling the WED

I have augmented on both Requip and Mirapex over the years. Each time came with a drug holiday to get me off whichever one I was on at the time. I seem to have problems with every other kind of drug that is used to treat WED. Strange side effects on most of them. Seems that the dopamine drugs do bes...
by pamndorr
Wed May 07, 2014 7:25 pm
Forum: General Topics: RLS/WED
Topic: I'm still here and still feeling the WED
Replies: 14
Views: 2625

Re: I'm still here and still feeling the WED

Hi Zach...I was on 10mg of Methadone twice a day for 8 weeks. At the same time I was also coming off of a high dose of Requip. I believe I was taking 14mg of Requip a day when the doctor took me off it for my drug holiday. That's when he added the Methadone. So I am pretty sure that I was having wit...
by pamndorr
Thu May 01, 2014 4:25 pm
Forum: General Topics: RLS/WED
Topic: I'm still here and still feeling the WED
Replies: 14
Views: 2625

Re: I'm still here and still feeling the WED

I'm already on OxyContin. These opioids confuse me as to how they work. I was sick as a dog on Methadone, but it did take that pain away. I went to oxycodone and it didn't really help much. She switched me to OxyContin and I do pretty good on that. It's not controlling things at the moment though. B...
by pamndorr
Thu May 01, 2014 7:10 am
Forum: General Topics: RLS/WED
Topic: I'm still here and still feeling the WED
Replies: 14
Views: 2625

Re: I'm still here and still feeling the WED

I had to go look through some notes from my doctor for the name of that drug. It is called Targin. She said some people are having good luck with it but it's not available in the US at the moment. I'm at a point with this disease where I will gladly participate in a study to see if it helps. Can't b...
by pamndorr
Thu Apr 24, 2014 4:52 pm
Forum: Prescription Medications
Topic: Lost in my Oxycodone haze
Replies: 29
Views: 4853

Re: Lost in my Oxycodone haze

lynneat wrote: What is the oxycodone for? What does it do for you? Do you have pain? Thanks. Hi Lynneat...I just wanted to let you know that when I first started the Oxycodone I was in a lot of "pain" and in a "mental haze". From reading back through my posts I was not doing well...
by pamndorr
Thu Apr 24, 2014 2:54 pm
Forum: General Topics: RLS/WED
Topic: I'm still here and still feeling the WED
Replies: 14
Views: 2625

I'm still here and still feeling the WED

Quick question...I saw my Dr. at U of M last week. She told me she is on the WED board for the mid-west...I think that is the area she said. She also said she was going to a conference out west soon for WED. I am so thankful that I found my way to Dr. Goldstein..... Anyway we were discussing my WED ...
by pamndorr
Sat Jan 18, 2014 1:39 pm
Forum: Prescription Medications
Topic: Lost in my Oxycodone haze
Replies: 29
Views: 4853

Re: Lost in my Oxycodone haze

I have tried the neutron patch. Same bad side effects that I was getting with the Mirapex/Pramipexole. Granted at the time some doctor had me using the patch with the Mirapex. Bad combination for me. I guess I will find out on the 27th when I go for a check up what the long range plans are for me. I...
by pamndorr
Thu Jan 16, 2014 4:14 pm
Forum: Prescription Medications
Topic: Lost in my Oxycodone haze
Replies: 29
Views: 4853

Re: Lost in my Oxycodone haze

I wondered what the dose for the Ropinirole was these days. I know I was started at the 2mg at 1pm and started with only .5mg at 6pm. That dose didn't hold the pain back. When I upped the 6pm dose it got ahold of it. But...and here it comes....this dose is not holding off the pain for the whole day....
by pamndorr
Wed Jan 15, 2014 7:20 pm
Forum: Prescription Medications
Topic: Lost in my Oxycodone haze
Replies: 29
Views: 4853

Re: Lost in my Oxycodone haze

I am still alive!!!! Thank you guys so much for being here for me at one of the lowest times in my life. I look back on this post and realize how much time has gone by and how much of my life has changed since I first wrote that. I thought I was going to die....I actually wanted to die. I was misera...

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