Restless Legs Syndrome (RLS) Discussion Board

Hi I started out with 5mg at dinner and 5mg at bed but I found I would sometimes need more at bedtime.The next month he had me just start taking 10 mg everynight instead of trying to guess when I would need it.I didn't think I could ever find anything that would work until you said to try Dr B and t...

ahi Since the last time I wrote I have become one of Dr B's patients and have been seeing him for 5 months.After using all kinds of meds from other Drs. he got me on track in 2 visits.I now take 5mg methodone at dinner and 10 mg at bed and I sleep like a baby.I can once again travel and have my life...

Hi
I totally agree with your idea!! I am usually the nicest person and I tend to get pushed around,but lake of sleep and nausea turns me into a mad woman. Beth

I felt like I was being pushed through the system but never really listened to.I would bring my list of symptoms from the meds and he would say don't worry we still have the big guns.I tried to show him Dr B's books and what it said and he had know interest. We would be in and out of the appointment...

Well the Dr finally returned my call after 3 days and I just took the med that I take every 4 days and told me to stop that and go back on requip which I was just on and it didn't work. The nausea with this med takes at least a couple days to slack off. They said to try and get a apptoinment to come...

I have a question. When you started out with meds did you every have it where nothing worked as far as the dopamine agonists? I am embarrased to keep calling in.I have been on Recuip.Requip xl, mirapex, sinemet,sinimet cr, and now cabergoline. None have worked most have bad it worse but they just ke...

Its a sad situation to be up most or all of the night when you just want to sleep.We just bought a new home and all the bedrooms are upstairs so when I am up at night I don't have to worry about bothering people.We are also sadly switching to twin beds side by side because my husband runs his own bu...

Thanks for the great idea.At the beginning of this whole Dr experience I started a journal because I am so tired its hard to remember what I have taken and when.I also tape record each visit for the same reason.I know they don't have time to read a journal so I am going to make a condensed time line...

Hi Zach
Thanks earlier I posted the question about changing Dr and it was because of what you said that made me think to go for it. I have had a call into my Dr for 2 days and no response, I even called back to complain. I just can't wait for Nov 3rd. Beth

Hi I am so sorry and all I can say is most of us have been there.I have purchased ever book I can and it makes me feel alittle beter to know I Can be in control and understand whats going on and available.I have used every idea in the RLS Rebel Book and am installing a Jacuzzi Tub as I write in our ...

Hi I have a severe form of RLS and have tried Many of the suggested meds.I see a sleep specialist in my area but everything he has tried has not worked and it is hard to call in and speak to him.My husband is great and attends every appt, but it is tuff going,I am in the livingroom almost every nigh...

Thanks so much for the info.I have all his books and am just so discouraged with all my past Drs. I started with my GP and then a neurologist and now this sleep Dr which maybe is good but I have a tough form of RLS and I can never see or talk to him.I just can't wait for Nov 3rd to come because i am...

Hi I have been using a Dr in San Diego who is a sleep specialist but I am getting no where.I have been put on every type of dopamine agonist and I feel worse than when I started.I never get to speak to the Dr it is the receptionist relaying info to a nurse practioner and then a nurse to me. I finall...

Hi I have had RLS since I was you but it came and went.I am 50 now and it is everyday in my legs and arms etc. I have tried numerous meds and still don't have one that works.I had pain for the first time when I started the Parkinsons meds and it was very severe with Sitimet.I was told to go off it i...

Thanks for the valuable words!! I think we have are days we can handle things and days that you can't. I wish they could just find a med that worked for at least more than 5 days so I didn't feel like a freak show.
Beth