Restless Legs Syndrome (RLS) Discussion Board

I have started to exercise after work 4-5 times week - 20-30 minutes on the elliptical machine at a moderate pace. I'm pretty out of shape so I'm not going crazy. What I've noticed is my legs are significantly worse 2-3 hours after working out. Previously, my RLS has been well controlled on a nightl...

I definitely worry about long term methadone use - I've been on it for 1 year. Unfortunately, research for RLS isn't at the top of anyone's list and there aren't a lot of alternatives to opiates. I hope there will be something in the future but honestly, I anticipate being on methadone for a long ti...

Hi Folks, I've been doing really well on Methadone for about 5 months now. I take 12.5 mg at night. I've been noticing in the past week or so that I've had some problems with my brain - trouble with word finding, saying phrases, or getting things out. Memory problems too. I don't know if this is a r...

I started methadone about 6 months ago, found a comfortable dose (12.5 mg) that worked for me. I initially had poor appetite, low sex drive, fatigue - all of which have subsided but the fatigue. I AM EXHAUSTED all the time. I have sleep apnea too but recently had a sleep study and my pressure is ade...

my doc gave me a 10 mg tablet and suggested I take 2.5 mg and work my way up to 10 as needed. I started like he recommended but for the first few days, I needed 15 mg. I was transitioning off Mirapex and read on another thread that when you go off Mirapex, your RLS can get worse. I think that's what...

Hi Folks, I started methadone last week. So far it's working pretty darn well. My doc had me start with a 10 mg pill but cut it into quarters and work my way up from there. I'm taking 15 mg and my symptoms are under control. I've been off the mirapex for 3 whole days! My questions are: does anyone e...

I would be curious to exactly why your doc was referring you to a pain clinic for management of RLS. I understand that the medication you're taking is to treat pain, but that's not why you're taking in, right? I don't have pain with my RLS so maybe you're taking the Lortab for RLS pain. If that's th...

The Mirapex worked like a charm for a couple of years but my dose has just been escalating. I didn't have augmentation until last year - started around 6 p.m. Now I have it earlier in the day but not every day. I make sure to check my ferritin regularly and don't drink too much caffeine. I like the ...

t3 is Tylenol w/ codeine.

I got some great advice from folks the last time I posted and wanted to get advice on transitioning from Mirapex to an opiate. Right now I'm taking .25 mg Mirapex at 6 p.m. then 1 mg about an hour before bedtime. Doc gave me T3 which didn't do a darn thing and now I'm transitioning onto oxycodone. I...

I AM very lucky that I have an excellent sleep doc. he actually suggested methadone pretty early on and I rebuffed him. Thanks for the information. One of my concerns in driving since I currently commute 40 miles/day but that will change soon ( at least I hope). I look forward to hearing more from f...

Hi Folks, I've had RLS since 01. I've had many conversations w/ my doc about switching over to opiods but I have concerns/reservations that I'm hoping you all can weigh in on. Just a brief history - taken sinemet, requip and mirapex is losing it's effectiveness; tried gabapentin, didn't work. Exerci...