Search found 59 matches

by Aipulu
Sat Oct 21, 2017 5:15 pm
Forum: Augmentation
Topic: Augmentation - Delaying the Inevitable?
Replies: 20
Views: 4798

Re: Augmentation - Delaying the Inevitable?

Legsbestill, I did email Dr B about this, since he had corresponded earlier with me and said that patients with my symptoms he usually puts on opioids. I didn’t get a response, which was disappointing. I thought that maybe the top RLS researchers hear from lots of people about things that worked for...
by Aipulu
Thu Sep 21, 2017 8:08 am
Forum: Augmentation
Topic: Augmentation - Delaying the Inevitable?
Replies: 20
Views: 4798

Re: Augmentation - Delaying the Inevitable?

I want to add that Naltrexone has a short half life of 4 hours. So by taking it once a day in the morning I had little in my system at night, when the eating and sex control issues were occurring. So I need to take Naltrexone twice a day. If you aren't experiencing impuls control issues and are augm...
by Aipulu
Thu Sep 21, 2017 7:47 am
Forum: Augmentation
Topic: Augmentation - Delaying the Inevitable?
Replies: 20
Views: 4798

Re: Augmentation - Delaying the Inevitable?

This is a follow up to my discussion of using Naltrexone to relieve augmentation from Mirapex. I am still doing fine, with no augmentation in two years. I am taking Mirapex at 0.75 mg and Nalttexone at 50 mg. I am taking Naltrexone at the level used by addicts because that is the level used for weig...
by Aipulu
Sat Aug 26, 2017 11:42 pm
Forum: Prescription Medications
Topic: Opiods
Replies: 133
Views: 15790

Re: Opiods

I just posted a lengthy description of my success in using Naltrexone to eliminate augmentation and avoid going to opioids in the "Augmentation, Delaying the Inevitable?" discussion thread. I appreciate your caution, ViewsAskew, on attributing this to Inflammation. My recent google of low-...
by Aipulu
Sat Aug 26, 2017 11:27 pm
Forum: Augmentation
Topic: Augmentation - Delaying the Inevitable?
Replies: 20
Views: 4798

Re: Augmentation - Delaying the Inevitable?

I may be repeating my story but I would love to have someone with severe augmentation try Naltrexone. Over 2 years ago I was augmenting badly as well as having impulse control issues. I would have gone on an opioid if I could have found a doctor willing to prescribe it. After struggling for 6 months...
by Aipulu
Fri Aug 25, 2017 3:36 pm
Forum: Prescription Medications
Topic: Opiods
Replies: 133
Views: 15790

Re: Opiods

I moved cities and didn't pay attention to this discussion thread until now. I am going to publish a more lengthy reply soon. My answer to you is that I was already taking Wellbutrin when I added Contrave so I deduced it was the Naltrexone that made the difference. I continue to have the positive re...
by Aipulu
Fri Mar 25, 2016 10:23 pm
Forum: Prescription Medications
Topic: Opiods
Replies: 133
Views: 15790

Re: Opiods

Hi Ann. The fact that my docs and even Dr. B can't explain this leads me to believe that naltrexone is a good area for research. Might reveal new insights into RLS or the effectiveness of dopamine agonists.
by Aipulu
Fri Mar 25, 2016 8:39 pm
Forum: Prescription Medications
Topic: Opiods
Replies: 133
Views: 15790

Re: Opioids

Anyone familiar with low dose naltrexone (LDN) for use in restless legs syndrome treatment? I know it is used for auto immune disorders, as well as, fibromyalgia and some neuropathies. I have had a wonderful response of my RLS to naltrexone. And totally unexpected. I have had RLS for 20 years and i...
by Aipulu
Mon Sep 07, 2015 3:21 am
Forum: Help for Relationships
Topic: exhaustion provides no reserve to deal with stress
Replies: 13
Views: 5612

Re: exhaustion provides no reserve to deal with stress

Thank you Steve. I was up all night with you know who and wrote this about 5 am. Then I went to bed not knowing if what I had written was funny. In fact reading it now I realize how it would take a while, if ever, to figure it out. Glad you did.

Richard
by Aipulu
Sat Sep 05, 2015 3:29 pm
Forum: Help for Relationships
Topic: exhaustion provides no reserve to deal with stress
Replies: 13
Views: 5612

Re: exhaustion provides no reserve to deal with stress

Dear Abby, I have been living with my companion for 20 years. We are constant companions and have grown very close over the years. I can't imagine living without her. But I am questioning our relationship, telling myself that am giving too much of myself and getting so little back. I am obsessed wit...
by Aipulu
Sat Sep 05, 2015 2:53 am
Forum: Physical Treatments
Topic: TENS stimulation for WED/RLS: Effective parameters
Replies: 47
Views: 13299

Re: TENS stimulation for WED/RLS: Effective parameters

I got my Quell Pain Management unit in the mail yesterday. I have tried it twice. The first was last night. I usually get pains in my hands and sometimes in one foot even after taking 600 mg of Horizant and 50 mg of Ultram. I took those twice pills and then put on the Quell. the electrical impulses,...
by Aipulu
Wed Aug 19, 2015 8:58 am
Forum: Physical Treatments
Topic: TENS stimulation for WED/RLS: Effective parameters
Replies: 47
Views: 13299

Re: TENS stimulation for WED/RLS: Effective parameters

I get WED sensations in the hands. Lately my hands have been painful. I have been attributing the pain to WED, for which I have severe symptoms. But I have been working outside the house on some strenuous landscaping tasks. It is possible this is the source of the pain. Otherwise my WED sensations a...
by Aipulu
Tue Aug 18, 2015 10:39 pm
Forum: Physical Treatments
Topic: TENS stimulation for WED/RLS: Effective parameters
Replies: 47
Views: 13299

Re: TENS stimulation for WED/RLS: Effective parameters

Is anyone familiar with the Quell Wearable Pain Relief? One of my doctors said it is related to TENS type electrical stimulation. You wear it on the upper calf. good for pain relief but my question is whether our RLS symptoms are the type of pain that can be blocked by this unit, and presumably by T...
by Aipulu
Mon Aug 10, 2015 9:05 am
Forum: Prescription Medications
Topic: Dopamine agonist withdrawal
Replies: 106
Views: 5753

Re: Dopamine agonist withdrawal

Yeah, I didn't hardly dream on just Mirapex. In a eep test I got almost no stage 3 and 4 sleep. When I added 300 mg of gabapentin, I started getting lots of dreams.
by Aipulu
Sun Aug 09, 2015 7:46 pm
Forum: Prescription Medications
Topic: Dopamine agonist withdrawal
Replies: 106
Views: 5753

Re: Dopamine agonist withdrawal

The graphics on that link were very informative in explaining how opiates impact dopamine availability and receptors. And very interesting how they think that GABA decreases the amount of dopamine made available. Research seems to say that WED affects both the dopamine and gaba systems so I take both.

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