Search found 181 matches

by Wayne
Thu May 18, 2023 11:41 pm
Forum: Prescription Medications
Topic: How does community feel about Horizant?
Replies: 16
Views: 7625

Re: How does community feel about Horizant?

Been using it for two weeks now, with no noticeable difference than normal Gabapentin. I got 30 (600mg) tablets in the first shipment. 30 being the minimum I could get as I told them I have very little confidence it would make any difference. The pharmacy called yesterday to ask if I wanted to refil...
by Wayne
Thu May 04, 2023 1:01 am
Forum: Prescription Medications
Topic: How does community feel about Horizant?
Replies: 16
Views: 7625

Re: How does community feel about Horizant?

I've been on 300mg Gabapentin for probably 11-12 years now and it only really gets me drowsy enough to sleep, and doesn't relieve any symptoms. I recently saw a new Neuro (3rd one, the other 2 I gave up on) and she wants me to try Horizant. I balked at the $600+ and expressed my dismay that an exten...
by Wayne
Thu Feb 09, 2017 12:41 am
Forum: Physical Treatments
Topic: Physical Treatment Treadmill?
Replies: 5
Views: 3711

Re: Physical Treatment Treadmill?

Hi all, been a few years since I've posted. The lost of drug effectiveness: the drugs never did too much for my symptoms and as the neurologists kept upping the dosage I just felt like a walking zombie. After 2 years of that I reduced the meds to nighttime (i.e. before bedtime) only and quit seeing ...
by Wayne
Tue Feb 11, 2014 12:08 am
Forum: Prescription Medications
Topic: gabapentin augmentation ?
Replies: 5
Views: 1222

Re: gabapentin augmentation ?

First off, I'd like to apologize to the mods and members if I have missed this topic somewhere along the line. I tried a search but I'm afraid I may not have done a good job navigating the search feature. In any event, I'm just wondering if it is possbible to augment with gabapentin? I never experi...
by Wayne
Fri Jun 21, 2013 9:46 pm
Forum: Prescription Medications
Topic: Xanax and RLS-WED
Replies: 13
Views: 2998

Re: Xanax and RLS-WED

I actually had to shave a teensy bit off each time I'd reduce it or I'd go into full-fledged withdrawal - vomiting, pain throughout my body, fever, shivering, and so on. Blows me away, Ann. It was surreal. I literally would shave off teensy bits once a week. Any more that that and it was truly horr...
by Wayne
Thu Jun 20, 2013 12:56 am
Forum: Prescription Medications
Topic: Xanax and RLS-WED
Replies: 13
Views: 2998

Re: Xanax and RLS-WED

I can agree with your analysis. I took Xanax, now Klonapin which is what really eases the symptoms (I don't have pain, just creepy crawlies). It's strange though I don't feel that I'm a stressed out guy. I have no wife or children to stress me out and my job is also mostly stress free. I do feel my ...
by Wayne
Thu Jun 13, 2013 11:46 pm
Forum: Prescription Medications
Topic: neurontin
Replies: 28
Views: 5550

Re: neurontin

My experience with Neurontin wasn't too bad. At first it worked great. Worked my way up from 300mg at night to three times per day. Caused dizziness the first week, but that went away. It also made me pretty lethargic, but it was working so I adapted. Then after about 4 months it didn't work anymore...
by Wayne
Sun Mar 03, 2013 1:37 pm
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 13732

Re: Sleep position

I recall that my ex (who had mild RLS) used to deal with it by sleeping on his stomach with his toes hanging over the end. Hmmm. Interesting that it works even when people aren't stretching or squashing. I do find it slightly easier with my feet/toes hanging off the end. I still have trouble gettin...
by Wayne
Sat Feb 23, 2013 12:25 am
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 13732

Re: Sleep position

Hi, i'm new to site. Often find better on front also, maybe easier for dopamine to be released? Hi Jim. Glad it works for you too. Still works for me. I'm getting really good at it now. My legs can be buzzing hard, and I can just roll onto my stomach and will likely be asleep within 20 minutes (unm...
by Wayne
Tue Jan 15, 2013 1:21 am
Forum: General Topics: RLS
Topic: Plagues of Egypt Pestering Me or RLS/WED?
Replies: 24
Views: 4928

Re: Plagues of Egypt Pestering Me or RLS/WED?

Thanks for the info, I will see about getting some of the lotion. The liquid bandaid warning is too late though lol, I tried that before and it was a real bad experience as you know. Yes, it feels like "an exposed nerve" incredible how painful such a little crack can be, it is worse too b...
by Wayne
Tue Jan 15, 2013 12:02 am
Forum: General Topics: RLS
Topic: Plagues of Egypt Pestering Me or RLS/WED?
Replies: 24
Views: 4928

Re: Plagues of Egypt Pestering Me or RLS/WED?

I get cracks near the fingernails that you're taking about, mostly in the winter. Very painful, like an exposed nerve. It's just dryness. What I use is a lotion called Aquaphor (Eucerin) at night and it will generally clear them up or at least stop the pain in one or two nights. Spread it on the fin...
by Wayne
Sun Dec 16, 2012 9:28 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium Salts...your experience??
Replies: 29
Views: 12358

Re: Magnesium Salts...your experience??

you're right doety, clonmazepam is not a drug of choice for RLS any more. But neither would it normally be taken away from anyone if it's working for that person. It's got a 40-hr half life, so almost two days later it's only half gone. I don't understand why everyone taking it doesn't turn into a ...
by Wayne
Tue Oct 09, 2012 11:22 pm
Forum: General Topics: RLS
Topic: What makes your RLS worse?
Replies: 66
Views: 21213

Re:

Hi - I wanted to report that I took Mucinex a few hours ago in desperation. I usually avoid cold meds like the plague, but this cold is truly kicking my butt. So far, the mucinex has not bothered my RLS at all! I take methadone for my RLS and pharmacist said it was OK to take these two meds togethe...
by Wayne
Mon Oct 01, 2012 12:32 am
Forum: General Topics: RLS
Topic: Full Moon set of your RLS
Replies: 5
Views: 1072

Re: Full Moon set of your RLS

...start to "jang and bang"... Catchy. Kind of sounds like a music genre. I'm going to borrow that if you don't mind. Phases of the moon don't effect my RLS. I haven't been able to pinpoint anything that definitively makes it better or worse. Most days are OK, with the occasional sleeples...
by Wayne
Sun Aug 26, 2012 12:37 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 18371

Re: Neurologist

Went to visit my regular doctor this week so that I could get my prescriptions renewed, and he told me what I'd been anticipating for the last few years. He is going to be retiring in a few months. Going to miss him as I've been going to him for the past 24 years ever since I moved to this area. He ...