Search found 4409 matches

by badnights
Fri Jun 14, 2019 5:18 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: SIBO - 4 facts from a dietician
Replies: 1
Views: 49

Re: SIBO - 4 facts from a dietician

Seems a sensible article, for once. She says no diet will control symptoms but can help manage them while the SIBO is being treated, and the low-FODMAP one is the best "bang for your buck" (highest ratio of effectiveness to restrictiveness). I mocked it at the time. but the naturopathic tr...
by badnights
Fri Jun 14, 2019 5:01 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 93
Views: 20562

Re: Wahls diet for WED? Trying it.

am noticing one major lasting benefit of the time on dipyridamole - I still (6 months or more after discontinuing) don’t get the creepy crawley feeling that was originally banished by dipyridamole. For that alone I am really pleased I spent time on dipyridamole. legsbe, are you saying your WED/RLS ...
by badnights
Fri Jun 14, 2019 4:56 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 56
Views: 1245

Re: Cannabis

how interesting. Probably does have an effect!
by badnights
Fri Jun 14, 2019 4:44 am
Forum: Prescription Medications
Topic: Anyone ever been told trazadone caused their RLS?...
Replies: 10
Views: 219

Re: Anyone ever been told trazadone caused their RLS?...

we get so cought up in looking for answers outside our selfs. That's the main message. There's no lack of information in the world these day. Its over kill. They repeat the same information over and over again until we are blue in the face. So be careful what your feeding on because it might make y...
by badnights
Fri Jun 14, 2019 4:38 am
Forum: Prescription Medications
Topic: Yoga Helping me so far
Replies: 6
Views: 76

Re: Yoga Helping me so far

Huh! Nice ! Can you do forward bends? I find that forward bends set it off, but standing poses are good. Also anything that silences our sympathetic nervous system (fight or flight) and activates the parasympathetic (wine and dine, or relax on the beach, or whatever) is helpful. Yoga is particularly...
by badnights
Fri Jun 14, 2019 4:35 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 82
Views: 2407

Re: Attempting to get off Ropinirole - again

Yaaaay.... sorted. But this was inefficiency. What about the person who isn't able to speak up for themselves, isn't able to persist, who still thinks that the Doctor is God Almighty. I know! I shudder to think of what some people are going through. Oceanwalker - - you've tolerated your doctor for ...
by badnights
Fri Jun 14, 2019 4:29 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 37
Views: 456

Re: Excellent article on opioids

have realized that no doctors will help me, Honestly it's not as bad as that. You have to find a doctor who will help, and that can be a nightmare, especially when you're incoherent with sleep loss and never-ending torture. But they do exist. Your pain doc mentioned suboxone - - so don't write him ...
by badnights
Fri Jun 14, 2019 4:21 am
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 22
Views: 280

Re: Weaning off medications

I am not experiencing typical opiate withdrawal symptoms. As with the DA's, I am having a significant exacerbation of the RLS symptoms, despite having recently added a 3mg Neupro patch. I guess I will eventually see how much is the lack of methadone and how much is the RLS. Your exacerbated RLS/WED...
by badnights
Fri Jun 14, 2019 4:13 am
Forum: Prescription Medications
Topic: Methadone adjustment; changing to oxycodone
Replies: 17
Views: 187

Re: Methadone adjustment; changing to oxycodone

how is the quality of your sleep on opioids? This study http://jcsm.aasm.org/articles/030106.pdf pretty clearly demonstrates they reduce slow wave sleep. I’m so fascinated that a lot of other people here get great sleep on opioids. I’m wondering if it is just good sleep as compared to RLS sleep ( s...
by badnights
Fri Jun 14, 2019 4:08 am
Forum: Just Joined?
Topic: New here, complicated story
Replies: 10
Views: 71

Re: New here, complicated story

Ah Laura what a sad tale in many ways. I'm glad you're here, I hope you can find some help here. Your PTSD diagnosis is encouraging and gives you a path that might lead to good health. It seems the lag time between Abilify and onset of WED/RLS is too long for the Abilify to have been causative. The ...
by badnights
Sat Jun 08, 2019 7:35 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 15
Views: 191

Re: New Kratom User - when to take

chaus2 I feel for you in that situation. When you interact with your doctors about things you have learned about WED/RLS that they are not aware of, your approach should never be "how come you don't know this". You should fill yourself with two awarenesses (?) before you go in, one is that...
by badnights
Sat Jun 08, 2019 7:15 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 93
Views: 20562

Re: Wahls diet for WED? Trying it.

Holland did report a temporary worsening about 30 minutes after taking the dipyridamole
Thanks legs! I had forgotten that already. He also added a tiny bit of a dopamine agonist iirc to mitigate that effect - I dont remember exactly
by badnights
Sat Jun 08, 2019 7:08 pm
Forum: Physical Treatments
Topic: Take Lavander Massage Oil to Your Masseuse
Replies: 4
Views: 113

Re: Take Lavander Massage Oil to Your Masseuse

I wonder why? Indeed. And is it a useful result? I didn't pursue it but after I read that their IRLSSG severity scores were lowered and that the lowering met the criteria for statistical significance, I wondered where on the scale their scores before and after fell, and how long the effect lasted. ...
by badnights
Sat Jun 08, 2019 7:06 pm
Forum: Just Joined?
Topic: New here, complicated story
Replies: 10
Views: 71

Re: New here, complicated story

Interesting that you went years on Abilify before feeling any RLS/WED symptoms; perhaps they were building up slowly over that time? If they only appear after you had stopped using the Abilify, how long after? And how long have you been off it now? It's really tempting to relate your RLS/WED to the ...
by badnights
Sat Jun 08, 2019 6:32 pm
Forum: Physical Treatments
Topic: Take Lavander Massage Oil to Your Masseuse
Replies: 4
Views: 113

Re: Take Lavander Massage Oil to Your Masseuse

I just saw a study in which olive oil massage was tested on WED/RLS patients against a paraffin oil massage, and was found to be more effective. I didn't see the details, just a summary.

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