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by badnights
Mon Oct 14, 2019 7:13 am
Forum: Augmentation
Topic: Is Tramadol continuing my Mirapex augmentation?
Replies: 18
Views: 546

Re: Is Tramadol continuing my Mirapex augmentation?

Interesting that you might have (do have?) IBS. There is a much higher incidence of WED/RLS among IBS patients (also Chrohn's patients) and it's thought to be because absorption of iron is impaired. I would suspect, though, that it;s more complex than that, because absorption of everything is impair...
by badnights
Mon Oct 14, 2019 7:10 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Sorry about not connecting your topic in the Augmentation forum with this one. I can't be here every day anymore, so I get behind and then I miss connections like that. Ferritin super-high but iron normal, TIBC low-normal, Sat. high-normal, transferrin low-normal. I'm not sure what it all might mean...
by badnights
Sun Oct 13, 2019 6:48 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 57
Views: 6338

Re: Rate of Ferritin Decline

How much ropinirole are you on - are you still at 1.25? What did you increase to? I don't fully know your situation but increasing it seems like a bad idea. You are probably augmenting, since the symptoms spread to your arms (whether creepies or jerking, spread of either thing is probably augmentati...
by badnights
Sun Oct 13, 2019 6:39 am
Forum: Physical Treatments
Topic: Autism devices
Replies: 4
Views: 343

Re: Autism devices

However, the thought of actual in situ compression would drive me crazy. I once put on a pair of compression flight socks thinking to myself.... oh don't they feel nice and firm !! They lasted about 15 minutes. It's funny how that works. You put them on, it feels great, then it stops feeling great,...
by badnights
Sun Oct 13, 2019 6:37 am
Forum: Physical Treatments
Topic: How to be a guinea pig?
Replies: 2
Views: 62

Re: How to be a guinea pig?

I totally get your sentiments, stockton2malone2! I don't know how you can offer yourself as a guinea pig for things that invasive. But there are probably some things you haven't tried, Holland mentions the first one I thought of, which is IV iron, some people have tremendous success with that. Have ...
by badnights
Sun Oct 13, 2019 6:23 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

hi icantsleep What a stressful life you have! to put it mildly. this is kind of a choppy reply but I want to get it to you before my sleeping med kicks in Re drug abuse, maybe it contributed to the circ. rhythm disorder in some small way, but I doubt it had a very significant effect. I know plenty o...
by badnights
Sat Oct 12, 2019 1:23 am
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 17
Views: 224

Re: I'm finally getting an infusion

Update: A month has gone by and although I have felt better this last week, with less symptoms and somewhat better sleep, I can't say it's anything different than has happened before. I can't attribute it to the infusion. To make matters more confusing, I'm having a minor knee surgery next week. If ...
by badnights
Sat Oct 12, 2019 1:16 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Another option, if you went back to codeine, would be to cut it in half and space out the time. It lasts 4 hours. Is that what doctors suggest in some situations too? Winegarden, I'm not sure if you were referring to Deb's post, but if you were, doctors do recommend that sort of thing, though I hav...
by badnights
Sat Oct 12, 2019 1:11 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Hi Icantsleep Is your circadian rhythm disorder definitely separate from your RLS/WED? You probably realize this, but WED/RLS (unless the symptoms are treated effectively) will push our bedtimes later and later. In un-augmented WED, the symptoms fade in the middle of the night, so that's when we go ...
by badnights
Fri Oct 11, 2019 3:32 am
Forum: Prescription Medications
Topic: Pharma Sticky
Replies: 39
Views: 36642

Morphine treats WED/RLS in cancer patient

https://www.frontiersin.org/articles/10.3389/fneur.2019.00457/full The authors say "To our knowledge, this is the first report of successfully treating RLS with intravenous and oral morphine". I'm surprised that they aren't aware of anyone else who has been treated with morphine for WED/RL...
by badnights
Wed Oct 02, 2019 5:54 am
Forum: Physical Treatments
Topic: Autism devices
Replies: 4
Views: 343

Re: Autism devices

You mean has anyone tried things like weighted pads or blankets and compression clothing for WED/RLS? I have often felt that I would like a weighted blanket, but the price and the uncertainty about its usefulness have put me off. Plus, I no longer feel that I would like it - - maybe the sensory comp...
by badnights
Wed Oct 02, 2019 5:36 am
Forum: Augmentation
Topic: Is Tramadol continuing my Mirapex augmentation?
Replies: 18
Views: 546

Re: Is Tramadol continuing my Mirapex augmentation?

Hi ICantSleep I've been flipping thru your posts and see only one reference to iron - a discussion missed with your doctor. If you've been reading around here, as you seem to have been, you'll have heard of the importance of iron in WED/RLS. The disease is actually caused by a deficiency of iron in ...
by badnights
Wed Oct 02, 2019 4:55 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: A BIG what if
Replies: 15
Views: 535

Re: A BIG what if

I ordered from an American supplier and it was shipped to Canada without any issues. It's not (yet haha) illegal here.
by badnights
Wed Oct 02, 2019 4:45 am
Forum: General Topics: RLS/WED
Topic: Interesting correlation between knee injections and PLMD
Replies: 3
Views: 203

Re: Interesting correlation between knee injections and PLMD

There have been enough mentions of this sort of thing that I've wondered what it means. I can't remember specifics, and I don't hear of it often, but it seems that damage to bones or joints of the back or legs can cause WED/RLS (perhaps PLMs), and conversely, healing of that sort of damage can lead ...
by badnights
Mon Sep 16, 2019 6:17 am
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 17
Views: 224

Re: I'm finally getting an infusion

Now that I know what to ask for, I can get the blood work done first. I didn't bother this time, although I had a standing order for a ferritin test to be repeated whenever I decided, because my ferritin was rising even though I wasn't taking iron. I figured the value would be kind of meaningless. I...

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