Search found 4002 matches

by badnights
Thu Feb 22, 2018 3:35 am
Forum: General Topics: RLS/WED
Topic: Painful RLS
Replies: 13
Views: 432

Re: Painful RLS

oh well, there goes that theory. It was only a sample of two anyway.
by badnights
Tue Feb 20, 2018 5:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New to Iron
Replies: 25
Views: 3142

Re: New to Iron

Yay! I'm glad your symptoms have improved. I'm always impressed by the effect that iron has on my symptoms. I doubt I'll try lowering it again in the foreseeable future, because every time I have, my symptoms have gotten worse.
by badnights
Tue Feb 20, 2018 5:11 am
Forum: Augmentation
Topic: Topic of the Year
Replies: 43
Views: 8945

Re: Topic of the Year

Billdel, you're very impressive for getting off the pramipexole without help. I can imagine the nightmare. I congratulate you on your decision to bite the bullet and get it over with. And on your decision to go to a QCC. I imagine Dr Rye and his colleagues spoke to you about not expecting to elimina...
by badnights
Tue Feb 20, 2018 4:58 am
Forum: Prescription Medications
Topic: gabapentin and anger
Replies: 3
Views: 41

Re: gabapentin and anger

I agree with Holland, tell your doctor. It's not a good sign that your mood is being affected at all. For some users, mood disturbances can be extreme and dangerous. I had very bizarre mood disturbances from gabapentin, including irritability (anger, dare I say...) but I tend not to remember that be...
by badnights
Tue Feb 20, 2018 4:36 am
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 13
Views: 109

Re: Discussion of Adenosine paper

I don't recognize the first 9 names. I admit I'm not current or exceptionally knowledgeable, but in my world, the last authors on such a large list might not even have read the final paper. Not sure if things are different in the medical world. Those were my thoughts, anyway. Steve's idea is good, b...
by badnights
Sun Feb 18, 2018 8:28 am
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 58
Views: 1683

Re: Two very different doctors' visits

as I was leaving my appointment yesterday, my PA asked me to bring back as much info as possible from the clinic because she has several patients with rls. We don't hear that very often. Yay!! That's great to hear. I seem to recall that the Foundation used to have a program where you could make a d...
by badnights
Sun Feb 18, 2018 8:13 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 11
Views: 286

Re: Changing my diet may have solved my RLS

I had already looked it up! It's juice made from - guess what - purple carrots. Carrots were originally dark purple but were bred to be orange. Purple carrots are making a comeback now. They have lots of anthocyanins, which are the purple pigments that are also anti-oxidants. I think.
by badnights
Sun Feb 18, 2018 8:02 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 67
Views: 857

Re: Dipyridamole

I havne't thought carefully but - could it be that the sleepiness induced by the dipyridamole triggers the urge to move? When we're alert, the urge might be there in the background even though it doesn't really bother us, but if we relax (lie down, take a sleeping pill, whatever), it flares up. This...
by badnights
Sun Feb 18, 2018 7:52 am
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 13
Views: 109

Re: Discussion of Adenosine paper

Re PLMS, that bothered me too. The presence of PLMs is not a diagnostic criterion and PLMS is not present in all WED/RLS patients. Since PLMS is quite common in WED/RLS, I guess we can't shoot them down for saying it's part of the RLS symptomalogy, but what they say in the first sentence of the abst...
by badnights
Thu Feb 15, 2018 7:29 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 11
Views: 286

Re: Changing my diet may have solved my RLS

That is pretty much the way I eat except I don't eat that much fruit (my original diet was ketogenic; to burn fat as a fuel source I had to limit my carbohydrate intake, so the only fruits I ate were berries, which are nutrient-dense. I have since added fruits and other carbs back in, but I tend to ...
by badnights
Thu Feb 15, 2018 7:14 am
Forum: Just Joined?
Topic: Just joined
Replies: 47
Views: 611

Re: Just joined

Did you ask him about the Requip withdrawal? I take it he is not familiar with treating that ....
by badnights
Wed Feb 14, 2018 8:42 am
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 13
Views: 308

Re: Tramadol while tapering Sinemet

It would be worthwhile to see Dr Winkleman whether or not he will prescribe opioids. Get off the Sinemet, Neupro is a reasonable alternative but the same precautions apply - you will start on a too-high dose if you don't wash out first. Ferritin of 75 is too low for a person with WED/RLS. If there i...
by badnights
Wed Feb 14, 2018 8:23 am
Forum: General Topics: RLS/WED
Topic: Thought: RLS and allergies/hypersensitivity
Replies: 1
Views: 63

Re: Thought: RLS and allergies/hypersensitivity

Very interesting! No research that I know of, but others may know of something. I didn't even realize allergies could become permanently (or long-term) worse after a bout of aggravation. Sure is similar to augmentation. I agree, the dopamine meds should not be front-line, and a number of specialists...
by badnights
Wed Feb 14, 2018 8:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 11
Views: 286

Re: Changing my diet may have solved my RLS

Oh noooo! That's terrible. I hope it heals quickly. Since you're taking Sinemet daily (I assume) and Requip, both of which cause WED/RLS augmentation (Sinemet particularly fast, too), you will have to be strict about your diet and other lifestyle factors so that you don't develop WED/RLS augmentatio...

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