Restless Legs Syndrome (RLS) Discussion Board

Hi snodove3 Gosh you're in a tough spot! Always sucks when your doctor doesn't know enough. This is such a tricky disease. I would guess you do have RLS/WED and have augmented from the levo-carbidopa. IF your iron is low, it is critical to raise it and to keep it up there by continuing to take oral ...

Good news. Thanks, Steve.

I have had a weird throat thing off and on but it wasn't linked to any medication I was taking. I hope you figure it out.

Sheesh.

Gee Deb that really sucks. Just when things seemed to be getting under control. Are you sure you're getting tolerant to the methadone or could it be one of the phases you go through when symptoms get worse?

Same thing happened to me with gabapentin.

I like to think that some day I’ll develop some cool ESP as repayment for all the agony. A guy can dream

HI EllenSpoehr. I've been managing my symptoms for 7 or 8 yrs with an opioid (hydromorph contin) after augmenting on each of ropinirole and pramipexole, and getting little benefit and a lot of problem from gabapentin. and trying a few other things. Since I started on the hydromorph, my problems have...

That took some time

I haven't tried it. I have had a hard time finding any reliable information that helpful amounts of magnesium can be absorbed through the skin. Let us know if it makes a difference.

Sorry, I meant specifics of what locations on the body are probed and what body parts are re-positioned and how. These are described for in Pain and Counterpain for Pelvic Pain, which is Ch 6 of something that I can't track because I'm even sleepier now than when I wrote the last post. Apparently WE...

Hi and welcome anitalb I don't need to repeat what the others have said, but I agree - your dose is too high for RLS/WED, new ideas are that ropinirole should be limited to 1 mg maximum daily. The contrary thing about it is that it eventually makes the disease worse, meaning your symptoms are more i...

Welcome to the discussion board, Getinby. We are sorry you have RLS/WED but this is a good place to be for people who do. Browse and around and post when you feel like it.

That's what I was afraid of. The gabapentin is not really taking care of the symptoms well enough for her to have a decent sleep, and her quality of life has decreased til she is just trying to get through the day. Her physician needs to be told this, as bluntly as possible, and then asked what solu...

If anyone finds some information on the "RLS-specific" locations and what to do with them, I'd be interested in seeing it. I couldn't find specifics.

little things, like having to keep track of time for my meds (with frequently changing time zones) and regularly having to refuse the wine at meals that I used to love. It has just driven home how much more RLS has taken from me beyond the sleep and movement issues that are a regular part of our da...