Search found 3917 matches

by badnights
Mon Jan 22, 2018 8:26 am
Forum: Prescription Medications
Topic: New med
Replies: 3
Views: 47

Re: New med

I take hydromorphon contin (long-acting hydromorphone/Dilaudid). I haven't ever gotten foggy brain from it, so I can't tell you if it goes away, but in general you should give a med 2 weeks for a fair trial. Maybe ask your doctor how long you should take it to find out for sure if the side effect wi...
by badnights
Mon Jan 22, 2018 8:11 am
Forum: Augmentation
Topic: going from ropinerole to gabapentin
Replies: 6
Views: 106

Re: going from ropinerole to gabapentin

It is a traumatic process and sometimes, when I think how casually some health professionals lead us to the point where we have to undergo it, I do wish that they could experience 24 hours of what withdrawal from a dopamine agonist is like.
yes!
by badnights
Mon Jan 22, 2018 8:09 am
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 7
Views: 96

Re: Sleeping Arrangements

just adding a bit to what'sbeen said already. If he has WED/RLS and it's not being treated, i.e. if he's experiencing the full impact of the WED/RLS, he will likely feel trapped with someone else in the bed. It's more of a physical reaction than a psychological feeling. The symptoms get worse. By sy...
by badnights
Sun Jan 21, 2018 3:49 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy and RLS
Replies: 5
Views: 6966

Re: Pregnancy and RLS

legsbe, most likely it was none of those. It's fairly common for the WED to stick after multiple pregnancies.

Funny I dont recall being bothered by it any more than usual (mild) when I was pregnant.

If it was as easy as giving folic acid... ha
by badnights
Sun Jan 21, 2018 5:58 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy and RLS
Replies: 5
Views: 6966

Study links low folic acid to WED/RLS during pregnancy

A recent study published by Northwestern Universi, IL links WED/RLS during pregnancy to low folic acid in the pregnant woman's blood. It has not been shown if low folic acid causes WED, if WED causes low folic acid, or if both WED and low folic acid arise from some other cause. Title is Serum folic ...
by badnights
Sun Jan 21, 2018 5:42 am
Forum: Prescription Medications
Topic: What's working for me
Replies: 2
Views: 71

Re: What's working for me

Your itching is deep, is that right? The humidifier is interesting. there has been some recent work that suggests a link between RLS/WED symptoms and muscle hypoxia (low oxygen in the muscles). I wonder if the humidifier helps because breathing is easier in moistened air, so more oxygen gets to the ...
by badnights
Sun Jan 21, 2018 5:34 am
Forum: General Topics: RLS/WED
Topic: Evaluating my cognition over time.
Replies: 4
Views: 54

Re: Evaluating my cognition over time.

I don't do anything quantitative, but I do remember in the first years after the disease went nuts in me, I was trying to finish my Masters thesis (I went back to school in my 40s), and I always expected to be able to do a task in the same amount of time it would have taken me when I was healthy. Th...
by badnights
Sun Jan 21, 2018 4:50 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium and CoQ10
Replies: 11
Views: 121

Re: Magnesium and CoQ10

This disease robs people of their lives. My career is over, had to retire just after turning 60. I am terrified of the opioid situation in this country. Those of you who know me here, know all of this. Since I have to wait until the end of May, it reminded me that time is so frustrating. I feel lik...
by badnights
Thu Jan 18, 2018 7:15 am
Forum: General Topics: RLS/WED
Topic: Hoping for a better night
Replies: 10
Views: 91

Re: Hoping for a better night

Coffee used to be really bad for me. I struggled for years and finally succeeded in quitting it completely, for about 2 years. I made a conscious decision to start it again. I was not craving it. There are health benefits to drinking moderate amounts. So I started with 2 cups a day on workdays only....
by badnights
Tue Jan 16, 2018 2:55 am
Forum: General Topics: RLS/WED
Topic: Overnight away from home
Replies: 7
Views: 118

Re: Overnight away from home

Nice. The more people who start to understand what you're going thru, the better.
by badnights
Sun Jan 14, 2018 8:58 pm
Forum: Augmentation
Topic: going from ropinerole to gabapentin
Replies: 6
Views: 106

Re: going from ropinerole to gabapentin

The best way to get through, if your doctor insists on a slow taper without opioid support, is to cease expecting anything of yourself. Take time off work, and concentrate on treating yourself well and getting through the day. Sleep when you can, eat properly, and expect nothing else, because you wi...
by badnights
Thu Jan 11, 2018 7:34 am
Forum: Everything Else...just no RLS/WED!
Topic: Happy New Year! & checking in
Replies: 10
Views: 172

Re: Happy New Year! & checking in

Good news, leggo! Must be such a relief.
by badnights
Thu Jan 11, 2018 7:30 am
Forum: Prescription Medications
Topic: venlafaxine withdrawal
Replies: 25
Views: 287

Re: venlafaxine withdrawal

:( :( Be gentle with yourself when you feel like that. Set very tiny goals. Remind yourself that the state you're in is temporary. I hope it doesn't last very long.
by badnights
Thu Jan 11, 2018 7:26 am
Forum: General Topics: RLS/WED
Topic: Flu + RLS + constipation = torture
Replies: 7
Views: 117

Re: Flu + RLS + constipation = torture

now I treat it as medicine
That's the way we should look at our food. It's worth the investment in quality to keep ourselves healthy
by badnights
Tue Jan 09, 2018 5:35 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 11
Views: 102

Re: Progress with my local doctor?

Steve, at least you're trying. And how thoroughly, too! It's bound to have some effect, hopefully the one you intend, but even it's just a few more people thinking twice before they make assumptions, that's something too.

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