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by badnights
Sun Feb 18, 2018 8:28 am
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 58
Views: 1596

Re: Two very different doctors' visits

as I was leaving my appointment yesterday, my PA asked me to bring back as much info as possible from the clinic because she has several patients with rls. We don't hear that very often. Yay!! That's great to hear. I seem to recall that the Foundation used to have a program where you could make a d...
by badnights
Sun Feb 18, 2018 8:13 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 11
Views: 196

Re: Changing my diet may have solved my RLS

I had already looked it up! It's juice made from - guess what - purple carrots. Carrots were originally dark purple but were bred to be orange. Purple carrots are making a comeback now. They have lots of anthocyanins, which are the purple pigments that are also anti-oxidants. I think.
by badnights
Sun Feb 18, 2018 8:02 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 62
Views: 713

Re: Dipyridamole

I havne't thought carefully but - could it be that the sleepiness induced by the dipyridamole triggers the urge to move? When we're alert, the urge might be there in the background even though it doesn't really bother us, but if we relax (lie down, take a sleeping pill, whatever), it flares up. This...
by badnights
Sun Feb 18, 2018 7:52 am
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 12
Views: 71

Re: Discussion of Adenosine paper

Re PLMS, that bothered me too. The presence of PLMs is not a diagnostic criterion and PLMS is not present in all WED/RLS patients. Since PLMS is quite common in WED/RLS, I guess we can't shoot them down for saying it's part of the RLS symptomalogy, but what they say in the first sentence of the abst...
by badnights
Thu Feb 15, 2018 7:29 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 11
Views: 196

Re: Changing my diet may have solved my RLS

That is pretty much the way I eat except I don't eat that much fruit (my original diet was ketogenic; to burn fat as a fuel source I had to limit my carbohydrate intake, so the only fruits I ate were berries, which are nutrient-dense. I have since added fruits and other carbs back in, but I tend to ...
by badnights
Thu Feb 15, 2018 7:14 am
Forum: Just Joined?
Topic: Just joined
Replies: 47
Views: 523

Re: Just joined

Did you ask him about the Requip withdrawal? I take it he is not familiar with treating that ....
by badnights
Wed Feb 14, 2018 8:42 am
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 13
Views: 267

Re: Tramadol while tapering Sinemet

It would be worthwhile to see Dr Winkleman whether or not he will prescribe opioids. Get off the Sinemet, Neupro is a reasonable alternative but the same precautions apply - you will start on a too-high dose if you don't wash out first. Ferritin of 75 is too low for a person with WED/RLS. If there i...
by badnights
Wed Feb 14, 2018 8:23 am
Forum: General Topics: RLS/WED
Topic: Thought: RLS and allergies/hypersensitivity
Replies: 1
Views: 41

Re: Thought: RLS and allergies/hypersensitivity

Very interesting! No research that I know of, but others may know of something. I didn't even realize allergies could become permanently (or long-term) worse after a bout of aggravation. Sure is similar to augmentation. I agree, the dopamine meds should not be front-line, and a number of specialists...
by badnights
Wed Feb 14, 2018 8:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 11
Views: 196

Re: Changing my diet may have solved my RLS

Oh noooo! That's terrible. I hope it heals quickly. Since you're taking Sinemet daily (I assume) and Requip, both of which cause WED/RLS augmentation (Sinemet particularly fast, too), you will have to be strict about your diet and other lifestyle factors so that you don't develop WED/RLS augmentatio...
by badnights
Wed Feb 14, 2018 7:50 am
Forum: Just Joined?
Topic: Just joined
Replies: 47
Views: 523

Re: Just joined

kratom is not something that is prescribed. It's a herbal product, ordered online. It has opioid-like properties and is effective at relieving the WED/RLS urge to move and distressing sensations. As Holland said, it might help with the knee pain, too. It is illegal in some states but legal in many. ...
by badnights
Tue Feb 13, 2018 3:12 am
Forum: Just Joined?
Topic: Just joined
Replies: 47
Views: 523

Re: Just joined

hope it goes well
by badnights
Mon Feb 12, 2018 7:01 am
Forum: Just Joined?
Topic: Just joined
Replies: 47
Views: 523

Re: Just joined

That sounds like a pretty good sleep for night #4. Sheer exhaustion cannot overrule WED when it's in full swing, so she must be getting over the withdrawal.

What does she have for the knee pain? Would ibuprofen or acetominophen help with that?
by badnights
Mon Feb 12, 2018 6:59 am
Forum: General Topics: RLS/WED
Topic: Opioid Interview on TV
Replies: 14
Views: 104

Re: Opioid Interview on TV

Yes, our sensations can be described as pain. They fit within the broad definition of pain, which is a distressing and unpleasant sensation, but unlike most pain, they don't usually include the impression that body tissues are being damaged. Whether we call it pain or call it something else, the mai...
by badnights
Sun Feb 11, 2018 7:08 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 12
Views: 71

Discussion of Adenosine paper

I have the impression that hyperarousal from opioids does not affect pain patients, for two admittedly imperfect reasons: I haven't seen hyperarousal listed as an opioid side effect on the usual sites, and my GP's clinical experience is that it causes drowsiness. At first I thought opioid-induced hy...
by badnights
Sun Feb 11, 2018 6:43 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium and CoQ10
Replies: 28
Views: 484

Re: Magnesium and CoQ10

Deb, don't forget the solution may not be a medication per se. It might be another substance (mmj even), or a combination of meds and other substances and diet, or a device or procedure. What about an implanted morphone pump, whiich would deliver such a low dose of morphine that your CNS woudln't be...

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