Search found 3857 matches

by badnights
Wed Nov 29, 2017 5:06 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 30
Views: 230

Re: Is it Only Me ?

I bet most of our members could relate to these feelings, at least some of the time. I certainly do. I avoid anything requiring emotional sensitivity or anything requiring complex judgements unless they occur during my "good" times... basically 6AM to noon. Chronic sleep deprivation has t...
by badnights
Wed Nov 29, 2017 5:00 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 42
Views: 14128

Re: Latest on TENS Unit Use for Nighttime Symptoms

sleepdancer It sounds like you've succeeded in doing something I tried but couldn't figure out how to do. I read in the book "Explain Pain", by David Butler, how people in chronic pain have ingrained neural reflexes (so to speak) that relay the pain signal to the brain. It began as a real ...
by badnights
Wed Nov 29, 2017 4:39 am
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 42
Views: 638

Re: New to Site; hello to all

I'm beginning to think it's just personal to the individual RLS sufferer.
There's a lot to be said for that idea. Ann has been saying for years how the disease presents differently in different people, and there must be variants of it.
by badnights
Tue Nov 28, 2017 7:21 am
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 42
Views: 638

Re: New to Site; hello to all

congratulations on the coffee culling. It is very hard. I found the only way to do it was to quit completely - I couldn't say "I'll just have one cup, and nothing after 11 AM" or anything like that, because if I had one, I would eventually have more. It might help to think of sugar this wa...
by badnights
Tue Nov 28, 2017 7:12 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 413
Views: 23678

Re: Medical Marijuana

oozz, what is the THC:CBD ratio or what brand or type are they? and do they actually stop the movements, or the urge to move?
by badnights
Tue Nov 28, 2017 7:10 am
Forum: Help for Relationships
Topic: World War III - I pushed the button
Replies: 53
Views: 11063

Re: World War III - I pushed the button

Plus I don't want to deal with her creepy husband.. When she remarried she chose a child molester who had just gotten out of prison. They are totally enmeshed and when I call he lays on the guilt too: "Your mother will be happy to talk to you," etc. I know she talks to him about her relat...
by badnights
Tue Nov 28, 2017 7:03 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 30
Views: 230

Re: Is it Only Me ?

Oh my. Christmas is hard in so many ways. Betty, you get much less sleep than a person needs, and that can impact every aspect of your mental well-being. Never under-estimate the impact of chronic sleep loss. On top of that, you sound like you might be in a state of constant, low-grade anxiety. How ...
by badnights
Tue Nov 28, 2017 6:42 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 288
Views: 14013

Re: What Severe RLS is Like

How amazing. I don't think you've mentioned your artistic bent on here before. So many things we lose when the disease is raging.
by badnights
Tue Nov 28, 2017 6:40 am
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 32
Views: 378

Re: Two very different doctors' visits

Life keeps going and I am determined to take part.
I love it.
by badnights
Fri Nov 24, 2017 7:14 am
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 39
Views: 557

Welcome pattyann!

Today we welcome pattyann, who has had WED/RLS since she was young, when her doctor told her it was growing pains. What she has been through since will sound familiar to most of us. She's desperate for a solution, has tried meds some of which helped for a while but they always quit working - when yo...
by badnights
Thu Nov 23, 2017 5:36 am
Forum: Everything Else...just no RLS/WED!
Topic: Harassed by repair person
Replies: 13
Views: 156

Re: Harassed by repair person

Your gut instinct is unlikely to be wrong. You are perhaps feeling that you might have put him in his place at the time. And perhaps also feeling that you might have been aware that he was a fraud. That you missed the opportunity to deal with his behaviour at the time. Betty is bang-on, as usual. I...
by badnights
Thu Nov 23, 2017 5:24 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 42
Views: 14128

Re: Latest on TENS Unit Use for Nighttime Symptoms

I don't know how insurance works in USA, probably depends on your insurer. I got my doctor to write a prescription, but I don't know if my insurance will cover any of it. I have given up on it - for now - because the Canadian supplier stopped carrying it, and then I decided I was more likely to bene...
by badnights
Thu Nov 23, 2017 5:17 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 7529

Re: Infusion Update

Gee I don't see how he can imagine that short-acting would do the trick. It needs to last longer than 4 hours! Otherwise we get up in 4 hrs, take another pill, wait 15 min for it to kick in, and yay if nothing goes wrong we have 8 hours of broken sleep and never get to sleep in. Boo hiss. I would no...
by badnights
Thu Nov 23, 2017 5:08 am
Forum: Prescription Medications
Topic: Requip & Erectile Dysfunction ???
Replies: 222
Views: 11206

Re: Requip & Erectile Dysfunction ???

Me too, that's the thing that struck me. Augmentation is a common side effect of the class of medications called dopamine agonists (includes ropinirole and pramipexole), and the another dopamine med that's used for WED/RLS but is not an agonist (levo-carbidopa /Sinemet). Augmentation of RLS/WED has ...
by badnights
Thu Nov 23, 2017 4:45 am
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 32
Views: 378

Re: Two very different doctors' visits

Wow, good news about the PA. Have you stopped taking the Sinemet, then? It can still be useful for a one-off, but I would recommend never two nights in a row, and no more than 3 times a week. In other words, for emergencies. I made up those numbers based on my experiences; yours might be different b...

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