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by badnights
Fri Nov 17, 2017 7:09 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 59
Views: 800

Re: Moving Mayhem

(I've been getting progressively bigger vehicles as my small car got read-ended and totaled, then my somewhat larger car, which was a hybrid, got rear-ended by a concrete truck...) Yikes, Susan! I hope that trend doesn't continue. You'll be driving a concrete truck, yourself, and it'll get rear-end...
by badnights
Fri Nov 17, 2017 6:57 am
Forum: Help for Relationships
Topic: Outburst at UPS Store Guy
Replies: 22
Views: 275

Re: Outburst at UPS Store Guy

One of my issues right now is that I don't have many interests anymore, except my dog. Everything seems to have fallen by the wayside in favor of the energy it takes to survive my daily grind. It's pretty bad. I'm not even spending much time with friends anymore. leggo, I truly believe this is temp...
by badnights
Fri Nov 17, 2017 6:46 am
Forum: Help for Relationships
Topic: World War III - I pushed the button
Replies: 51
Views: 10642

Re: World War III - I pushed the button

leggo, if it's impacting you negatively, you have to save yourself. When I was 21, I got a job 3000 miles away from her. I don't recall that there were a lot of other jobs in the offing, but it was a 3-month job and I stayed 35 years (and counting). Regardless of my job options at the time, I always...
by badnights
Fri Nov 17, 2017 6:30 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 358
Views: 78857

Re: Published Research - General Sleep and RLS (WED)

Well, there are two studies on this that I know of now (probably more, since I don't keep up). The other one found a correlation between low vitamin D and RLS severity. This one finds that raising serum levels of vitamin D did not improve WED symptoms, but they admit that the dose might have been to...
by badnights
Fri Nov 17, 2017 6:20 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 82
Views: 6854

Re: Infusion Update

He wants to go through the other opioids again to see if we can find a substitute that works well enough that I can use it alone without the pramipexole. Methadone alone, for me, is too sedating and causes too much memory loss, especially as the ferritin declines and I need more. Cannot do the pram...
by badnights
Fri Nov 17, 2017 6:09 am
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 35
Views: 248

Re: New to Site; hello to all

Now that you've gotten rid of the worst things, that were actually making your RBS symptoms worse, it's time to consider what Ann said - are any of your other meds causing alertness or working backwards in some way? Melatonin might not help - onset of symptoms coincides with natural circadian rise i...
by badnights
Wed Nov 15, 2017 7:08 am
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 67

Re: random rant about a doctor

@fuz - my GP wanted to use WED for me but the code-table term in the database can't be altered by the unwashed masses , so she has to use RLS. Definitely a lot of wierd one-offs about WED out there - I came across the oddballs like the auditory startle reflex when I first started looking into this d...
by badnights
Wed Nov 15, 2017 7:03 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 271
Views: 12716

Re: What Severe RLS is Like

I do enjoy working outside, I just didn’t think before I retired that it would work out that way but it is very relaxing despite physical exertion. I slept 7 hours 45 minutes last night and that about sums it up :) We're looking for a new residence for our mother, and one of the key requirements is...
by badnights
Wed Nov 15, 2017 6:54 am
Forum: Just Joined?
Topic: New to Site but not to RLS
Replies: 5
Views: 50

Re: New to Site but not to RLS

Sorry I didn't reply to this sooner. Sleepiness can be a side effect of ropinirole and of pramipexole (as can insomnia). One of the major warnings for both meds is that some people actually fall asleep without any warning so you're not supposed to drive for a few days after you start taking it , unt...
by badnights
Mon Nov 13, 2017 6:56 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 67

Re: random rant about a doctor

And it's STILL trivialized by doctors who don't know. Never mind all the non-doctors. The name honestly is part of the problem. Remember that survey that was done, - - I have just spent some time searching for our discussions on it and haven;t found it so maybe my memory is faulty about the details ...
by badnights
Mon Nov 13, 2017 6:45 pm
Forum: Augmentation
Topic: Moving from Ropinirole to Horizant
Replies: 1
Views: 41

Re: Moving from Ropinirole to Horizant

Congratulations on getting that far! Augmentation is a horror, and withdrawal is another level of horror, but you have seen your way through much of it already (without much help, I'll add)/ To get off the remaining 0.25 mg, you should take another week off work if you can. You will have symptoms an...
by badnights
Sun Nov 12, 2017 8:11 pm
Forum: Augmentation
Topic: Getting off of Requip due to augmentation
Replies: 42
Views: 1061

Re: Getting off of Requip due to augmentation

@crackedvessel I think it's important to have your story here, so that people know that augmentation can be treated that way (by lowering the dose of the DA and toughing it out, then raising it again), at least for some people. Another thing you might successfully try is switching DAs when you first...
by badnights
Sun Nov 12, 2017 7:47 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 271
Views: 12716

Re: What Severe RLS is Like

Anyway I was thinking of drawing this and maybe sculpting it from several different perspectives. I loathe doing anything that is too easy but this seems almost too difficult. At least it will keep me busy I suppose. That's a crazy-good idea. I have no clue how you'd do the sculpture, but what a ch...
by badnights
Sun Nov 12, 2017 7:40 pm
Forum: General Topics: RLS/WED
Topic: Issues feel insurmountable
Replies: 30
Views: 266

Re: Issues feel insurmountable

Sounds like you need to adjust medications to deal with the back pain too. Also read this book, if you can, it's the best book on pain I've seen (all the others I read or looked at imply that you're mentally defective if you feel pain, and this one in no way does): Explain Pain by David Butler. It's...
by badnights
Sun Nov 12, 2017 7:36 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 67

Re: random rant about a doctor

Oh, I forgot: I usually mention that 10-15% of the population has WED, but it varies in intensity, so that most people who have it don't really have a problem. It bothers them every now and then, and only lasts a short while. But some of us - maybe 2% of the population - have severe cases, where it ...

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