Search found 4239 matches

by badnights
Sun Jan 20, 2019 9:49 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 34
Views: 1446

Re: Experience with Injectafer?

The inflammation or just the pain itself or something about the hip injury could be what triggered your WED/RLS that night. It might be good if you can keep from doing anything that might cause your arthritis to flare up while you are tapering, so you can have a better idea of the cause if your WED/...
by badnights
Sun Jan 20, 2019 9:39 pm
Forum: Physical Treatments
Topic: Cold Turkey Blues
Replies: 10
Views: 103

Re: Cold Turkey Blues

I am so impressed with you! That's hellish hard to do. You're approaching it right, not expecting anything of yourself and living in the moment as much as possible, finding what relief you could and snatching whatever sleep you can get. Don't forget, during those times that your symptoms are still b...
by badnights
Thu Jan 17, 2019 8:35 am
Forum: Just Joined?
Topic: New to group.
Replies: 31
Views: 413

Re: New to group.

Congratulations on making it through that hellish experience. Thank you for returning to tell us of it! You didn't ramble at all. But you're allowed to ramble here if you want to :) Someone on this blog said Effexor can exacerbate RLS symptoms, and apparently that's what was happening for YEARS. Alo...
by badnights
Mon Jan 14, 2019 8:02 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom berry compote
Replies: 30
Views: 4339

Re: Kratom berry compote

Lasvegased777 I agree, kratom has helped many people with WED/RLS. and probably people with opioid-addiction problems as well. Kudos to you for getting off opioid despite an addiction; that must have been a horrendous journey. It is so difficult - in many ways - to have a disease whose most effectiv...
by badnights
Mon Jan 14, 2019 7:40 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: something easy that worked for me
Replies: 9
Views: 1032

Re: something easy that worked for me

XWelcome, your comments are intriguing. Coming right after Ann's post about the variation she's noticed in this disease, it seems to emphasize her points. This is such a complex disease. I have to find a point that hurts more than the PLM RLS. I use three different balls on my back. What does your R...
by badnights
Mon Jan 14, 2019 7:26 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1437

Re: Attempting to get off Ropinirole - again

Possibly it was meant as a general comment and not specifically relating to RLS.
Yes, I'm sure that's what he meant.
by badnights
Mon Jan 14, 2019 7:24 am
Forum: Prescription Medications
Topic: Increasing Gabapentin dosage
Replies: 14
Views: 680

Re: Increasing Gabapentin dosage

Wow! I could sit perfectly still for over an hour. That was interesting because I realized that my body is always moving in one way or another. Isn't it interesting how we adapt to our situation so well that we don't know what "normal" is anymore? Only when we get a taste of the old "...
by badnights
Mon Jan 14, 2019 6:59 am
Forum: Prescription Medications
Topic: What DA to take
Replies: 11
Views: 218

Re: What DA to take

I totally understand how awful it must have been. I hope things are going well. Are you still in hospital?
by badnights
Sat Jan 12, 2019 7:25 am
Forum: Just Joined?
Topic: New to this group
Replies: 11
Views: 275

Re: New to this group

Hi Deb I haven't talked to you before now but I noticed some things in your thread that I would like to address. While it certainly can occur in one leg at a time, the majority of people have symptoms in both legs simultaneously, especially if the RLS has been present more than a few years. Not only...
by badnights
Fri Jan 11, 2019 5:24 am
Forum: Just Joined?
Topic: JANUARY 2019 - New Members
Replies: 25
Views: 554

Welcome to caser

Welcome to caser, who has had RLS for 50 years and feels the symptoms creep into arms and back at times, and worries about the effect of the medication on one's overall physical condition. caser, feel free to start a Topic and tell us a bit about your experiences with WED/RLS. Are you taking a dopam...
by badnights
Fri Jan 11, 2019 3:17 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 89
Views: 2445

Re: Back Surgery and RLS plus spasms

Maybe it's going to be 5 steps forward and one backward. I hope at least it keeps getting better overall.
by badnights
Fri Jan 11, 2019 3:14 am
Forum: Help for Relationships
Topic: What Relationships?
Replies: 32
Views: 3413

Re: What Relationships?

restlessknight, if you don't mind telling us, what are you taking now and how much? I wonder if you're augmenting - if you're taking a DA, you might be. Before starting iron you should be sure you can safely do so (no danger of iron overload, and iirc you're not supposed to take iron with thyroid me...
by badnights
Fri Jan 11, 2019 2:50 am
Forum: Prescription Medications
Topic: What DA to take
Replies: 11
Views: 218

Re: What DA to take

If you can get by without raising it to 0.5 .... I hate to see you augment after being stable for so long.
by badnights
Fri Jan 11, 2019 2:48 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 34
Views: 1446

Re: Experience with Injectafer?

Oh Holland, I'm crying. I don't know if it's because I'm happy for you or sad for myself! Both, I guess. I hope the benefits for you last a long time!
by badnights
Fri Jan 11, 2019 2:44 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1437

Re: Attempting to get off Ropinirole - again

The reason to do it cold turkey is so that it hurts for less time. Remember that if the taper becomes too agonizingly everlasting.

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