Search found 4416 matches

by badnights
Mon Jun 24, 2019 4:59 am
Forum: Prescription Medications
Topic: Oxycodone HCL--how much works for you?
Replies: 8
Views: 95

Re: Oxycodone HCL--how much works for you?

AFAIK oxycodone ER should be taken at least twice daily. This will ensure a certain blood level all day, and this is apparently the key of not getting addicted or not having withdrawal symptoms. taking it twice a day will prevent mini-withdrawals, but I don't see how it can be involved in preventin...
by badnights
Mon Jun 24, 2019 4:50 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 86
Views: 2491

Re: Attempting to get off Ropinirole - again

It's good you tried the extra pregabalin. Have you had weight-gain issues on pregabalin or only on gabapentin? Maybe it won't be such a problem. The burning sounds more like a neuropathy than WED, but maybe it's some weird withdrawal thing ?? Anyway, not surprising that the pregabalin helped it. I h...
by badnights
Mon Jun 24, 2019 4:45 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 59
Views: 1315

Re: Cannabis

The need to experiment I find very depressing. I feel that i can't afford the time - - the time that gets lost when you have a bad night.
by badnights
Mon Jun 24, 2019 4:38 am
Forum: Prescription Medications
Topic: B 12 levels
Replies: 13
Views: 1385

Re: B 12 levels

Wow. You're not the only one who reports B12 helping the symptoms. I hope it continues.

I took a sublingual tablet of B12 (methylcobalamin) for many months without any apparent effect, but it might be worth a try again since I had a lot of other things going on then.
by badnights
Mon Jun 24, 2019 4:34 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: SIBO - 4 facts from a dietician
Replies: 3
Views: 112

Re: SIBO - 4 facts from a dietician

Did you notice any changes in your RLS? It's hard to say what affected my WED/RLS since I made some massive dietary changes at the same time. Yes, my WED/RLS got better - over 2 years I was able to reduce my meds every 3-6 months til I was at slightly under half what I had been taking. But I don't ...
by badnights
Mon Jun 24, 2019 4:31 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: new ideas for RLS
Replies: 6
Views: 365

Re: new ideas for RLS

I take maca to help recover from workouts but there's no evidence one way or the other that it helps. In your case, however, you're taking it for RLS/WED, which seems to be affected by hormonal states that change during pregnancy; and WebMD says maca-root extracts might act like estrogen.
by badnights
Sat Jun 22, 2019 5:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 20728

Appointment at Johns Hopkins

I have a question for people. As I mentioned before, I applied for an appointment with Dr. Earley (or Allen haha) or someone else who is part of the RLS Quality Care Center at Johns Hopkins. Today they gave me an appointment with a Dr. Sara Benjamin. I have looked her up - I am not much interested i...
by badnights
Fri Jun 14, 2019 5:18 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: SIBO - 4 facts from a dietician
Replies: 3
Views: 112

Re: SIBO - 4 facts from a dietician

Seems a sensible article, for once. She says no diet will control symptoms but can help manage them while the SIBO is being treated, and the low-FODMAP one is the best "bang for your buck" (highest ratio of effectiveness to restrictiveness). I mocked it at the time. but the naturopathic tr...
by badnights
Fri Jun 14, 2019 5:01 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 20728

Re: Wahls diet for WED? Trying it.

am noticing one major lasting benefit of the time on dipyridamole - I still (6 months or more after discontinuing) don’t get the creepy crawley feeling that was originally banished by dipyridamole. For that alone I am really pleased I spent time on dipyridamole. legsbe, are you saying your WED/RLS ...
by badnights
Fri Jun 14, 2019 4:56 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 59
Views: 1315

Re: Cannabis

how interesting. Probably does have an effect!
by badnights
Fri Jun 14, 2019 4:44 am
Forum: Prescription Medications
Topic: Anyone ever been told trazadone caused their RLS?...
Replies: 10
Views: 227

Re: Anyone ever been told trazadone caused their RLS?...

we get so cought up in looking for answers outside our selfs. That's the main message. There's no lack of information in the world these day. Its over kill. They repeat the same information over and over again until we are blue in the face. So be careful what your feeding on because it might make y...
by badnights
Fri Jun 14, 2019 4:38 am
Forum: Prescription Medications
Topic: Yoga Helping me so far
Replies: 6
Views: 84

Re: Yoga Helping me so far

Huh! Nice ! Can you do forward bends? I find that forward bends set it off, but standing poses are good. Also anything that silences our sympathetic nervous system (fight or flight) and activates the parasympathetic (wine and dine, or relax on the beach, or whatever) is helpful. Yoga is particularly...
by badnights
Fri Jun 14, 2019 4:35 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 86
Views: 2491

Re: Attempting to get off Ropinirole - again

Yaaaay.... sorted. But this was inefficiency. What about the person who isn't able to speak up for themselves, isn't able to persist, who still thinks that the Doctor is God Almighty. I know! I shudder to think of what some people are going through. Oceanwalker - - you've tolerated your doctor for ...
by badnights
Fri Jun 14, 2019 4:29 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 38
Views: 505

Re: Excellent article on opioids

have realized that no doctors will help me, Honestly it's not as bad as that. You have to find a doctor who will help, and that can be a nightmare, especially when you're incoherent with sleep loss and never-ending torture. But they do exist. Your pain doc mentioned suboxone - - so don't write him ...
by badnights
Fri Jun 14, 2019 4:21 am
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 24
Views: 328

Re: Weaning off medications

I am not experiencing typical opiate withdrawal symptoms. As with the DA's, I am having a significant exacerbation of the RLS symptoms, despite having recently added a 3mg Neupro patch. I guess I will eventually see how much is the lack of methadone and how much is the RLS. Your exacerbated RLS/WED...

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