Search found 4065 matches

by badnights
Sat May 19, 2018 2:23 am
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 8
Views: 124

Re: Refractory RLS

It might take a while for him to feel if there's going to be any effect from the infusions. If he hasn't already done so, he should think about ending the taper and stopping the pramipexole completely immediately. Most people find at some point that tapering just prolongs the agony, and the agony is...
by badnights
Wed May 16, 2018 6:50 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 781

Re: Prescription Refills

When you wake up, is it because of the symptoms, or is it an awakening without apparent cause? Once my symptoms became reasonably controlled with hydromorph contin, I found I couldn't sleep longer than about 10 minutes at a time, except for a 1-3 hour period right around when I was supposed to be ge...
by badnights
Wed May 16, 2018 6:46 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 19
Views: 611

Re: Methadone and Gabapentin no longer working well

Hope your upcoming appt leads to some changes for the better. All the troubles you're having can lead us to despair, but life is short and time is fleeting (stolen quote). The more I see, the more I realize I've become one of those people who is wasting her life trying to keep up, instead of living ...
by badnights
Wed May 16, 2018 4:56 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom physiology
Replies: 16
Views: 440

Re: Kratom physiology

Since going into ketosis on Wednesday, my RLS has just gone wildly out of control. I finally broke down and took some methadone in the middle of the night. I forgot how sad and cranky methadone makes me. I also got a migraine aura a little while ago. Hopefully I can do few days of methadone and the...
by badnights
Wed May 16, 2018 4:52 am
Forum: Just Joined?
Topic: Just joined
Replies: 18
Views: 651

Re: Just joined

yup, that sounds pretty much like RLS/WED to me.
by badnights
Sat May 12, 2018 2:51 am
Forum: General Topics: RLS/WED
Topic: Orthofix fusing machine
Replies: 6
Views: 136

Re: Orthofix fusing machine

So is RLS a nerve problem or a brain problem? The brain is made of neurons (nerve cells). I guess it' would be more accurate, based on what's known, to say RLs/WED is a brain problem, but apparently there's some evidence that peripheral nerves (non-brain, non-spinal cord nerves) might be involved t...
by badnights
Sat May 12, 2018 2:38 am
Forum: General Topics: RLS/WED
Topic: Over-the-counter sleep aids
Replies: 4
Views: 132

Re: Over-the-counter sleep aids

Sominex is diphenhydramine, same as Benadryl. Good on you for thinking twice and finding out before trying! That would have been a nightmare for you.
by badnights
Thu May 10, 2018 5:03 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 429
Views: 34686

Re: Medical Marijuana

They didn't feel cold, but I touched them and was shocked at how cold they were. So, I ordered an electric blanket. All of a sudden, over the last week or so, I am sleeping soundly, and only waking up once or twice. I have an electric pad about 2x1 ft maybe even smaller. Even in the summer sometime...
by badnights
Wed May 09, 2018 11:30 am
Forum: Physical Treatments
Topic: Counterstrain Technique
Replies: 10
Views: 792

Re: Counterstrain Technique

Thanks. Wondering if anyone else has any thoughts? Somewhat puzzling because the patients did not stop their meds and there was no change in sleep loss. Despite this, the aggregate RLS score improved by 10 points. They don't show what specific areas of the questionnaire improved, just the aggregate...
by badnights
Wed May 09, 2018 11:27 am
Forum: Just Joined?
Topic: Just joined
Replies: 18
Views: 651

Re: Just joined

I'm 74 and have had RLS all my life but it recently became unbearable. My family Doctor gave me Xanax for anxiety and I noticed it helped me to sleep through the RLS, even though it did show up on my sleep study. So then she allowed me 1/2 of the lowest mil of Xanax to help me sleep. It worked for ...
by badnights
Sat Apr 21, 2018 3:04 am
Forum: Prescription Medications
Topic: gabapentin. 600mg. Tapering off
Replies: 12
Views: 351

Re: gabapentin. 600mg. Tapering off

Hi snodove3 Gosh you're in a tough spot! Always sucks when your doctor doesn't know enough. This is such a tricky disease. I would guess you do have RLS/WED and have augmented from the levo-carbidopa. IF your iron is low, it is critical to raise it and to keep it up there by continuing to take oral ...
by badnights
Sat Apr 21, 2018 2:42 am
Forum: Prescription Medications
Topic: Pending approval for CBD Oil by the FDA?
Replies: 1
Views: 186

Re: Pending approval for CBD Oil by the FDA?

Good news. Thanks, Steve.
by badnights
Sat Apr 21, 2018 2:41 am
Forum: Prescription Medications
Topic: Gabapentin Side Effect
Replies: 5
Views: 385

Re: Gabapentin Side Effect

I have had a weird throat thing off and on but it wasn't linked to any medication I was taking. I hope you figure it out.
by badnights
Sat Apr 21, 2018 2:40 am
Forum: Prescription Medications
Topic: Requip & Erectile Dysfunction ???
Replies: 233
Views: 18330

Re: Requip & Erectile Dysfunction ???

Sheesh.
by badnights
Thu Apr 19, 2018 5:25 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 19
Views: 611

Re: Methadone and Gabapentin no longer working well

Gee Deb that really sucks. Just when things seemed to be getting under control. Are you sure you're getting tolerant to the methadone or could it be one of the phases you go through when symptoms get worse?

Same thing happened to me with gabapentin.

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