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by badnights
Tue Aug 07, 2018 2:48 am
Forum: Prescription Medications
Topic: no prescription for ropinirol
Replies: 6
Views: 205

Re: no prescription for ropinirol

I would take it as a good sign that she won;t raise the dose. I would also describe to her why you feel you need a dose increase - what is happening to you? Does the current dose not cover the symptoms? Have the symptoms been getting worse? Your symptoms might already be augmented by the ropinirole.
by badnights
Tue Aug 07, 2018 2:17 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 1555

Re: Prescription Refills

That;s why the advocacy work the Foundation is doing (and individuals too ) is so important. Hopefully the backlash will stop before it gets even more unreasonable.
by badnights
Tue Aug 07, 2018 2:00 am
Forum: Prescription Medications
Topic: How long does it take for Lyrica to start working?
Replies: 13
Views: 161

Re: How long does it take for Lyrica to start working?

I was taking 1800 mg gabapentin and 150 mg codeine and it wasn't controlling my symptoms. The recommended daily dose of gabapentin for RLS/WED is 1800 mg according to Lee et al 2013 (the little Blue book, 2nd edition) or 3600 mg according to the RLS Foundation's medical bulletin of 2017. So you have...
by badnights
Tue Aug 07, 2018 1:35 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 33
Views: 2932

Re: Changing my diet may have solved my RLS

I wonder why my PC insists that the best way to absorb the most iron is to take it every other day. Are their different expert opinions on this? Yes, there are, of course. Your PC is going by the theory I mentioned earlier, If iron isn't absorbed unless your blood levels are low, how does taking ir...
by badnights
Tue Aug 07, 2018 1:24 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 7
Views: 244

Re: Histamine/Tyramine Food Triggers

I don't know if I'm relieved or not! It's nice to know that you figured it out without doing long-term analyses of hundreds of different foods. But it's disappointing, in a way, to know that I don't have such immediate reactions to any food, and will likely therefore never figure out if any other fo...
by badnights
Tue Aug 07, 2018 1:14 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 5
Views: 163

Re: best iron suppliment to increase ferritin levels?

Also, there's no need to take it 3 times a day,. You can still take 6 times as much, but take it all at once. There's some indication that it will be absorbed better if you don't maintain levels by taking it all day long, rather let them drop over the course of the day and take once, at bedtime. EDI...
by badnights
Mon Aug 06, 2018 3:05 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron has helped
Replies: 11
Views: 601

Re: Iron has helped

Ferrous sulfate 3x 65mg elemental iron equivalent. Take three pills at once an hour or so before bedtime with 500 mg vitamin C. Repeated experiments both intentional and unintentional over the years have shown me that reducing this dose - even by taking the third pill only on alternate days - result...
by badnights
Mon Aug 06, 2018 2:44 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 27
Views: 998

Re: Introducing myself

As the washout progresses, am I correct in assuming the level of oxycodone will gradually reduce? And what sort of markers tell you it's time to stop? Is it all symptom-based? It's hard to say, but hopefully yes. If you're augmented, then once the augmentation and the even-worse withdrawal are over...
by badnights
Sat Aug 04, 2018 7:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 7
Views: 244

Re: Histamine/Tyramine Food Triggers

pamhb when you have a reaction to a certain food, does it occur within a few hours, or same day? Is it that obvious? Or is it more of a statistical thing, with bad WED/RLS symptoms happening more often when you eat it than when you do not? I ask because I haven't identified ANY dietary triggers, eve...
by badnights
Sat Aug 04, 2018 4:09 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Super Foods for RLS
Replies: 1
Views: 118

Re: Super Foods for RLS

thank you for this:). When you say " may provoke a histamine reaction" do you mean you regard it as a superfood despite its potential for adverse effects related to histamine, becuase the iron-dopamine-bloodflow benefits are so good?
by badnights
Fri Aug 03, 2018 5:35 am
Forum: Just Joined?
Topic: Greetings from SBROOK in Ottawa Canada
Replies: 2
Views: 177

Re: Greetings from SBROOK in Ottawa Canada

I just read your story and love hearing stuff like that. You're not "textbook"; hearing from people like you helps everyone to understand how the disease can vary from person to person. Also to understand that it's not inevitably going to get worse and worse until we die. You don't mention...
by badnights
Fri Aug 03, 2018 5:24 am
Forum: Just Joined?
Topic: Hello from Sequoiah66 - Anyone else Iron Deficient & RBC High?
Replies: 5
Views: 248

Re: Hello from Sequoiah66 - Anyone else Iron Deficient & RBC High?

If only the doctors got to live this "dream life" of crawling through my days, maybe they would figure out ways to make things go faster for their patients... Amen to that. A lot of us are tired of being guinea pigs for our doctors to learn on, putting ourselves into or losing days or mon...
by badnights
Fri Aug 03, 2018 5:16 am
Forum: Just Joined?
Topic: Just joined
Replies: 3
Views: 137

Re: Just joined

Hi sleepless, and welcome.
What you said pretty much summarizes it truly. No one who doesn't have it seems to understand, but the few who do are a godsend.
by badnights
Fri Aug 03, 2018 5:14 am
Forum: Just Joined?
Topic: Recently Diagnosed
Replies: 4
Views: 144

Re: Recently Diagnosed

You mentioned that ropinirole did nothing. That's pretty unusual for WED/RLS. A supplementary criterion to aid diagnosis is that a dopamine agonist like ropinirole will have, at least initially, a positive effect on symptoms. When you weren't medicated, did you experience disturbing/disruptive sensa...
by badnights
Fri Aug 03, 2018 2:56 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 27
Views: 998

Re: Introducing myself

No one knows for certain but I caution against a mere 1 or 2 week "holiday" from pramipexole. I think for some of us, things don't return to normal for years after augmentation. If gabapentin gave you those side effects, then Horizant is out; and anyway anti-convulsants by themselves don't...

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