![Smile :)](./images/smilies/icon_smile.gif)
Search found 5366 matches
- Sun Dec 24, 2023 4:10 am
- Forum: Just Joined?
- Topic: Possible link between RLS and CVI
- Replies: 5
- Views: 14206
Re: Possible link between RLS and CVI
nice summary! thanks ![Smile :)](./images/smilies/icon_smile.gif)
![Smile :)](./images/smilies/icon_smile.gif)
- Thu Dec 14, 2023 4:43 am
- Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
- Topic: Managing RLS and Parkinson's
- Replies: 2
- Views: 28127
Re: Managing RLS and Parkinson's
Good morning, Wondering if anyone has RLS and Parkinson's and how they are being managed with medications. Concerned about use of Sinemet along with Neupro patch, particularly for augmentation. Husband has been on Sinemet 25 mg three times a day since October 2022, Rotigotine patch 4mg nightly for ...
- Thu Dec 14, 2023 4:18 am
- Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
- Topic: Associations between RLS & Asperger's & Other conditions
- Replies: 2
- Views: 9569
Re: Associations between RLS & Asperger's & Other conditions
Can anyone address the frustrating association between RLS and Asperger's, myoclonus, hypnic jerks, benign fasciculation syndrome, insomnia, brain vibrations? While I have severe RLS - - - - my son, who is 43 ---- has suffered for 2 years with a variety of symptoms. It started with muscle twitches ...
- Thu Dec 14, 2023 4:08 am
- Forum: Augmentation
- Topic: nerve injury
- Replies: 16
- Views: 41400
Re: nerve injury
I like this news. Too often I assume it can't be done. Are you on nothing but gabapentin now?tagalongbuddy wrote: ↑Tue Aug 29, 2023 7:27 amFor about two years now, the neurologist slowly took me off the DA and increased the gabapentin. It has been pretty effective.
- Thu Dec 14, 2023 3:59 am
- Forum: Just Joined?
- Topic: Possible link between RLS and CVI
- Replies: 5
- Views: 14206
Re: Possible link between RLS and CVI
And yet - - there is always the chance that for some of us, there is a link. It is tempting to pooh-pooh it all, but I can't quite. viewtopic.php?p=105214#p105214
- Thu Dec 14, 2023 3:54 am
- Forum: Physical Treatments
- Topic: Cured
- Replies: 3
- Views: 12711
Re: Cured
At age 51 my RLS is cured. I had a stone stuck in my billiary system-distal common bile duct. MRCP showed dilation in the billiary system. I had an ERCP to remove the stone. I can drink coffee and eat chocolate with zero RLS symptoms. As far as I can tell a stone can disrupt digestion which is why ...
- Fri Oct 06, 2023 3:19 am
- Forum: Just Joined?
- Topic: Thank you for the welcome
- Replies: 1
- Views: 10254
Re: Thank you for the welcome
So sorry your post wasn't answered earlier by anyone. The fexofenadine is a second-gen antihistamine, so it shouldn't make your WED/RLS worse. 35 is seriously low. As long as you avoid dopamine meds (levo-carbidopa/Sinemet, or dopamine agonists like pramipexol and ropinirole) you might find relief s...
- Fri Oct 06, 2023 3:13 am
- Forum: Just Joined?
- Topic: 1st post after 24 years of RLS
- Replies: 200
- Views: 101751
Re: 1st post after 24 years of RLS
Icantsleep your story is such a hopeful one
- Fri Oct 06, 2023 3:10 am
- Forum: Just Joined?
- Topic: Ferritin in the brain
- Replies: 2
- Views: 10717
Re: Ferritin in the brain
80 is pretty low. People with WED/RLS are advised to try to get it up to 100My blood ferritin is around 80.
- Sun Oct 01, 2023 9:51 pm
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 412744
Re: Published Research - General Sleep and RLS (WED)
The glymphatic system is involved in WED. Ya, that's what I said, too: The What? The article about it being involved in WED: https://academic.oup.com/sleep/advance-article-abstract/doi/10.1093/sleep/zsad239/7272665?login=false An article that explains what it is (too bad we have to buy these but at ...
- Sun Oct 01, 2023 9:40 pm
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 412744
Re: Published Research - General Sleep and RLS (WED)
https://n.neurology.org/content/82/21/e185 "The investigators showed that reduced leg oxygen levels were strongly associated with RLS symptom severity in untreated patients. They also showed that leg oxygen levels partially improved after dopamine medicine was restarted.3 Reduced leg oxygen levels ...
- Sun Oct 01, 2023 9:28 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Got my Iron Results!!
- Replies: 6
- Views: 11197
Re: Got my Iron Results!!
Hi Stainless, a year late. I don't come here much anymore. I only did the one iron treatment, then covid got in the way, then I signed up for the Gupta Program and the Dynamic Neural Retraining Program (both take advantage of neuroplasticity to re-wire the limbic system and related parts of the brai...
- Mon May 08, 2023 3:06 am
- Forum: Just Joined?
- Topic: New here
- Replies: 6
- Views: 11688
Re: New here
Betty said "The fact that your doctor has not checked your Ferritin makes me wonder how experienced he is in the treatment of rls. Most of us find we need to be proactive in our treatment and educate our doctors." This is so true! Another sign that he doesn't know how to treat WED/RLS is that he let...
- Sun Feb 12, 2023 4:43 am
- Forum: Just Joined?
- Topic: Decades of RLS getting worse
- Replies: 17
- Views: 21595
Re: Decades of RLS getting worse
What benefits might a drug holiday bring? I understand the "costs": pain getting off oxy, risking further augmentation, pharmacy/doc hassles, but unclear about the benefit it might bring. Hi sorry I'm so late getting back. The benefit would be to eliminate any dependence you've developed for the me...
- Sun Jan 01, 2023 11:04 pm
- Forum: Augmentation
- Topic: new member - transitioning from ropinirole to gabapentin
- Replies: 74
- Views: 80751
Re: new member - transitioning from ropinirole to gabapentin
@bhud that's great to hear!