Restless Legs Syndrome (RLS) Discussion Board

Monolight1 wrote: ↑

Tue Jun 11, 2024 9:48 pm

For context, I loveeee cats, so I've picked up the first book I saw in the library called "She and Her Cat" it's a jappanese translation, but so far I'm so into it, it gives me the comfort I need in the most

oh gee! I watched the anime of that. I loved it! I wanted more, it was too short.

stainless wrote: A review coauthored by a doctor I had worked with in the past closed with "TOMAC is certainly not intended to eliminate the need for important pharmacological treatments for RLS including alpha-2-delta ligands, IV iron, and opioids."

Important. Thank you for noting that.

nice summary! thanks

Good morning, Wondering if anyone has RLS and Parkinson's and how they are being managed with medications. Concerned about use of Sinemet along with Neupro patch, particularly for augmentation. Husband has been on Sinemet 25 mg three times a day since October 2022, Rotigotine patch 4mg nightly for ...

Can anyone address the frustrating association between RLS and Asperger's, myoclonus, hypnic jerks, benign fasciculation syndrome, insomnia, brain vibrations? While I have severe RLS - - - - my son, who is 43 ---- has suffered for 2 years with a variety of symptoms. It started with muscle twitches ...

tagalongbuddy wrote: ↑

Tue Aug 29, 2023 7:27 am

For about two years now, the neurologist slowly took me off the DA and increased the gabapentin. It has been pretty effective.

I like this news. Too often I assume it can't be done. Are you on nothing but gabapentin now?

And yet - - there is always the chance that for some of us, there is a link. It is tempting to pooh-pooh it all, but I can't quite. viewtopic.php?p=105214#p105214

At age 51 my RLS is cured. I had a stone stuck in my billiary system-distal common bile duct. MRCP showed dilation in the billiary system. I had an ERCP to remove the stone. I can drink coffee and eat chocolate with zero RLS symptoms. As far as I can tell a stone can disrupt digestion which is why ...

So sorry your post wasn't answered earlier by anyone. The fexofenadine is a second-gen antihistamine, so it shouldn't make your WED/RLS worse. 35 is seriously low. As long as you avoid dopamine meds (levo-carbidopa/Sinemet, or dopamine agonists like pramipexol and ropinirole) you might find relief s...

Icantsleep your story is such a hopeful one

My blood ferritin is around 80.

80 is pretty low. People with WED/RLS are advised to try to get it up to 100

The glymphatic system is involved in WED. Ya, that's what I said, too: The What? The article about it being involved in WED: https://academic.oup.com/sleep/advance-article-abstract/doi/10.1093/sleep/zsad239/7272665?login=false An article that explains what it is (too bad we have to buy these but at ...

https://n.neurology.org/content/82/21/e185 "The investigators showed that reduced leg oxygen levels were strongly associated with RLS symptom severity in untreated patients. They also showed that leg oxygen levels partially improved after dopamine medicine was restarted.3 Reduced leg oxygen levels ...

Hi Stainless, a year late. I don't come here much anymore. I only did the one iron treatment, then covid got in the way, then I signed up for the Gupta Program and the Dynamic Neural Retraining Program (both take advantage of neuroplasticity to re-wire the limbic system and related parts of the brai...

Betty said "The fact that your doctor has not checked your Ferritin makes me wonder how experienced he is in the treatment of rls. Most of us find we need to be proactive in our treatment and educate our doctors." This is so true! Another sign that he doesn't know how to treat WED/RLS is that he let...