Search found 4124 matches

by badnights
Sun Sep 16, 2018 6:49 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Mirapex while 6 months pregnant
Replies: 2
Views: 71

Re: Mirapex while 6 months pregnant

omg I just wrote a long reply and then closed my browser window by mistake. The condensed version is that the Foundation's brochure "Pregnancy and RLS" is near teh bottom of the page https://www.rls.org/member-portal/publications under "information for healthcare providers" and r...
by badnights
Sun Sep 16, 2018 4:54 am
Forum: General Topics: RLS/WED
Topic: RLS or something else? Part 2
Replies: 84
Views: 13759

Re: RLS or something else? Part 2

SnappyK I'm sorry to hear things have worsened, but I'm glad you;ve found another culprit. I can't believe it;s been a year either ... I haven't done a thing except survive from day to day. Sheesh.
by badnights
Sun Sep 16, 2018 4:50 am
Forum: General Topics: RLS/WED
Topic: How long have you had RLS/WED
Replies: 8
Views: 124

Re: How long have you had RLS/WED

I was a kid when it started - I feel like I've always had it - but it was only intermittently a problem. Every now and then I would think "wouldn't it be horrible to have this all the time, or to have it in my arms" only I didn't think that in words, and my mind skittered away from the tho...
by badnights
Sun Sep 16, 2018 4:02 am
Forum: General Topics: RLS/WED
Topic: bandage & socks for RLS
Replies: 8
Views: 174

Re: bandage & socks for RLS

I think elastic bandages (ace bandages) can be a good tool for many of us. I found they subdued the sensations but not usually enough, and sometimes they seemed to make things worse. Also what a pain to put on and off. I tried the support stockings, but I can't have my toes restricted. I found a pai...
by badnights
Tue Sep 04, 2018 10:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Methylcobalamin b12 drops
Replies: 2
Views: 338

Re: Methylcobalamin b12 drops

I took mehtylcobalamin for a long time with no obvious effect. But I was taking a sublingual tablet, not drop, in the morning, not evening. I forget the doseage.
by badnights
Tue Aug 07, 2018 2:48 am
Forum: Prescription Medications
Topic: no prescription for ropinirol
Replies: 6
Views: 391

Re: no prescription for ropinirol

I would take it as a good sign that she won;t raise the dose. I would also describe to her why you feel you need a dose increase - what is happening to you? Does the current dose not cover the symptoms? Have the symptoms been getting worse? Your symptoms might already be augmented by the ropinirole.
by badnights
Tue Aug 07, 2018 2:17 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 2064

Re: Prescription Refills

That;s why the advocacy work the Foundation is doing (and individuals too ) is so important. Hopefully the backlash will stop before it gets even more unreasonable.
by badnights
Tue Aug 07, 2018 2:00 am
Forum: Prescription Medications
Topic: How long does it take for Lyrica to start working?
Replies: 27
Views: 923

Re: How long does it take for Lyrica to start working?

I was taking 1800 mg gabapentin and 150 mg codeine and it wasn't controlling my symptoms. The recommended daily dose of gabapentin for RLS/WED is 1800 mg according to Lee et al 2013 (the little Blue book, 2nd edition) or 3600 mg according to the RLS Foundation's medical bulletin of 2017. So you have...
by badnights
Tue Aug 07, 2018 1:35 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 3693

Re: Changing my diet may have solved my RLS

I wonder why my PC insists that the best way to absorb the most iron is to take it every other day. Are their different expert opinions on this? Yes, there are, of course. Your PC is going by the theory I mentioned earlier, If iron isn't absorbed unless your blood levels are low, how does taking ir...
by badnights
Tue Aug 07, 2018 1:24 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 7
Views: 463

Re: Histamine/Tyramine Food Triggers

I don't know if I'm relieved or not! It's nice to know that you figured it out without doing long-term analyses of hundreds of different foods. But it's disappointing, in a way, to know that I don't have such immediate reactions to any food, and will likely therefore never figure out if any other fo...
by badnights
Tue Aug 07, 2018 1:14 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 16
Views: 572

Re: best iron suppliment to increase ferritin levels?

Also, there's no need to take it 3 times a day,. You can still take 6 times as much, but take it all at once. There's some indication that it will be absorbed better if you don't maintain levels by taking it all day long, rather let them drop over the course of the day and take once, at bedtime. EDI...
by badnights
Mon Aug 06, 2018 3:05 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron has helped
Replies: 11
Views: 807

Re: Iron has helped

Ferrous sulfate 3x 65mg elemental iron equivalent. Take three pills at once an hour or so before bedtime with 500 mg vitamin C. Repeated experiments both intentional and unintentional over the years have shown me that reducing this dose - even by taking the third pill only on alternate days - result...
by badnights
Mon Aug 06, 2018 2:44 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 27
Views: 1425

Re: Introducing myself

As the washout progresses, am I correct in assuming the level of oxycodone will gradually reduce? And what sort of markers tell you it's time to stop? Is it all symptom-based? It's hard to say, but hopefully yes. If you're augmented, then once the augmentation and the even-worse withdrawal are over...
by badnights
Sat Aug 04, 2018 7:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 7
Views: 463

Re: Histamine/Tyramine Food Triggers

pamhb when you have a reaction to a certain food, does it occur within a few hours, or same day? Is it that obvious? Or is it more of a statistical thing, with bad WED/RLS symptoms happening more often when you eat it than when you do not? I ask because I haven't identified ANY dietary triggers, eve...
by badnights
Sat Aug 04, 2018 4:09 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Super Foods for RLS
Replies: 1
Views: 265

Re: Super Foods for RLS

thank you for this:). When you say " may provoke a histamine reaction" do you mean you regard it as a superfood despite its potential for adverse effects related to histamine, becuase the iron-dopamine-bloodflow benefits are so good?

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