Search found 5039 matches

by badnights
Thu Apr 22, 2021 5:39 am
Forum: Augmentation
Topic: Augmentation or weak Kratom??
Replies: 20
Views: 1388

Re: Augmentation or weak Kratom??

Sorry Ken I had forgotten about that.

I hear you about the unpredictability of it. I can almost never figure out for sure why it's worse some nights.
by badnights
Thu Apr 22, 2021 5:35 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 43
Views: 2502

Re: Spinal Stimulator

I don't have a spinal injury.
I didn't mean a traumatic blunt-force type of injury. The osteoarthritis is a type of injury. I'm so glad it's effective for you, hopefully there will be way more good nights than bad.
by badnights
Thu Apr 22, 2021 5:20 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 37
Views: 1479

Re: going "cold turkey"

I wish I had checked in sooner! I hope this information is still useful although you've already talked to the neurology office. The first 2 days on pram. I was totally free of symptoms all day and all night. The most sleep I've had in months I might add. Well, then came day 3 or 4, my legs started f...
by badnights
Thu Apr 22, 2021 4:48 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 144
Views: 10411

Re: 1st post after 24 years of RLS

. ...unbeknownst to me I could have gotten in as early as January but I'll live in the present and not look to lay blame . An admirable stance, to be so equanimical about it. Looking forward. You will probably need to stay completely away form DAs for at least a year. \I'm glad you're - oops - did y...
by badnights
Thu Apr 22, 2021 4:42 am
Forum: Just Joined?
Topic: Venous Insufficiency
Replies: 2
Views: 34

Re: Venous Insufficiency

I've made a number of past posts on this topic. Search "Varicose" as well as "venous insufficiency" for wider results. I think what it comes down to is, there is a subset of people with WED/RLS whose WED/RLS symptoms come from venous insufficiency, and these symptoms will go away after the surgery. ...
by badnights
Thu Apr 22, 2021 4:34 am
Forum: Just Joined?
Topic: RLS behind knee caps New to forum
Replies: 4
Views: 81

Re: RLS behind knee caps New to forum

I get my WED/RLS sensations mostly in/near my joints. My knee sensations are kind of behind the upper part of the patella, somewhere in there - - the lowermost part of the thigh bone too... Anyway,as Holland said, variations are common, and the fact that pramipexole helped you suggests the diagnosis...
by badnights
Mon Apr 19, 2021 7:58 am
Forum: Augmentation
Topic: new member - transitioning from ropinirole to gabapentin
Replies: 49
Views: 4915

Re: new member - transitioning from ropinirole to gabapentin

Getting off of ropinirole will consume all your time and energy for a number of days. It is best to clear your schedule, prepare some meals ahead, and expect nothing of yourself during the time your body is getting used to having no ropinirole fed to it. It can be a brutal adjustment - basically, go...
by badnights
Mon Apr 19, 2021 7:52 am
Forum: Augmentation
Topic: Augmentation or weak Kratom??
Replies: 20
Views: 1388

Re: Augmentation or weak Kratom??

btw I do not have a thyroid and been taking levothyroxine for 30 years. I get regular blood tests for to determine if adjustment in med. is needed. I am wondering if this medical condition has any bearing on RLS. Doc also raised my dosage on the levothyroxine this time around. I have heard that hyp...
by badnights
Sat Apr 17, 2021 8:16 am
Forum: Augmentation
Topic: Augmentation, Low BP, and chronic heart failure
Replies: 2
Views: 51

u

A couple of years ago I managed to reduce my pramipexole to .125, butt it was a hellish experience and ultimately doctor Trotti of EMORY sleep center advised staying on that small amount. Fast forward to today and I have augmentation worse than ever. So I'm going to have to get off it. I've since m...
by badnights
Sat Apr 17, 2021 7:41 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 43
Views: 2502

Re: Spinal Stimulator

wow. Wonder if it would be effective for any of us who don't have a known spinal injury.
by badnights
Sat Apr 17, 2021 5:58 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 10
Views: 1397

Re: Histamine/Tyramine Food Triggers

yawny I was sure you had mentioned the capsules being a trigger before. I searched but couldn't find it. Maybe it was someone else.
by badnights
Sat Apr 17, 2021 5:56 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 10
Views: 1397

Re: Histamine/Tyramine Food Triggers

If you needed to actually change the gut biome to see changes - for example, you, Beth - it would take months. If you needed to change a histamine reaction, you would likely tell immediately. Both related to food, but very different processes and reasons. True. I think I was saying that yawny & pam...
by badnights
Sat Apr 17, 2021 5:48 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 144
Views: 10411

Re: 1st post after 24 years of RLS

There are a lot of opioids out there. It is quite possible that one of them will have an acceptable side-effect profile in you. But 6 months is a long wait and the experimentation will make it even longer.
by badnights
Thu Apr 15, 2021 6:10 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 37
Views: 1479

Re: going "cold turkey"

hi retiredfg5 did you try re-starting at 0.125? Maybe it's not too late to try dropping it? Cuz 0.25 is the max you should take. You have no room to increase it when you begin to augment again. You should, in fact, not increase it, but immediately stop the pramipexole when the augmentation returns. ...
by badnights
Sat Mar 27, 2021 7:01 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What's the deal with magnesium?
Replies: 11
Views: 1128

Re: What's the deal with magnesium?

I was reading the current clinical trials for RLS/WED and one of the ongoing trials was for testing Magnesium. They were using Mg Citrate at 200 mgs a day. I realized that I was not getting the RDA for Magnesium so I upped my intake. I think it helped my RLS. I don't know the results of the trial/s...