Restless Legs Syndrome (RLS) Discussion Board

Sorry Ken I had forgotten about that.

I hear you about the unpredictability of it. I can almost never figure out for sure why it's worse some nights.

I don't have a spinal injury.

I didn't mean a traumatic blunt-force type of injury. The osteoarthritis is a type of injury. I'm so glad it's effective for you, hopefully there will be way more good nights than bad.

I wish I had checked in sooner! I hope this information is still useful although you've already talked to the neurology office. The first 2 days on pram. I was totally free of symptoms all day and all night. The most sleep I've had in months I might add. Well, then came day 3 or 4, my legs started f...

. ...unbeknownst to me I could have gotten in as early as January but I'll live in the present and not look to lay blame . An admirable stance, to be so equanimical about it. Looking forward. You will probably need to stay completely away form DAs for at least a year. \I'm glad you're - oops - did y...

I've made a number of past posts on this topic. Search "Varicose" as well as "venous insufficiency" for wider results. I think what it comes down to is, there is a subset of people with WED/RLS whose WED/RLS symptoms come from venous insufficiency, and these symptoms will go away after the surgery. ...

I get my WED/RLS sensations mostly in/near my joints. My knee sensations are kind of behind the upper part of the patella, somewhere in there - - the lowermost part of the thigh bone too... Anyway,as Holland said, variations are common, and the fact that pramipexole helped you suggests the diagnosis...

Getting off of ropinirole will consume all your time and energy for a number of days. It is best to clear your schedule, prepare some meals ahead, and expect nothing of yourself during the time your body is getting used to having no ropinirole fed to it. It can be a brutal adjustment - basically, go...

btw I do not have a thyroid and been taking levothyroxine for 30 years. I get regular blood tests for to determine if adjustment in med. is needed. I am wondering if this medical condition has any bearing on RLS. Doc also raised my dosage on the levothyroxine this time around. I have heard that hyp...

A couple of years ago I managed to reduce my pramipexole to .125, butt it was a hellish experience and ultimately doctor Trotti of EMORY sleep center advised staying on that small amount. Fast forward to today and I have augmentation worse than ever. So I'm going to have to get off it. I've since m...

wow. Wonder if it would be effective for any of us who don't have a known spinal injury.

yawny I was sure you had mentioned the capsules being a trigger before. I searched but couldn't find it. Maybe it was someone else.

If you needed to actually change the gut biome to see changes - for example, you, Beth - it would take months. If you needed to change a histamine reaction, you would likely tell immediately. Both related to food, but very different processes and reasons. True. I think I was saying that yawny & pam...

There are a lot of opioids out there. It is quite possible that one of them will have an acceptable side-effect profile in you. But 6 months is a long wait and the experimentation will make it even longer.

hi retiredfg5 did you try re-starting at 0.125? Maybe it's not too late to try dropping it? Cuz 0.25 is the max you should take. You have no room to increase it when you begin to augment again. You should, in fact, not increase it, but immediately stop the pramipexole when the augmentation returns. ...

I was reading the current clinical trials for RLS/WED and one of the ongoing trials was for testing Magnesium. They were using Mg Citrate at 200 mgs a day. I realized that I was not getting the RDA for Magnesium so I upped my intake. I think it helped my RLS. I don't know the results of the trial/s...