Search found 4168 matches

by badnights
Sun Oct 21, 2018 6:27 am
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 365

Re: For Anyone Who Thinks RLS is a Joke

It was a nice thought...... maybe next time.
by badnights
Sun Oct 21, 2018 6:26 am
Forum: General Topics: RLS/WED
Topic: Help Please
Replies: 15
Views: 944

Re: Help Please

Hi Xwelcome, you sound like you're suffering tremendously. It's so hard to go through the torture of WED/RLS let alone other medical issues on top of it. You really need a doctor who understands RLS/WED. Are you anywhere near one of the RLS Quality Care Centers? At those places you can be sure of be...
by badnights
Sun Oct 21, 2018 5:36 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 13
Views: 152

Re: Social Security - US

This is our life. We must embrace what we have. I like that. I can't quite do it, but I like it. Embracing what we have includes embracing the fact that I don't really believe I'm dysfunctional, that I can't quite accept that I have a chronic illness; means embracing my thoughts that I can recover,...
by badnights
Sat Oct 20, 2018 2:08 am
Forum: Prescription Medications
Topic: methadone not working
Replies: 9
Views: 160

Re: methadone not working

Thanks QyX. I'm on 9 mg of hydromorphone - 10 or 11 some nights - plus small doses of Lyrica, zopiclone and trazodone. Your comments made me wonder if I would have an easier time stopping if I first switched to smaller doses of two opioids, but probably it wouldn't make a difference. I really wanted...
by badnights
Fri Oct 19, 2018 11:08 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 31
Views: 404

Re: Back Surgery and RLS plus spasms

Hope it works out, Deb. It would be nice to get off meds!
by badnights
Fri Oct 19, 2018 10:59 pm
Forum: Just Joined?
Topic: New member :)
Replies: 3
Views: 102

Re: New member :)

Low ferritin levels are also associated with more severe WED/RLS symptoms. Ferritin is a protein that stores iron in body tissues. It is measured in a blood sample but is not always part of a standard iron workup and might have to be asked for specially. You can find more information on the relation...
by badnights
Wed Oct 17, 2018 5:04 am
Forum: Prescription Medications
Topic: methadone not working
Replies: 9
Views: 160

Re: methadone not working

I take a combination of three opioids (Hydromorphone, Oxycodone and Morphine) instead of a higher dose from one single opioid. In my case this helps to keep the tolerance under control and in that combination opioids are still effective after 6 years of taking them. How much of each do you take? Do...
by badnights
Wed Oct 17, 2018 4:55 am
Forum: Just Joined?
Topic: Specialist to see?
Replies: 5
Views: 110

Re: Specialist to see?

There's really no hard and fast rule about the type of specialist. Some GPs have more experience trreating RLS/WED than some movement disorder specialists! But generally there are three types of specialist who end up becoming proficient in WED/RLS treatment - neurologists, pulmonary specialists and ...
by badnights
Wed Oct 17, 2018 4:39 am
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 26
Views: 415

Welcome to DianeB

Welcome today to DianeB who has had RLS/WED for 35 years without knowing it had a name for most of that time. Increasing severity is causing DianeB to consider taking meds. DianeB, I'm glad you're educating yourself first. There are a number of things to try before trying meds (which I wish I had kn...
by badnights
Sat Oct 13, 2018 6:17 pm
Forum: Physical Treatments
Topic: Massager
Replies: 5
Views: 156

Re: Massager

I don't think one of those foot-calf massage machines would work for me, either. The constriction might drive me nuts, while the massage would not be hitting my key points (which tend to be front of ankles, front of thigh immediately above knees). Despite my instinctive dislike of the massager, I ha...
by badnights
Sat Oct 13, 2018 6:06 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 13
Views: 152

Re: Social Security - US

The worst part is not knowing what it is.
by badnights
Sat Oct 13, 2018 6:04 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 31
Views: 404

Re: Back Surgery and RLS plus spasms

can't hurt to see if a quarter of a tab will work. Wouldn't that be amazing?
by badnights
Fri Oct 12, 2018 5:48 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 13
Views: 152

Re: Social Security - US

Oh Ann. How depressing it must be for you.
Start the process now, while you have a bit of energy.
by badnights
Fri Oct 12, 2018 5:43 am
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 365

Re: For Anyone Who Thinks RLS is a Joke

Maybe I should just be me and go for a week without sleep and pass out and then repeat. Maybe I was meant to be like that. I am going in a few days to get my new prescription for Suboxone and I think that after that I will wean myself off of it (because of the dependence on Suboxone I can't just qu...
by badnights
Fri Oct 12, 2018 5:20 am
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 21
Views: 2606

Re: Sleeping Arrangements

How come you say that your husband has RLS/WED? Was he diagnosed? From your description, he doesn;t seem to have the disease. If he did, he would be awake and suffering from nasty sensations, including an urge to move. These sensations are impossible to sleep through, and people with WED/RLS are amo...

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