Search found 27 matches

by Cinnamon193
Wed Jul 15, 2009 4:35 am
Forum: Just Joined?
Topic: Yet another newbie unlurked/ my story/ need help!
Replies: 23
Views: 3304

Not RLS....

Curious indeed.... I had an apt with a vertigo neuro (neuro #2), who IMMEDIATELY got me into a neuromuscular neurologist (neuro #3). This newest neuro did a whole host of tests and exams, and concluded I have a classic case of small fiber neuropathy. Neuro #1's diagnosis of RLS is out the door. I gu...
by Cinnamon193
Sun Jun 28, 2009 7:32 am
Forum: Just Joined?
Topic: Hello from Canada
Replies: 5
Views: 739

Hi gbeamish,
Welcome from another fellow Canucker (Alberta). I'm new here too, but everyone has been immensely helpful and patient with all my newbie questions. This place has saved my sanity on more than one occasion already.
I hope that you'll get the answers you need to beat the evil rls beast :)
by Cinnamon193
Sat Jun 27, 2009 4:57 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

FWIW, Dr. B's book suggests about 2700 mg. max daily gabapentin for rls. Out of curiosity, have you heard/read what happens at greater than the recommended daily max? My doc prescribed no more than 3000mg, but I've yet to hear of an overdose or other negative reaction to a high dose? (Not that I'd ...
by Cinnamon193
Fri Jun 26, 2009 10:06 pm
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Just an update...
No more DAs, they just don't seem to do any good for me.
Still hanging in there with the neurontin and morphine, until I can get in to see a doctor.... which might be awhile yet, since I'm non-emergency.
Hope everyone else is doing ok out there.
by Cinnamon193
Mon Jun 22, 2009 12:42 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Zach wrote:What you're describing with the Neurontin sounds like old fashioned tolerance.

That's what I initially thought. Thanks for backing me up on this one. lol Now to persuade my bf that dropping all my meds is not in my best interest....
by Cinnamon193
Mon Jun 22, 2009 12:41 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

if I were you i would do alot of research on neruotin, I "think" that is pretty normal that you have to continue to increase neuortin. google neurotin and see about how high you can go with this drug. Thanks for the link, I'll check it out. My doc said 3000mg was the max dose, but I've he...
by Cinnamon193
Mon Jun 22, 2009 12:37 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

You may want to try Lyrica. It works in much the same way as Neurontin, but doesn't seem to have the issues with needing to increase the dose all the time. I was on lyrica for a short period when I had shingles and it worked well for that. But switched to neurontin once I discovered my drug plan wo...
by Cinnamon193
Sun Jun 21, 2009 8:58 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Maybe I don't get the urge to move/walk because my body knows I hurt too darned much to move! lol I'm too young to be an old lady. lol Yes, I have to punch my legs to get them to stop.... feeling whatever that feeling is and to stop the pain. I guess sort of like pain? This is how the front of my le...
by Cinnamon193
Sun Jun 21, 2009 8:35 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Can you augment to neurontin?

Just curious - if you can augment to DAs, can you augment to neurontin too? My bf is convinced I need to drop neurontin because it's making me worse.... Of course, he's observed that I didn't improve at all on all 3 of the DAs I've tried, so now he thinks I should ditch my neurontin too. The problem...
by Cinnamon193
Sun Jun 21, 2009 8:17 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

oh, and one more thing, of all the meds i have used over the years, the ones that worked for me, worked almost right away, the ones that did not were not worth the time I put into them (when I say "worked" , they provided several months of relief before a change was needed) Thanks, I was ...
by Cinnamon193
Sun Jun 21, 2009 8:15 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Well, if Morphine just takes the edge off, I would be curious to know what dosage you were at, how many times a day. ... If you haven't been on controlled release Medications before, I would go back to your doctor and discuss it with him.. Take the Algorithm with you in any case, and refer to it wh...
by Cinnamon193
Sun Jun 21, 2009 8:03 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Can you switch to a different opiate besides morphine? .... It IS possible to get relief without feeling stoned all the time. Morphine is the strongest opioid I've tried, and I'm at a pretty low dose. To be honest, I'm scared to death of becoming addicted. But the fear of these derned legs is slowl...
by Cinnamon193
Sun Jun 21, 2009 7:57 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

But, that's not fair to ourselves, is it? It isn't how much we have or the type we have....it's that we have it, whatever it is, and that whatever is it is affecting our lives. Isn't that the truth! Thanks for your reply. I think comparing is my way of keeping it real and... coping, for lack of a b...
by Cinnamon193
Thu Jun 18, 2009 5:52 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

Oh Ann.... that's terrible. Hearing stories like yours really makes me feel sheepish for complaining about my issues. I can't believe you wake up that many times during the night. I feel so badly for you. (And your partner too!) I'm going to take your advice and stop the requip now. That just makes ...
by Cinnamon193
Thu Jun 18, 2009 2:11 am
Forum: Prescription Medications
Topic: Am I crazy? Requip making me feel worse....
Replies: 46
Views: 5380

BTW, your doctor sees people with RLS all the time, being that about 8 percent of the population has it. lol True enough. Regarding the Requip - the doctor said to give it at least a couple of weeks yet. omg I sure hope I don't get permanent augmented rls like you decscribe. It sounds horrible. I j...