Search found 29 matches

by Jeff
Sat Jul 18, 2009 8:30 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Even after the first dose, I could tell it wasnt working.. One symptom of too much dopamine in the brain is twitching uncontrollably.. The Sinemet only made that worse so it makes me think my dopamine levels are fine.. Im no Dr. but thats the way I feel about it.. I'll wait and see what the blood te...
by Jeff
Sat Jul 18, 2009 5:34 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

I dont know that this Dr. knows whats goin on.. She acted surprised at my appt. the other day that the Sinemet made it worse and said it should make RLS better.. Now she doesnt think I have it but she has ordered an MRI on my lower back and more blood work as well as put me on Klonopin .5mg. I took ...
by Jeff
Fri Jun 26, 2009 10:25 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Good point. I planned on showing the Neuro that algorithm next time I go.. Does anyone of you experience electricity type feelings in the leg muscles.. Something sort of like a twitch but it feels like electrical volts shooting through my calf muscles.. Does that have anything to do with RLS? I mean...
by Jeff
Fri Jun 26, 2009 6:20 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Well it was one of those "Hi, How are yas?".. He said my sleep study looked fine and that he was going to have me start taking my lisinopril twice a day instead of once and to come back in 3 months.. I'll call the Neuro soon regarding my legs but for now Im trying to just put up with it.. ...
by Jeff
Fri Jun 26, 2009 7:18 am
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Just an update. After a week of double-dosing on the Sinemet, Ive experienced worse problems then when Im not on it so I just quit taking it.. My ferritin levels came back at 242 which they said was good.. My family Dr. has me back on Lasix for the unexplained fluid retention in my feet, ankles, and...
by Jeff
Fri Jun 19, 2009 11:09 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

I'm definately not trying to be a diffcult patient at all. I'm an hour late on tonight's first dose right now because I dont knwo what I should do. My heart was beating kind of weird last night and I dont know if it was that medicine or what. I didnt have time to call the Neuro today (They left that...
by Jeff
Fri Jun 19, 2009 10:52 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Well, the Neuro's office called and she wants me to double the dose of Sinemet Im already on..
Should I follow that or will it make matters worse?
by Jeff
Fri Jun 19, 2009 4:24 am
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

I've only been to the Neuro once since joining this forum but next time I go I'll mention something to help me sleep. I'm starting to think maybe this is Refractory RLS since Ive had no success with the Requip or the Sinemet.. I intentionally missed my 10 o clock dose of the Sinemet tonight just to ...
by Jeff
Thu Jun 18, 2009 2:18 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

They've ran every other test except an MRI. I dont think I could be still long enough for one of them anyways. I'm trying to stay openminded about this but it's getting to the point to where I want something that's going to fix the problem now and no mumbo jumbo.. It's very frustrating that for the ...
by Jeff
Thu Jun 18, 2009 1:06 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

That's a good suggestion mack. I'll check that out.. At this point, I'll take any suggestion and any peice of advice. I'm not gonna just pass it up because like I said, I want my sleep and my energy back.. Thanks guys for being so helpful and understanding. Wish I had a few select family members tha...
by Jeff
Wed Jun 17, 2009 10:47 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Im kind of limited as to where I can go. Im on HIP which is Healthy Indiana Plan, a low-cost insurance for people with low income and I can only see doctors who are accepting it and not many are.. Neurontin did nothing for my symptoms at all. Quite honestly, I dont know why I kept taking it.. I've t...
by Jeff
Wed Jun 17, 2009 8:47 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Makes perfect since but arent there other things that cause RLS besides low dopamine levels in the brain? I think they've ruled out pretty much everything else.. I'm almost to the point of complete anger and wanting to give up.. I'm tired of being weak during the day and restless at night and I just...
by Jeff
Wed Jun 17, 2009 12:08 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Well, now Im confused.. I got a response from Dr. B this morning and he said that if the Sinemet wasnt working (which should start immediately he said) I either didnt have RLS or the dosage needed to be increased which he said would lead to more trouble with long term use.. I definately meet all the...
by Jeff
Wed Jun 17, 2009 5:22 am
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

Well Ive taken both doses of the Sinemet tonight and I dont really feel any different except being really tired..
And the dosage was 25-100..
Wonder if I should just stop it suddenly and call the doctor or give it another day?
by Jeff
Tue Jun 16, 2009 11:15 pm
Forum: Just Joined?
Topic: Hello from IN!
Replies: 63
Views: 9690

I'm on it.
Thank you!