Restless Legs Syndrome (RLS) Discussion Board

wow.... makes me glad I got off those drugs when I did. I don't have enough time in the day for that type of activity!

Psychick- My symptoms are always worse in the summer and in hot weather. My theory has always been that since we know heat can slow the transmission of signals along brain synapses AND since RLS has a lot to do with neurotransmitters and the transmission of them, I always figured that heat might als...

Glad you found a way to save some money, Jitter. Just as an FYI- Barr labs has won some crucial patent law cases lately against Boehringer Ingelheim. Which means a generic may be coming sooner then we think!



http://www.news-medical.net/?id=39551

Becat- I'm glad you posted this-- I hadn't seen it yet. I was wondering when someone was going to start looking at not just the immediate success rate but how many patients successfully stay on these drugs. If the rate of resistance approaches what I've seen in parkinson's patients-- one should expe...

GG- because I'm a guy, you just know that rather then send you comforting words like Ann-- I want to solve this for you. Depending on your insurance, or lack thereof, is there a way for you to get to a pain clinic? Can a neighbor drive you? You sound like the perfect candidate for steroid injections...

Very interesting!! Now I want someone to do some research about what level of ferritin we need to have to make up for this deficiency... or a study showing how much iron we need to take? My levels have always been within range....

Ann- I think you bring up an important point-- to me, more important than your doctor's specialty is their ability to be flexible and have an open mind when it comes to treating disease. Your experience with the sleep clinic and their love-affair with sleep apnea reminded me of my first sleep clinic...

nschirle- when you take neurontin, you should have "some" relief of your symptoms at around 1.5-2.5 hrs after you take the dose. The pharmacist who told you to wait 2-3 weeks to see benefit should know that drug benefits don't turn on suddenly after 2-3 weeks of taking them. It may take a ...

Estelita- The most common signs and symptoms of physical withdrawal I've seen have been temperature regulation issues (feeling cold then hot then cold), sweating, tremors, nausea, yawning, runny nose, watery eyes. The all over pain you're describing usually happens at much higher doses of narcotics-...

For those of you on Requip-- The U.S. Food and Drug Administration has approved the first generic versions of Requip (ropinirole hydrochloride) tablets for the treatment of moderate to severe Restless Legs Syndrome. Ropinirole hydrochloride tablets have been approved in the following dosages: 0.25 m...

Sorry you're going thru this now, Ann. I'm not sure if any of us can accurately predict why or when our disease state decides to progress. To be honest with you, I've made myself crazy altering every single thing in my life to get my symptoms under control and nothing has worked. I have only succeed...

Gill- RLS shouldn't cause bad circulation, at least that I'm aware of. It can cause weird sensations/pains/need to move, etc-- but I've never heard of actual lack of blood flow. You may have RLS, but your symptoms sound suspiciously like peripheral vascular disease. Have you been tested for this? Do...

Waterloo-- If your legs are cold to the touch (as opposed to you feeling like they are but they aren't) - you should get the blood flow in your legs checked out via ultrasound. Peripheral vascular disease can feel very, very similar to RLS but is a more serious condition. As opposed to RLS, PVD usua...

My dad has RLS (which he refuses to take anything for) and my mom's sister has severe RLS. I think I've read that successive generations can show RLS at younger ages but I've often wondered if more then one relative with RLS correlates with worse RLS? I'm now on narcotics 24/7/365 and am only 36 yea...

What dose of mirapex are you taking? The sleepiness can sometimes be slightly alleviated by reducing how much you take... Also- are you taking the mirapex throughout the day or only at night? I actually "put up" with my day symptoms so that I can stay awake through my day... not an ideal o...