Restless Legs Syndrome (RLS) Discussion Board

I have been on methadone for about 2 months. It works, but I'm having significant cognitive issues - not on every day, but enough days that I'm concerned. I'm 70 years old and don't want to lose my mind! My doctor is switching me to buprenorphine and also gave me a nausea drug. How many of you have ...

Hello, I have read several posts about people using LDN. Currently I am taking 150-200 mg Tramadol throughout the night and it sort works, each dose for about 90 minutes of relief. I sleep usually 5 am to noon. Now I'm having greater issues. BTW, my flavor features arm involvement sometimes but not ...

Wednesday, February 16, 2022 11:43 PM To: Info Mailbox <info@rls.org> Subject: Today's webinar Hello, I attended the 2-16-22 webinar - sterling information. I was glad that my understanding of treatments is up to date. I learned during the Q&A session that tannins may have an impact on symptoms. Is ...

Have any of you out there tried a device like this? Vibration Plate Exercise Machine - Whole Body Workout Vibration Fitness Platform

Has anyone tried to deal with RLS "old style"? Meaning quitting all medications (especially when augmenting on DAs). That would leave lifestyle adjustments, which for me would mean I guess sleeping 6:00 am to 2:00 pm when natural dopamine is highest. Is that a strategy, or still would leave one slee...

Very helpful information! Thank you!

I've been on (only) Tramadol for about 2 years, 50 mg twice nightly. I think I'm augmenting. Doesn't really work anymore and now my arms are involved. Has this happened to anyone? Can I quit cold turkey? I did that with gabapentin which didn't work at all for me. It was a rough couple days, but I di...

Very interesting thoughts. I have rapid-cycling bipolar, treated since 2007 with a VNS implant. So I do not experience bipolar symptoms really at all anymore. Also, I have sleep apnea, which is anatomical and probably should have been treated earlier in my life. Now resolved. But as bipolar set in i...

My email to the RLS Foundation: Date: 10/8/2020 12:14:57 PM Subject: Today's webinar on comorbidities To: RLS Foundation <info@rls.org> Dear Staff, I jumped into today's webinar a bit late, and realized it was on the subject of light and insomnia instead of comorbidities. The doctor spoke about slee...

Yes - the 90 minutes whenever (with alarm) seems to work to compensate for the really bad periods. Luckily, I'm retired so I can sleep anytime I feel I can.

Another point that most RLS people understand that RLS is not insomnia. People with insomnia struggle to get asleep and/or stay asleep. With RLS, a person might drift off to sleep in minutes (because soooo tired!) Then....up again, up again. That's not to say that some people don't have both insomni...

As a 30-year sufferer, I have to laugh about the advice one sees in literature from all sources. Most "helpful" articles on RLS say to "maintain a regular sleep schedule". Are they joking? None of these writers have actually experienced RLS. That is the oxymoron. One can't. You can't sleep at night,...

Has anyone tried pressure devices used for autism? https://www.got-specialkids.com/Sensory ... p/3982.htm

An interesting article. My father had Parkinson's, and I have RLS. There appears to be similarity.
http://medicalxpress.com/news/2016-11-p ... rains.html

In a way "restless legs syndrome" does not really capture the syndrome. I have RLS in my arms as well. So focusing on one body part seems not to be an answer. Shall I wrap all limbs in a vibrating pad? And what about when this occurs during the day, carry my device with me? Don't know...