Search found 44 matches

by Caitrin
Thu Apr 18, 2019 4:08 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

Ann and Steve, Thank you both for encouraging me to contact a QCC nearest me. I chose Dr. Koo at Yale and spoke with his office who had a record of my call to them last fall but I did not follow through. I may be able to see Dr. Koo in July or August and am on a waiting list for October. I immediate...
by Caitrin
Sun Apr 14, 2019 9:03 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

You were right! In two nights I augmented on the "small" doses of Sinemet and returned to the 2 mg. Neupro patch which after a day or two transition period is working fine. Unfortunately, as I live in New Jersey, Hydrocodone or tramadol cannot be prescribed for RLS symptoms but I do know h...
by Caitrin
Mon Apr 01, 2019 9:20 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

I am thinking that Sinemet goes directly to dopamine receptors in the brain but that the Neupro patch does not as it is a DA and this class is chemically different and has different side effects. Having taken the patch since September I know that is has the advantage of delivering the medication ste...
by Caitrin
Mon Apr 01, 2019 4:18 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

I have very sensitive skin and now, after a three month extended vacation in south Florida this past winter, have red patches of skin wherever I applied the Neupro 2 mg. patch as well as intense itching. I also have a script for the 1 mg. patch which is less irritating and tried adding a 50/100 mg. ...
by Caitrin
Tue Mar 19, 2019 8:12 pm
Forum: General Topics: RLS/WED
Topic: Neupro patch map
Replies: 7
Views: 678

Re: Neupro patch map

I too find the Neupro patch works best above the chest including upper arms, shoulders and upper back. Unfortunately I needed to apply them to my thighs and waist areas both sides because I am spending the winter in southwest Florida and while playing golf and engaged in other outdoor activities the...
by Caitrin
Wed Oct 17, 2018 3:55 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

Yes, once you place tape or a clean shield on the patch it must remain there until the patch is changed. I tried it and the patch did come off.
by Caitrin
Wed Oct 17, 2018 2:22 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

After using the 1 mg. patch for two weeks I have augmented and will require the 2 mg. script my physician sent to the pharmacy. I thought I would be able to remain at 1 mg. but not the case. As discussed here I will have to find other sites for the larger patch which will not cause allergic reaction...
by Caitrin
Mon Oct 08, 2018 11:58 pm
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 430

Re: refractory rls and psoriasis relationship

I agree more research must be done. For now I am doing my own as I have a few issues. Saw a dermatologist last week and tomorrow an allergist/immunologist. Thanks all for input.
Caitrin
by Caitrin
Mon Oct 08, 2018 11:37 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

Thank you for your input and it has been 11 days now on 1 mg. patch. Early evening is best for me and I have steadily increased time I remove and apply the new patch. What a break this has been for me from 24/7 to zero leg jerks. I knew the time would come when I had to eliminate the carbidopa/levod...
by Caitrin
Sat Oct 06, 2018 6:36 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 19
Views: 1131

Re: NeuPro: keeping track of patch locations

I have been on the NeuPro patch 1 mg. for one week and have not once experienced those jerky leg movements I had 24/7. It has been a challenge finding those areas on my body on which to apply the patch. One fell off while showering two hours before I was to put on a new patch so I waited another two...
by Caitrin
Sat Oct 06, 2018 6:16 pm
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 430

refractory rls and psoriasis relationship

I would like to know if anyone with refractory RLS has experienced psoriasis or other neuro dermatological conditions. Interestingly I developed this condition a year ago and it has worsened. I also have a swollen, painful right ankle and doctor says it is arthritis. I had Reiter's syndrome when I w...
by Caitrin
Tue Sep 18, 2018 6:34 pm
Forum: Augmentation
Topic: A question about dopamine agonist withdrawal
Replies: 5
Views: 4162

Re: A question about dopamine agonist withdrawal

I have been postponing making an appointment with the quality care centers at Mass General or Yale in Connecticut because of husband's serious illness and hospitalizations this past year but am now prepared to contact one of these centers which are only a five hour drive from our home. It has been d...
by Caitrin
Mon Sep 17, 2018 2:56 pm
Forum: Augmentation
Topic: A question about dopamine agonist withdrawal
Replies: 5
Views: 4162

Re: A question about dopamine agonist withdrawal

After taking 1 mg. of physician's samples of Neupro patch for a few days I had relief of my RLS but after a week I awwkened with jerky legs. I added another 1 mg. patch and suffered severe urinary retention, itchy sores at application site and other body parts and slight memory lapse. This was not a...
by Caitrin
Mon Aug 20, 2018 8:34 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 1208

Re: Neupro

Well, I am now 24 hours on Neupro 2 mg. and leg jerking free as well as drowsiness. I rechecked my samples and there are enough for two weeks and I have decided to continue the Neupro while rethinking the Sinemet. It is good not to have daytime WED. Regarding the patent on Neupro I thought it expire...
by Caitrin
Mon Aug 20, 2018 2:55 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 1208

Re: Neupro

Steve, Sorry for the confusion. I omitted that I was experiencing some edema as a side effect. I also experienced drowsiness and still am today. I am not alert today and a bit confused. Having taken into consideration the fact that this DA causes these unusual side effects as well as augmentation an...

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