Search found 39 matches

by Caitrin
Wed Oct 17, 2018 3:55 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 7
Views: 930

Re: NeuPro: keeping track of patch locations

Yes, once you place tape or a clean shield on the patch it must remain there until the patch is changed. I tried it and the patch did come off.
by Caitrin
Wed Oct 17, 2018 2:22 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 7
Views: 930

Re: NeuPro: keeping track of patch locations

After using the 1 mg. patch for two weeks I have augmented and will require the 2 mg. script my physician sent to the pharmacy. I thought I would be able to remain at 1 mg. but not the case. As discussed here I will have to find other sites for the larger patch which will not cause allergic reaction...
by Caitrin
Mon Oct 08, 2018 11:58 pm
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 344

Re: refractory rls and psoriasis relationship

I agree more research must be done. For now I am doing my own as I have a few issues. Saw a dermatologist last week and tomorrow an allergist/immunologist. Thanks all for input.
Caitrin
by Caitrin
Mon Oct 08, 2018 11:37 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 7
Views: 930

Re: NeuPro: keeping track of patch locations

Thank you for your input and it has been 11 days now on 1 mg. patch. Early evening is best for me and I have steadily increased time I remove and apply the new patch. What a break this has been for me from 24/7 to zero leg jerks. I knew the time would come when I had to eliminate the carbidopa/levod...
by Caitrin
Sat Oct 06, 2018 6:36 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 7
Views: 930

Re: NeuPro: keeping track of patch locations

I have been on the NeuPro patch 1 mg. for one week and have not once experienced those jerky leg movements I had 24/7. It has been a challenge finding those areas on my body on which to apply the patch. One fell off while showering two hours before I was to put on a new patch so I waited another two...
by Caitrin
Sat Oct 06, 2018 6:16 pm
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 344

refractory rls and psoriasis relationship

I would like to know if anyone with refractory RLS has experienced psoriasis or other neuro dermatological conditions. Interestingly I developed this condition a year ago and it has worsened. I also have a swollen, painful right ankle and doctor says it is arthritis. I had Reiter's syndrome when I w...
by Caitrin
Tue Sep 18, 2018 6:34 pm
Forum: Augmentation
Topic: A question about dopamine agonist withdrawal
Replies: 5
Views: 4029

Re: A question about dopamine agonist withdrawal

I have been postponing making an appointment with the quality care centers at Mass General or Yale in Connecticut because of husband's serious illness and hospitalizations this past year but am now prepared to contact one of these centers which are only a five hour drive from our home. It has been d...
by Caitrin
Mon Sep 17, 2018 2:56 pm
Forum: Augmentation
Topic: A question about dopamine agonist withdrawal
Replies: 5
Views: 4029

Re: A question about dopamine agonist withdrawal

After taking 1 mg. of physician's samples of Neupro patch for a few days I had relief of my RLS but after a week I awwkened with jerky legs. I added another 1 mg. patch and suffered severe urinary retention, itchy sores at application site and other body parts and slight memory lapse. This was not a...
by Caitrin
Mon Aug 20, 2018 8:34 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 1097

Re: Neupro

Well, I am now 24 hours on Neupro 2 mg. and leg jerking free as well as drowsiness. I rechecked my samples and there are enough for two weeks and I have decided to continue the Neupro while rethinking the Sinemet. It is good not to have daytime WED. Regarding the patent on Neupro I thought it expire...
by Caitrin
Mon Aug 20, 2018 2:55 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 1097

Re: Neupro

Steve, Sorry for the confusion. I omitted that I was experiencing some edema as a side effect. I also experienced drowsiness and still am today. I am not alert today and a bit confused. Having taken into consideration the fact that this DA causes these unusual side effects as well as augmentation an...
by Caitrin
Mon Aug 20, 2018 1:39 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 1097

Re: Neupro

I began augmenting on Sinemet in January of this year, from one 50/200 mg tablet once daily for 20 years to two 25/100 tabs/day and finally to 3 tablets/day. I decided to try a DA and yesterday tried a Neupro 2 mg patch my new neurologist had given me. I took it at 4 p.m. yesterday and all day/night...
by Caitrin
Mon Feb 12, 2018 8:01 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 2076

Re: Tramadol while tapering Sinemet

Any thoughts on the Neupro patch? I was given samples by a neurologist and have read the leaflet on side effects. The one that disturbs me most is that the it could raise one's blood pressure and I am currently taking two BP meds. I am still taking carbidopa/levodopa, one and one-half 50-200/day. I ...
by Caitrin
Tue Jan 30, 2018 6:09 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 2076

Re: Tramadol while tapering Sinemet

Thank you both for your input. I did take ZYRTEC while on tramadol but it did not help with the itching. I too tried decreasing and then back to the usual dose and the itching increased. I may try taking it once more. Can you tell me what the newer generation antihistamine is? I did take another opi...
by Caitrin
Mon Jan 29, 2018 9:01 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 14
Views: 2076

Re: Tramadol while tapering Sinemet

Tramadol caused such intense itching I went back to the Sinemet until I see my primary Wednesday. My entire body itched 24/7 and I was miserable. So I took 1/12 50-200mg. tablet Sinemet last night. I think my doctor mentioned Mirapex two weeks ago and will ask her for a script thinking the change in...
by Caitrin
Fri Jan 26, 2018 3:54 pm
Forum: Prescription Medications
Topic: Carbidopa/levodopa withdrawal symptoms
Replies: 9
Views: 1470

Re: Carbidopa/levodopa withdrawal symptoms

My husband continues to give me a 50 ml. tramadol each day until I see my primary next Tuesday. He has lived through this terrible disease with me for 30+ years. He had an ileostomy late Sept. and was in hospital 9 weeks. He is able to drive me to doctors' appointments. Soon he will have his left hi...

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