Search found 42 matches

by helen1965
Mon Feb 20, 2012 1:55 pm
Forum: Prescription Medications
Topic: Rotigotine patch
Replies: 4
Views: 707

Rotigotine patch

hello everyone, I haven't been able to log in for a while, but here I am now. Since I last posted I managed to get my Ferratin levels up to 53 (they are due to be read again around about now and I do expect them to be higher), and I have been prescribed a 1mg Rotigotine patch instead of Ropinirole (...
by helen1965
Tue Jan 03, 2012 8:43 pm
Forum: Prescription Medications
Topic: 5-Year Data on Rotigotine Patch for Restless Leg Syndrome
Replies: 7
Views: 1608

Re: 5-Year Data on Rotigotine Patch for Restless Leg Syndrom

A Rotigotine patch is one of the next possible steps mentioned by my neurologist when I eventually stop Ropinirole. I live in Scotland so it must be available here. Does anyone have any experiences with it? Any info is welcome.
by helen1965
Tue Jan 03, 2012 8:40 pm
Forum: Prescription Medications
Topic: Iron??
Replies: 26
Views: 4409

Re: Iron??

This report about ferratin levels gives me a little more hope. My Ferratin levels were at 11, and as my Doctor at the time and I didn't know any better, she prescribed and I was only to glad to take Ropinirole. And of course I have augmented, as many of you will know from reading my many posts on he...
by helen1965
Sat Dec 24, 2011 8:54 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

Re: Ropinirole and Tramodol

Not doing as well as I'd hoped I would. I am now on night 14 of the withdrawal from Ropinirole, and I had hopes the RLS would have calmed down. It has been less of a nightmare this time, certainly, but here it is, Christmas Eve, and yet again my partner Colin, and I are getting our coats on and havi...
by helen1965
Mon Dec 12, 2011 7:09 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

Oh, I don't know what is working and what isn't. I completely understand and agree I need to come off the Ropinirole. That is my aim. Last night I managed to sleep till 4 am from 10pm, all in one go. I woke myself (insomnia) the RLS didn't wake me. I will take your advice and write to Dr Buchfuhrer,...
by helen1965
Sun Dec 11, 2011 10:37 am
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

Polar bear, yes I probably would have been better to try that the first few times I reduced, it was horrendous. But I must say, this time has been quite different. I was expecting to go through hell again, but I think the pregabalin has made a difference. Last time I reduced I was waking at 1 am wit...
by helen1965
Fri Dec 09, 2011 7:30 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

Still sleeping better, though this morning I have been awake from 4.10 am, not because of the RLS. I have Ropinirole induced Insomnia, and try as I might, I couldn't get back to sleep!But at least while I was lying there dog-tired I could at least keep my legs still! Today hasn't been as good a day,...
by helen1965
Tue Dec 06, 2011 9:17 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

I am now on night 6 of using Pregabalin and Ropinirole. I have had 6 much better nights sleep, and funnily enough the days are slightly better too. I have a feeling the Pregabalin is covering up some of the augmentation, which is great right now, but I'm not daft enough to think the augmentaion has ...
by helen1965
Tue Dec 06, 2011 9:05 pm
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10416

Moonlight, I understand completely your frustration at the lack of knowledge here in the UK. My doctor seems willing to listen to me when I suggest things, I'm lucky. But ignorance about RLS is widespread in the UK. I also live in Scotland, like you, and I also have pounded the streets, Edinburgh an...
by helen1965
Fri Dec 02, 2011 8:36 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

I have given my doctor a copy of the Mayo Algorithm, she said she would read it, I hope she meant it. I did wonder about the Ropinirole, I told her my objective was to get off it and on to something else.She made the right noises... But I am seeing my Neurologist on the 6th and I will go into more d...
by helen1965
Thu Dec 01, 2011 8:08 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

you can be sure I'll report every step, PolarBear!
by helen1965
Thu Dec 01, 2011 7:33 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

I just want to get off the Ropinirole.
by helen1965
Thu Dec 01, 2011 7:28 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

hi my friends. Well, my Doc suggested I try the next med on the list from my neuro, Pregabalin, or Lyrica, as it says on the box. I have to start at 75mg at night with my 2mg Ropinirole, and another 75mg in the morning (no Ropinirole). I have to do this for approx 5 - 7 days then if ok stay at that ...
by helen1965
Wed Nov 30, 2011 1:04 pm
Forum: General Topics: RLS/WED
Topic: RLS and driving
Replies: 9
Views: 1378

I am on Ropinirole (Requip) and the contra indications do warn that it can cause sudden somnolence (sleepiness), and it does. |It has happened to me four times now, 3 of them while I was out walking, and I had to literally stop at a bus stop or somewhere that I could actually sit or lean against som...
by helen1965
Wed Nov 30, 2011 12:50 pm
Forum: General Topics: RLS/WED
Topic: Ropinirole and Tramodol
Replies: 41
Views: 8010

sure will keep you posted, good people like you are my lifeline, thank you all.

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