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by notnowdad
Thu Sep 20, 2018 3:43 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Update for 2018: I continue to enjoy almost complete freedom from RLS. I don’t consider myself cured because a high oxalate meal can bring it back within 24 hours. When it does recur I know that reverting to my low oxalate regimen will bring relief by the next day. A few random tips and thoughts: Co...
by notnowdad
Tue Jun 06, 2017 6:00 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

After another year of success on a Low Oxalate Diet, I have realized that the LOD can lead to magnesium deficiency because many of the foods I avoid are the better sources of magnesium. I am now taking magnesium malate pills with 180 mg of magnesium three times a day: after arising and a half hour b...
by notnowdad
Wed Aug 03, 2016 1:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Tommy, it is great to hear from you. I’m delighted that you are doing well. Since I stopped drinking iced tea with lunch I have been almost completely symptom free. However I did have a bad experience with collard greens, which I was eating in an effort to add variety with a very healthful vegetable...
by notnowdad
Tue May 10, 2016 3:12 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

I’m relying on the “Trying Low Oxalates” Yahoo group Excel spreadsheet which seems to be the best compilation of the most current info. But be warned, the spreadsheet is no fun. It is huge and, for me, somewhat confusing. I took a legal pad and pen and started making notes of the things that were mo...
by notnowdad
Sun May 08, 2016 11:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Tommy, This is wonderful news. I couldn’t be happier for you and for the people who may benefit from your experience. Whatever happens in the upcoming days and weeks, please hang in. I have every confidence you are on the right path, even if it gets worse for a while. It is entirely possible that yo...
by notnowdad
Thu May 05, 2016 12:26 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

One approach would be cut back on oxalate rich foods except for pizza and see how that goes. This could be consistent with Susan Owen's recommendation to make these dietary changes slowly. On the other hand, if you haven’t been eating a lot of other oxalate rich foods, then the pizza could be your m...
by notnowdad
Tue Apr 26, 2016 7:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Thanks for the update. It sounds like you are doing about as well as can be expected.

BTW, if you are taking Co-Q10 as a supplement you might want to lay off it for a while. I was surprised to read on some website recently that it can interfere with sleep.

Best of luck going forward.
by notnowdad
Tue Apr 26, 2016 3:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

OK Tommy, I’m back again and I’m very concerned. Please take a moment to consider your situation and ask yourself how you should proceed. I admit I didn’t take it very seriously when I posted that Susan Owens states: “Our group discusses how to help the body more gently detoxify from oxalate.” And t...
by notnowdad
Tue Apr 26, 2016 11:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

A couple more bits of information in response to your questions: A link on the lowoxalateinfo.com website leads to an article by Michael Liebman, PhD, in which he says the following which I believe could help account for a tendency to increased urination: “Oxalic acid has the ability to form a stron...
by notnowdad
Tue Apr 26, 2016 1:38 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Tommy, I’m not sure, but it seems like you are “detoxifying” as suggested by Susan Owens, who seems to be the outstanding advocate for a Low Oxalate Diet. She believes that the body sequesters harmful oxalate in various organs and shifting to a LOD causes the “dumping” of these stores. Because I eas...
by notnowdad
Sun Apr 24, 2016 10:19 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Steve, Please accept my apology. You are absolutely right that I cannot speak for the people who have used the medications. And it is really encouraging to hear from someone who has used them successfully. I denied myself that option partly because so many of the posts I read were written by people ...
by notnowdad
Sat Apr 23, 2016 10:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

Thank you Tommy, and good luck. Let us know if things do get worse before they get better. The following is part of an email I have sent to my sister, my wife, our four children and their spouses. The first portion of the email is my writing. The second portion is Tommy's post which I haven't copied...
by notnowdad
Sun Apr 10, 2016 10:10 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What to expect when "detoxifying"
Replies: 2
Views: 2173

What to expect when "detoxifying"

As many of you know, I have been posting for some time regarding my almost complete cessation of RLS symptoms as a result of following a low oxalate diet. I have just come across the website, lowoxalate.info, posted by Susan Costen Owens, Research Associate, Husson Science Research Institute in 2006...
by notnowdad
Wed Mar 23, 2016 9:54 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Re: Another year of relief

About 6 years ago I made some changes in my diet in the hope of increasing my general energy level. I experienced some abatement of my chronic leg discomfort. For the next 5 years I kept a diary of virtually everything I ate and how I felt each day. My intention was to see if I could find a causal r...
by notnowdad
Sun Mar 20, 2016 6:12 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 14827

Another year of relief

Now that I have achieved more than a year of virtually complete relief from RLS I continue to believe that following a diet low in oxalic acid has made the difference for me. I offer the following guidelines in the hope that they may help others. My primary vegetables have been broccoli, cauliflower...

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