Restless Legs Syndrome (RLS) Discussion Board

don't understand how to work with discussion? Is Chat open?

jane

Thanks for the posts! I have likely been on both Miapex & Sinemet for 5 to 6 years.

Jane

I can be pretty thick at times and am a slow learner. I still struggle with getting through my head use of thzt word in this contact. When I go to definitions it mentions things like breast augmentation. Maybe someone can draw a word picture that clears it up for me. AS to Ultram doing the job, ther...

It is good to see all the positive responses regarding my visit with the Neurologist. Zach. not sure which of my Neurologists over the years put me on both Mirapex and Sinemet, but I have had several or more continue the mix. At the end of your comment you used something like IMHO, or whatever it wa...

As promised, this is the report of my Doctor's visit. I was pleasantly pleased with how it went. I had misunderstood something important when his nurse called yesterday, i.e., he is adding Ultram to the meds. I am to take a 50 MG of Ultram 3 times a day. Lower the Sinemet from 1 at lunch and two at ...

I will come back and use the expertise from experience found within this Group! There is a good chance that I will ask for a consultation with my primary physician, who knows my long term history in general and especially the past use of Opiads for the Chronic headaches! Where have I been all these ...

All of you are wonderful, with your information, suggestions and support. I wish that I had used your sage advice earlier!

Thanks a bunch - Jane

I dowloaded that link, that is a God-Send, Thanks a bunch. Yes, I did increase the dosage over time!

Jane

One of the problems I am dealing with is that I have such a short time between tonight and 11:45 AM tomorrow to find the information to have for the max 15 minutes my Neurologist is going to give me. Also dealing with early phase of Tardise Dys. I question that he knows much about RLS and in any dep...

Jane here again... in The early years before RLS meds, I would walk in my living room/dining room for 3 to 4 hours at night.I was on Prescribed narcotics for years to treat Migraine and Chronic Daily headaches, detoxing a numher of times. so my Neurologist did not want to prescibe them for RLS in th...

Beth, I take a half of a 1.5 mg Mirapex at lunch and the other half at dinner, then I was taking .5 at bedtime. Then 1- 25-100 Carbidopa-Levo with lunch and then two of them at dinner. This worked for years until last Friday when I woke up at 3 AM with full blown RLS, which I was unable to walk it o...

To Beth:

No, his nurse did not say that he would give me something else.

Jane

Yes, I am on high doses of both medications, having been trying to treat 25 or more years of RLS. The Doctors nurse did not mention his giving me something to suplant the current meds. I was on Requip years ago. I am unable walk on off RLS due to to severe lower back pain does keeps me from any appr...

i am Jane and have had RLD much of the time since I was diagnosed with Diabetes 34 years ago. I am 80 years old and heve extremely severe lower back pain. which makes pacing or any appreciable walking a serious problem. I notified my Neurologist that I am starting to get some immineness to either Mi...