Restless Legs Syndrome (RLS) Discussion Board

First, you have to change doctors! Yours should be shot. After sneaking my drugs into the hospital to self-medicate I figured I'd let the hospital take care of me at my last surgery. Big mistake...BIG! The nurses were not apprised of my RLS and I had to wait until "rounds" to be given my m...

Just short of a year later, another update. Have no idea what prompted the itching but seems to have gone through its cycle, reappearing only every few months on single occasions. Mostly wear TEDs now (because I can't afford the high cost of compression stockings) but give myself breaks every now an...

It is interesting to read some of the new posts since I last logged in. Have had great success for at least 2 years on my 1.5 ropinirol 3x/da -- plus 2 hydrocodone (7.5/325) with each ropinirol dose. I am of the firm conviction that "if it ain't broke, don't fix it." However, within the pa...

I suppose I should give an update since I'm the OP. Making virtually no changes in meds, it seemed my hair was starting to thicken up again shortly after my last post. Guess what? Around Thanksgiving 2011, it started falling out again and is now growing in again. My annual molt? I've never lost as m...

I was going to title this "Ongoing Education Requirements for Medical Professionals"...which it is...but that sounds REAAAALY DRY so I hope this title will pull more people in. If I have had any concerns about my neurologist's interest in RLS, apparently I have made some impact on his nurs...

Thanks guys. I know it seems a minor issue when compared with most of you guys that can't sleep more than 2 hours at a time. I guess there's a time to let go of some of that pride. At least if I were on chemo, I'd know that the hair would grow back. My neuro was very agreeable about letting me stay ...

Please see my post in the General topics titled "Ropinirole (Requip) and hair loss". Thanks.

First let me say that I've had exceptional good luck for quite a few months on 1.5 mg Requip and 7.5 hydrocodone each, 3x daily. (That's 4.5mg Requip & 23.5mg hydroc.) I sleep well, and do pretty well with no episodes of RLS between doses as long as I remember to take them on time (which setting...

True. But as sufferers, we need to realize that there is still a huge population who hears "RLS" and think they have it when, in reality, they haven't read enough to know what their problem is. I have a very good friend, who, upon mentioning it to her, told me she had it too and went on to...

Be aware of all the other foods with corn syrup (if it is the offender). Bread, non-diet soda pop, jellies, canned fruits/applesauce, even some spaghetti sauce, and I would imagine some salad dressings too. If I might be allowed to hijack my own thread, 8 weeks out from knee replacement surgery, I w...

Thanks, Susan. I did buy 2 pints "organic" but got no results with one of them and good results with the second. Not saying it's not the mono and tri-di-glycerides, but i just went for the easiest ingredients first. And it seemed to work--even today--and I even indulged myself with my deca...

I have all but discontinued use of my beloved hazelnut coffee, drinking about 2 cups of decaf every 3 weeks. Chocolate has not been as easy (would have thought it the other way around). Read on someone's post a few weeks ago about ice cream being a trigger. Well, guess what? I usually ate a small bo...

...another "tenser" here

Happy for you for the validation.

Yes, a very "happy" thing. And I forgot to mention that he extended my scrip for 5 refills. That tells me he's not likely to stop at the end of that time. Here's a suggestion. I know we like to keep our "stash", but in my case I had quite a few hydrocodones as well as tramadols a...

sorry if I didn't make it clear...it was my neuro who finally came around after nearly a year of office visits.