Search found 69 matches

by Andreadrea
Tue Aug 02, 2011 2:50 am
Forum: General Topics: RLS/WED
Topic: Is RLS a cause of low iron?
Replies: 17
Views: 1809

Now that my ferritin is finally over 50, I only get symptoms maybe once a week. My new neurologist wants to get it higher, I forget how high he wants it, but the ferrous bisglycinate worked well for me (sulfate upset my stomach too much).
by Andreadrea
Tue Aug 02, 2011 2:46 am
Forum: General Topics: RLS/WED
Topic: RLS and acupuncture
Replies: 10
Views: 1508

Acupuncture helps my WED a bit. I go every week or two, for other reasons, but I find that if I miss it for a month or so, the WED gets much worse.
by Andreadrea
Tue Jul 05, 2011 6:09 am
Forum: Physical Treatments
Topic: Assume Everyone has Seen Stories about Masturbation?
Replies: 11
Views: 3202

Works about 1/10th of the time for me. I WISH it was that easy!
by Andreadrea
Tue Jul 05, 2011 6:05 am
Forum: General Topics: RLS/WED
Topic: Have you we tried NOT to move your legs?
Replies: 26
Views: 2531

When I try not to move, they start to HURT! Eventually the leg will move explosively, on its own.
by Andreadrea
Sun Jul 03, 2011 4:59 am
Forum: General Topics: RLS/WED
Topic: WED/RLS symptoms while asleep
Replies: 22
Views: 2522

Actually I do move my legs a lot when I sleep, but it doesn't usually wake me. You can tell which side of the bed I sleep on, because the sheet wears out twice as fast on my side :)
by Andreadrea
Fri Jun 24, 2011 7:52 am
Forum: Physical Treatments
Topic: zen meditation
Replies: 40
Views: 18439

I used to meditate, but I found now that the RLS symptoms appear when I try to relax. I would love to be able to do mindfullness meditation again!
by Andreadrea
Thu Jun 23, 2011 5:38 pm
Forum: General Topics: RLS/WED
Topic: New Neurologist is GREAT!
Replies: 4
Views: 592

New Neurologist is GREAT!

I went to see a new neurologist after having MANY difficulties with my previous one. The previous one said I couldn't have augmentation after a month on Mirapex. The new one said, when I described the symptoms, "that sounds like augmentation, let me explain what that is." (I told him I cou...
by Andreadrea
Wed Jun 22, 2011 5:58 am
Forum: General Topics: RLS/WED
Topic: WED/RLS symptoms while asleep
Replies: 22
Views: 2522

Usually I have symptoms when I'm trying to sleep, but sometimes I have them just after falling asleep, and it wakes me up. Then i'm up for 2-3 hours!
by Andreadrea
Sun Jun 19, 2011 10:50 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS is not always the culprit
Replies: 15
Views: 2072

I just found out about a week ago that my Vitamin D level is 9! My doctor put me on a once-weekly megadose of D, which I'll take for 12 weeks. I'm wondering if raising my vitamin D will help my WED. Raising my ferritin certainly helped!
by Andreadrea
Sun Jun 19, 2011 12:14 am
Forum: Everything Else...just no RLS/WED!
Topic: sleep issues
Replies: 171
Views: 34333

Vents are OK :) When my WED/RLS flares up, it consumes every part of my life and my thoughts. I fear that am boring the people in my life as well.
by Andreadrea
Thu Jun 16, 2011 9:22 pm
Forum: General Topics: RLS/WED
Topic: Crossing my fingers- made request for new neurologist
Replies: 4
Views: 564

Hurrah, after wading through red tape it turned out there was an easier way! I see my new doctor next Thursday. And not a moment too soon. The Klonopin I took last night made me so drowsy today I had to call in sick last minute because I felt drunk. Then I got hysterical because I thought I would ge...
by Andreadrea
Thu Jun 16, 2011 4:24 pm
Forum: General Topics: RLS/WED
Topic: Crossing my fingers- made request for new neurologist
Replies: 4
Views: 564

Crossing my fingers- made request for new neurologist

With my HMO, my choices were to ask my primary care provider to re-refer me to neurology for a 2nd opinion, or ask the neurologist himself for a referral to another doctor. Since the neuro I've been seeing has been condescending, dismissive and rude (and unhelpful), I decided to ask my PCP. Hopefull...
by Andreadrea
Wed Jun 15, 2011 8:44 am
Forum: General Topics: RLS/WED
Topic: 50 diseases/conditions that feature a higher rate of RLS
Replies: 16
Views: 1928

Dave, you should be careful about how you word stuff on your website, one line caught my eye in particular: "The herbs that are part of your daily intake are COMPLETELY harmless ... so mild that a child could take them. They are NON addictive, and best of all, they don't create ANY side effects...
by Andreadrea
Wed Jun 15, 2011 8:10 am
Forum: General Topics: RLS/WED
Topic: Part 2 of poll questions. OPEN TO ALL
Replies: 34
Views: 6148

no, absolutely not!
by Andreadrea
Wed Jun 15, 2011 8:07 am
Forum: Prescription Medications
Topic: Mirapex to Methadone to Central Apnea...and maybe help
Replies: 28
Views: 3278

Doety- you're right about the klonopin being an issue with methadone. At the hospital where I work, anyone that is on a benzodiazepine plus an opiate has to get vitals every 4 hours, including oxygen saturation. Most of the doctors I work with say that the worst combo for respiratory depression is k...

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