Search found 59 matches

by fraujoolie
Sat May 04, 2013 3:15 am
Forum: Prescription Medications
Topic: Horizant Shortage
Replies: 18
Views: 2360

Re: Horizant Shortage

:)
by fraujoolie
Sat May 04, 2013 1:31 am
Forum: Prescription Medications
Topic: How do you feel about taking Opioids for RLS?
Replies: 13
Views: 1437

Re: How do you feel about taking Opioids for RLS?

Dr B has reassured me that long-term use of methadone is a lot safer than the other opioids, because you can use a much smaller dose and get good relief. There is usually very little augmentation on methadone, too. I think it gets a bad rap because it can be abused, and it's what they give heroin ad...
by fraujoolie
Sat May 04, 2013 1:17 am
Forum: Prescription Medications
Topic: Horizant Shortage
Replies: 18
Views: 2360

Re: Horizant Shortage

877-936-6778 is their number, if you want to tell your docs to get on the database, or if you want to give them h*ll, too. :)
by fraujoolie
Sat May 04, 2013 1:12 am
Forum: Prescription Medications
Topic: Horizant Shortage
Replies: 18
Views: 2360

Re: Horizant Shortage

Dr B didn't have any more samples. I wish he would have notified his patients- I found out the hard way, unable to make a refill. One of the pharmacists told me that there are only 4 major vendors to pharmacies, so no need to call all of them, if they are out, everyone is out. He said the major drug...
by fraujoolie
Wed May 01, 2013 8:02 am
Forum: Prescription Medications
Topic: Horizant Shortage
Replies: 18
Views: 2360

Horizant Shortage

Has anyone FOUND a pharmacy that has Horizant on the shelves?! Apparently XenoPort and GSK have had a falling out over money, and we are the ones to suffer without medicine. There is no word when it will be available again. It's disgusting how Big Pharma only cares about the Almighty $$$. I've calle...
by fraujoolie
Wed Nov 07, 2012 9:32 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 30554

Re: Pregnant and Miserable - Back to Methadone??

Congratulations on having twins! I am sorry to hear that one has some health issues. I agree with your docs, I have read every single last bit if research, methadone does not contribute to the health issues you are describing. I hope you are able to pursue good care in your area. Have you done genet...
by fraujoolie
Mon Sep 17, 2012 3:52 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Trying to get pregnant on Mirapex
Replies: 3
Views: 4040

Re: Trying to get pregnant on Mirapex

Hello, I see this thread is a little old, but I wanted to post a reply, in case someone else finds themselves in this situation. Mirapex and pregnancy don't mix. There are some links between cleft palate and Mirapex, and the palate forms very early on (I want to say around 5-11 weeks gestation?), so...
by fraujoolie
Mon Sep 17, 2012 3:48 am
Forum: Prescription Medications
Topic: Horizant, Insurance Woes
Replies: 4
Views: 870

Horizant, Insurance Woes

Hi Everyone! It's been awhile since I last posted, I hope you're all doing well. I have been on Horizant 1200 mg for about three months now, and it is a nice complement to the Methadone. I've been having so much trouble with my insurance, however. I have gone through three denials, written letters, ...
by fraujoolie
Fri Dec 23, 2011 2:37 am
Forum: General Topics: RLS/WED
Topic: RLS "Ambassador" Opportunity
Replies: 2
Views: 618

RLS "Ambassador" Opportunity

Hello Friends, I was contacted by a pharmaceutical company (Glaxo Smith Kline) a few months ago, asking if I would be interested in their patient ambassador program. I believe they got my contact information through my doctor (Dr. B). I did express my interest, and the marketing coordinator spoke wi...
by fraujoolie
Thu Dec 15, 2011 6:31 pm
Forum: Prescription Medications
Topic: Iron??
Replies: 26
Views: 4412

Ah, no wonder I didn't know what "DA" was. I can't take them. I augmented on Mirapex a few years ago. In fact, never went down to my "baseline" and have since had arm symptoms. Mirapex ruined me.
by fraujoolie
Thu Dec 15, 2011 8:16 am
Forum: Prescription Medications
Topic: Iron??
Replies: 26
Views: 4412

What's a "DA?" Vitamin D? I'm confused. Or maybe just very tired... :P

Thanks for propping me up!
by fraujoolie
Wed Dec 14, 2011 6:54 am
Forum: Prescription Medications
Topic: Iron??
Replies: 26
Views: 4412

Iron??

Has anyone really (I mean, REALLY?) seen a huge change in their symptoms with iron supplements? Just to rant, I called Dr. B to talk about my increasing symptoms, and he asked me to come in for an office visit. So I made an appointment for two weeks later. It takes me about an hour to get to Dr. B's...
by fraujoolie
Sat Nov 19, 2011 6:13 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy Journal
Replies: 57
Views: 27348

Congratulations!!! I am glad everything is okay with his lungs now. What a scary experience. I saw your pictures on FB, what a cutie! And I saw that he was in the NICU, I was concerned. I wasn't sure if it was from the Methadone, or from something else. Now I know... and I'm sorry he was having brea...
by fraujoolie
Thu Nov 10, 2011 6:06 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy Journal
Replies: 57
Views: 27348

Just read on Facebook, Sarah is being induced on 11/11/11!!!!

Best of luck to you Sarah! I can't wait for an update. :)
by fraujoolie
Thu Nov 10, 2011 6:02 am
Forum: General Topics: RLS/WED
Topic: Our Medical History
Replies: 25
Views: 5536

1. RLS
2. Herniated Disc (central), L4/L5
3. Disc Degeneration, L3 through S1
4. Bone Spur L5/S1

So really, it's just my RLS and my back problems. Chronic back problems are a result of an accident in 2001. My RLS is genetic, but I think the fallout from the accident worsened the symptoms.

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