Search found 33 matches

by xristina47
Thu Apr 07, 2016 8:17 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Midnight Carbohydrate Snack
Replies: 13
Views: 2655

Midnight Carbohydrate Snack

I have often found that when RLS is troublesome in the middle of the night, eating a small bowl of oats with a few raisins and a splash of milk plus drinking a soothing herbal tea helps RLS and Periodic Leg Movements to subside, after which I can often go back to bed and fall asleep. My Dad, (passed...
by xristina47
Thu Mar 31, 2016 12:48 pm
Forum: General Topics: RLS/WED
Topic: PLMW - Or Jerky Legs
Replies: 61
Views: 3030

Re: PLMW - Or Jerky Legs

Badnights, I have had the experience of living at changed altitudes. For the past 12 years I have lived in France at an altitude of 920 meters (3,018.4 feet) and I just couldn’t understand why, when I went to stay at sea-level in Brighton, UK for a period of 3 months, my RSL miraculously got better....
by xristina47
Fri Mar 04, 2016 9:14 am
Forum: Physical Treatments
Topic: Temperature Shock
Replies: 9
Views: 2563

Temperature Shock

I have lived with hereditary RLS practically all my life, (69 yrs now). Through the years I’ve found different ways to cope with it. When RSL and accompanying Periodic Leg Movements threaten to disturb my sleep in the middle of the night, my latest trick is TO CHANGE BEDS. I leave my warm bed and go...
by xristina47
Wed Feb 04, 2015 6:32 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Success! Controlling WED with Little or No Medication
Replies: 5
Views: 2720

Success! Controlling WED with Little or No Medication

I thought I’d share my recent success story in getting my WED under control almost entirely without drugs, as my experience might prove useful to others on this forum. I have had WED all my life and always will – it’s a condition I’ve inherited from my father. For most of my younger life, it didn’t ...
by xristina47
Thu Aug 02, 2012 7:45 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Hereditary WED & Ancestral Family History
Replies: 14
Views: 5404

Re: Hereditary WED & Ancestral Family History

It’s very interesting to hear everyone’s experiences. Wow! RThom’s 7hr 20m sleep over 6 nights is pretty horrific. If that were me, I’d be drained of energy – I’d be unable to climb stairs without puffing and panting and I’d be totally unable to function or socialize. I know, because I’ve been like ...
by xristina47
Sun Jul 29, 2012 11:11 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Hereditary WED & Ancestral Family History
Replies: 14
Views: 5404

Re: Hereditary WED & Ancestral Family History

Thank you everyone for replying to this rather « shot in the dark » theory that I had. To reply to RThom, I certainly do know that I inherited WED from my Dad, but the question I was trying to figure out, was which line of my ancestry was the most likely to have passed the gene down to my Dad and me...
by xristina47
Fri Jul 27, 2012 7:23 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Hereditary WED & Ancestral Family History
Replies: 14
Views: 5404

Hereditary WED & Ancestral Family History

I have been researching my family tree and couldn’t help wondering from which ancestral line in my family I have inherited WED. I suppose I’ll never really know but I have made a guess. I have concluded that the ancestral feminine line with the most sedentary lifestyle was the most likely culprit. I...
by xristina47
Wed Aug 24, 2011 7:30 am
Forum: Everything Else...just no RLS/WED!
Topic: sleep issues
Replies: 171
Views: 34390

Re. your last point, Polar Bear - in my case, I think it is more PLM (legs that jerk) that wakes me up at night. Maybe we have to differentiate between PLM and the electric-type, buzzy sensations in the arms and legs that characterise WED. Maybe these latter DON’T wake us up because maybe they only ...
by xristina47
Sun Aug 14, 2011 12:23 pm
Forum: Everything Else...just no RLS/WED!
Topic: smeary wooden table top
Replies: 14
Views: 3726

Ann – for your old wooden doors, it depends on how they have been treated before. If they have been waxed, you could try several coats of tinted wax which imparts a richer colour as well as a shine. You rub down between coats with very fine wire wool, then buff up at the end with a soft cloth. If th...
by xristina47
Thu Aug 11, 2011 1:04 pm
Forum: Just Joined?
Topic: hello, I'm new to the forum.
Replies: 12
Views: 2825

Poor Helen, I really do feel for you. Perhaps you should wait for your appointment with your neurologist to discuss how to come off Ropinirole. As Ann pointed out "Clinical Management of Restless Legs Syndrome" recommends going on opioids to ease the withdrawal period. I live in France whe...
by xristina47
Wed Aug 10, 2011 10:19 am
Forum: Just Joined?
Topic: hello, I'm new to the forum.
Replies: 12
Views: 2825

Hello Helen, Welcome to the site – I think we all find this site a huge comfort – I’m sure you will too and I hope you will get a lot of help here. I had the same augmentation as you after only 4 months on Ropinirole and like you, my ferritin was low at 25mg/l. In my understanding, if you can boost ...
by xristina47
Sat Aug 06, 2011 8:12 am
Forum: General Topics: RLS/WED
Topic: Is RLS a cause of low iron?
Replies: 17
Views: 1829

Oh, I didn't know that ferrous sulphate is absorbed better than ferrous glutonate. You area mine of information, Ann. Thank you! It's great to be able to talk to someone like you. Wish my poor Dad, (now deceased), who suffered from WED in the EXTREME, had had access to a forum like this! How he woul...
by xristina47
Thu Aug 04, 2011 7:31 am
Forum: General Topics: RLS/WED
Topic: Is RLS a cause of low iron?
Replies: 17
Views: 1829

Thank you Ann for looking up that info about Vitamin D2 and vitamin D3. That helps to make things clearer. Re. iron supplements, it is interesting, Andrea, that you are taking ferrous glutonate instead of ferrous sulphate. I had wondered if that might be a better option for me too, as I have a histo...
by xristina47
Wed Jul 27, 2011 8:58 am
Forum: General Topics: RLS/WED
Topic: Is RLS a cause of low iron?
Replies: 17
Views: 1829

Thank you Ann and Tracey for your replies and for the interesting statistics, Ann. There's definitely a connection between RLS and low iron, isn't there? - even though no-one quite understands what, yet. I have spoken to my doctor and she is going to start me on iron supplements at the end of the we...
by xristina47
Mon Jul 25, 2011 7:53 am
Forum: General Topics: RLS/WED
Topic: Is RLS a cause of low iron?
Replies: 17
Views: 1829

ViewsAskew and Chipmunk, thank you so much for your replies. What a great site this is! I think I will take your combined advice and take iron supplements for a while, under the supervision of my doctor and then get my ferritin levels tested fairly frequently, as you suggest, Chipmunk. Have you been...

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