Search found 37 matches
- Thu May 24, 2012 9:56 pm
- Forum: General Topics: RLS
- Topic: Sleep Study
- Replies: 6
- Views: 1188
Sleep Study
Hi guys. haven't been on in a few weeks, busy with doc's and what not. So I finally saw my new Neurologist.Nice, mellow guy. He is a sleep specialist as well. After a pretty thorough review of my records and a host of questioning, he thought there might be a chance of Narcolepsy, which RLS is presen...
- Wed May 02, 2012 1:12 am
- Forum: General Topics: RLS
- Topic: Special WED/RLS diary
- Replies: 16
- Views: 3094
Re: Special WED/RLS diary
Maybe we should try and have Glaxo or other big pharma companies develop this. The $2.99 suggestion certainly isn't to profit from but rather reimburse costs of Development. I'm not wealthy but would certainly shell out $3 bucks for something that could work indefinitely. This is something that take...
- Tue May 01, 2012 8:27 pm
- Forum: General Topics: RLS
- Topic: Special WED/RLS diary
- Replies: 16
- Views: 3094
Re: Special WED/RLS diary
Tracey, My thoughts exactly. It has to be extremely specific and all encompassing. The algorithm correlations would need to be perfected but wit the right set of tools I'm confident most if not all of us can improve our symptoms significantly and possibly alleviate them IF we are honest, accurate an...
- Mon Apr 30, 2012 3:50 am
- Forum: General Topics: RLS
- Topic: Special WED/RLS diary
- Replies: 16
- Views: 3094
Special WED/RLS diary
I've seen some basic sleep diaries and some a tad more specific to WED symptoms. Just in case this is a hit for the 20-30 million or more WED sufferers, this is my copyright! LOL Actually I'm sure it's been done before and available but I'm thinking a sophisticated spreadsheet and/or app that tracks...
- Mon Apr 30, 2012 12:52 am
- Forum: General Topics: RLS
- Topic: Right arm or leg dominant
- Replies: 12
- Views: 3004
Re: Right arm or leg dominant
rthom wrote:I have a question just out of interest--my WED is worse in my non-dominant limbs. Anyone else?
Although my WE'D started in both legs and remained there for many years, it's been primarily my left thigh (non-dominant) for last 6-9 months. Upper body, however, is equally throughout.
- Thu Apr 26, 2012 4:07 am
- Forum: Everything Else...just no RLS!
- Topic: Share what you ENJOY doing when you just can't sleep....
- Replies: 10
- Views: 3380
Re: Share what you ENJOY doing when you just can't sleep....
Wow! I'm so very impressed by some of the far reaching cultures and hobbies. With just a couple responses, I can only imagine the creativity we as a group have. Everyone always tells me to get a hobby to relax. Once I get some peace and quiet and time to just "chill" I hope to broaden my h...
- Wed Apr 25, 2012 12:21 pm
- Forum: Just Joined?
- Topic: Just Joined - My Thoughts and Questions
- Replies: 93
- Views: 19896
Re: Just Joined - My Thoughts and Questions
JY13131-well said and agreed, as commented a few times regarding same.
- Tue Apr 24, 2012 11:53 pm
- Forum: General Topics: RLS
- Topic: Nationally known RLS Doctors?
- Replies: 5
- Views: 2230
Re: Nationally known RLS Doctors?
Thank you. I haven't hear of Dr. Rye but will look him up as a
Possible alternative.
Possible alternative.
- Tue Apr 24, 2012 6:28 pm
- Forum: General Topics: RLS
- Topic: My battle with RLS.. starting to lose faith for relief
- Replies: 46
- Views: 9987
Re: My battle with RLS.. starting to lose faith for relief
GG- I love your thoughts! keep 'em coming. That goes for all of your excellent friends! When you say I get "release" from RLS, I'm not sure I interpret that right. I do NOT get "relief" by simply moving my legs. This was an unusual example of being able to initiate the RLS by str...
- Tue Apr 24, 2012 3:46 am
- Forum: General Topics: RLS
- Topic: My battle with RLS.. starting to lose faith for relief
- Replies: 46
- Views: 9987
Re: My battle with RLS.. starting to lose faith for relief
Check this out. I had commented a while ago about certain positions triggering my RLS. So I'm sitting in a reclined position watching tv a little while ago. All was fine. I had done my cardio rehab this afternoon and pushed a little harder on the bike and treadmill. Noticed my left leg quadricep was...
- Tue Apr 24, 2012 3:26 am
- Forum: General Topics: RLS
- Topic: Disability Claim
- Replies: 11
- Views: 3775
Re: Disability Claim
I agree that if you can qualify under a "standard" category then it would be advantageous to use that instead. I would think your heart condition and mental health could be primary with the RLS/WED aggravating it, so that you can't work your normal job. Lack of sleep has been shown to rai...
- Mon Apr 23, 2012 9:33 pm
- Forum: General Topics: RLS
- Topic: Nationally known RLS Doctors?
- Replies: 5
- Views: 2230
Nationally known RLS Doctors?
I just read a recent post about Dr. Earley and a lack of response. I spoke with Dr. Earley today via email, a few times based on his research of RLS and the hopes he can do better for me. His responses were quick, but not thorough as I am not a patient yet. I am considering Dr. B, Dr. Earley and oth...
- Mon Apr 23, 2012 9:22 pm
- Forum: General Topics: RLS
- Topic: books
- Replies: 12
- Views: 2923
Re: books
the name is just "Restless Legs Syndrome!"?
- Mon Apr 23, 2012 4:08 am
- Forum: Just Joined?
- Topic: Just Joined - My Thoughts and Questions
- Replies: 93
- Views: 19896
Re: Just Joined - My Thoughts and Questions
No, the meds don't change your ferritin level, its just that the higher the level is the less chance you have of augmentation when using requip.. Do you know what your ferritin level is because what is normal for most folks (perhaps around 20) is not high enough for us. Sorry to butt in, but that's...
- Sat Apr 21, 2012 3:58 pm
- Forum: General Topics: RLS
- Topic: My battle with RLS.. starting to lose faith for relief
- Replies: 46
- Views: 9987
Re: My battle with RLS.. starting to lose faith for relief
Beth, thanks for the post. To your point on the dreams and lack of sleep, yes I have experienced sleep paralysis, shouts and yells, and auditory hallucinations. I didn't know the terms you used but they fit exactly. scared the you know what out of me.. You are also dead on about Klonapin not doing a...