Search found 9 matches

by lynncomb
Wed Jul 20, 2016 11:58 pm
Forum: Everything Else...just no RLS!
Topic: Myofascial trigger points - I HATE them!
Replies: 8
Views: 13287

Re: Myofascial trigger points - I HATE them!

There is an amazing book that has helped me tremendously. I have been using it for almost 12 years, and it really works. My husband and daughter also use it, they have chronic pain from back problems. I am able to find any trigger point because the diagrams in this book are so good and very complete...
by lynncomb
Wed Jun 29, 2016 11:41 am
Forum: Just Joined?
Topic: New to forum, 35 yrs RLS
Replies: 21
Views: 3307

Re: New to forum, 35 yrs RLS

Forgot a few things. I have to be drug tested twice a year. DEA required. And each new year I have to fill our an electronic form about my symptoms, illness' and pains levels, a lot of questions. DEA and State required. So they are making it harder and harder to get pain medication. I have had docto...
by lynncomb
Wed Jun 29, 2016 11:01 am
Forum: Prescription Medications
Topic: Neupro and chronic fatigue
Replies: 4
Views: 807

Re: Neupro and chronic fatigue

I feel asleep driving and I was on 800mg of Neuronton. I went over this very seriously with my doctor and he is fairly sure it was daytime sleepiness. Since I only get 3 or maybe 4 hours of sleep a day, I have severe tiredness during the day. I also have chronic fatigue, which is a real illness. And...
by lynncomb
Tue Jun 28, 2016 4:49 am
Forum: Just Joined?
Topic: New to forum, 35 yrs RLS
Replies: 21
Views: 3307

Re: New to forum, 35 yrs RLS

One of the problems with doctors prescribing opiates, is that they have a tremendous street value, and people get them to sell for around $25.00 each. Thus, the label and large amount of drug seekers. My daughter works in a local ER and they have a regular group of seekers on a daily basis. So this ...
by lynncomb
Sat Jun 25, 2016 12:59 am
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 158
Views: 141308

Re: Is your DA causing augmentation?

I need to learn about augmentation for someone who has only take one Sinement, and one Mirapex. And I had symptoms all the time before that. It might be natural progression since I have had RLS/WED/PLMS for 58 years. Would someone point me to the places I need to go for more information. I have alre...
by lynncomb
Sat Jun 25, 2016 12:47 am
Forum: Just Joined?
Topic: Anyone else have symptoms this severe?
Replies: 21
Views: 4380

Re: Anyone else have symptoms this severe?

Thank you everyone, I have had people say they understand, but they don't. But, I know that all of you do and it helps. It really does. We could do a big post on uniformed doctors but it wouldn't accomplish anything. I have a favorite quote from Ann Landers, "Always remember that 50% of doctors...
by lynncomb
Thu Jun 23, 2016 8:26 pm
Forum: Just Joined?
Topic: Anyone else have symptoms this severe?
Replies: 21
Views: 4380

Re: Anyone else have symptoms this severe?

To Rustsmith, Well, I have not yet told you all the thngs I have. The list is very long. But, I think I could handle it if I could sleep. My PLMS index is 36, my arousal index is 24/hr. This means out of a 6 hour sleep study, I slept 40 actually minutes. I thought I was asleep, but they said that ab...
by lynncomb
Tue Jun 21, 2016 8:38 pm
Forum: Just Joined?
Topic: Anyone else have symptoms this severe?
Replies: 21
Views: 4380

Re: Anyone else have symptoms this severe?

Thanks, Badnights. What happens, probably the PLMS, I get extermely strong arm and legs jerks. I have whacked my husband a few times, knocked the cat into the air. And I can actually lift off the bed. I only do this for a few minutes then I get up. I also have RLS/PLMs all the time, and pain 24/7. A...
by lynncomb
Tue Jun 21, 2016 5:20 am
Forum: Just Joined?
Topic: Anyone else have symptoms this severe?
Replies: 21
Views: 4380

Re: Anyone else have symptoms this severe?

Yes, Yes and Yes, I have had RLS/PLMS for 58 years, since I was 7. My aunt told me, it runs in my family. The doctors have tried all the medications and nothing works, or I have severe psychotic reactions. I have pain so bad at night I wake up crying. I also have Diabetes type 2, fibromylagia, chron...