Search found 342 matches

by peanut1
Thu Mar 05, 2020 3:29 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 40
Views: 1410

Re: I'm finally getting an infusion

I know my primary care doctor was very concerned when my ferratin was at a whopping 670 not too long after my transfusion. I cut out the iron tablets right away and now just do the desiccated liver tabs which are like food. I called my neurologist (Ondo) who told me to get off the iron, but also sta...
by peanut1
Thu Mar 05, 2020 3:23 pm
Forum: Prescription Medications
Topic: Propanolol
Replies: 1
Views: 462

Propanolol

I wanted to know if anyone had tried this blood pressure medication and if so, how it interacted with the RLS. I'm trying to get ahold of my neuro, but for some reason the phone system isn't working.
by peanut1
Thu Mar 05, 2020 3:20 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

I also talked to my doctor (psychiatrist) about the ER and psychiatric medications, ADs in particular. She stated that most doctors don't take RLS seriously and recommended not to go to the ER for a psych breakdown unless I thought I would end up dead. I was surprised given the fact that she is work...
by peanut1
Thu Mar 05, 2020 3:14 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

For years I exercised up a storm, but due to problematic feet my exercise is now limited. I have switched coping skills from exercise to meditation. I am able to exercise some, but running and long walks are out of the question.
by peanut1
Tue Jan 07, 2020 5:17 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

Steve, I don't think there is anyway I can even try Wellbutrin or possibly any AD after reading about your horror story. Thankfully, the doctor stated they take RLS very serious since there is an increased rate of suicide among severe RLS patients. She wanted me to try the mood stabilizer topiramate...
by peanut1
Tue Jan 07, 2020 5:10 pm
Forum: General Topics: RLS
Topic: Emergency Room Nightmare
Replies: 23
Views: 1363

Re: Emergency Room Nightmare

Thank heavens Germany is a little more humane!
by peanut1
Tue Jan 07, 2020 5:09 pm
Forum: General Topics: RLS
Topic: Emergency Room Nightmare
Replies: 23
Views: 1363

Re: Emergency Room Nightmare

Steve, I really hope you sue them over this on principle if anything else. I had a situation where I went to the doctor to get some medication and was honest about the suicidal thought. I also had a counseling appointment right after that and told them and they ended up lying to me, calling the poli...
by peanut1
Mon Jan 06, 2020 1:54 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

The "problems" being insomnia of course. And none of use need that side effect around here!!!!
by peanut1
Mon Jan 06, 2020 1:53 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

One more quick thing on ADs. I read where problems can happen getting off the AD, but this is usually when someone has been on it longer than 4-6 weeks My solution for this is to only take the AD for 4-5 weeks, get off for a few months, and then take it for another 4-5 weeks or whenever I need a bre...
by peanut1
Mon Jan 06, 2020 1:43 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

Rustsmith/Steve, I'm curious as to why you can't take an AD and if so, which ones you tried that activated the RLS or insomnia. I would opt for tramadol, but I have tried it and got sick as a dog. I do some exercise ie walking, swimming, stationary or regular biking which helps a LOT. However, I can...
by peanut1
Sat Jan 04, 2020 4:08 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

I am happy to report that I got the heel surgery in June and the doctor did one FANTASTIC job. No more scooter!!!! Likewise, Dr. Ondo has helped me get the sleep under control with an iron transfusion and decent medication so I am sleeping. The depression is not as chronic as 2018 when I had it for ...
by peanut1
Sat Jan 04, 2020 4:04 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 77
Views: 25923

Re: RLS, Depression and Anti-depressants

I have recently been needing an antidepressant, but can't find one that will work with my insomnia and RLS. The one I took 30 years ago was a tricyclic (pamelor) and I had a terrible time with sleep when getting off the medication. That was when my sleep was pretty darn good. And that drug is one of...
by peanut1
Mon Jul 22, 2019 5:49 pm
Forum: General Topics: RLS
Topic: does surgeryincrease RLS permanently?
Replies: 2
Views: 599

does surgeryincrease RLS permanently?

I got surgery last month and my rls has never been this bad. I recently heard that surgery can permanently increase rls for some. curious to know what others have heard.
by peanut1
Sun Jul 21, 2019 8:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: iron tranfusion
Replies: 1
Views: 517

iron tranfusion

I have orders for it and am looking into it. New drug combo was working and now not working so I need to do something else.
by peanut1
Sun Jul 21, 2019 8:41 pm
Forum: General Topics: RLS
Topic: Inlfammation and RLS
Replies: 3
Views: 605

Inlfammation and RLS

I have been reading a few things that inflammation is tied to RLS. I eat a very clean diet, but have had an enormous amount of stressful events in my life and stress increases inflammation. Curious to know if anyone has looked into this possible link.