Search found 272 matches

by peanut1
Sat Jun 17, 2017 6:57 pm
Forum: Everything Else...just no RLS/WED!
Topic: Neighbors from you-know-where, anyone?
Replies: 25
Views: 738

Re: Neighbors from you-know-where, anyone?

Yes, how is it going for you now leggo?

Kathy
by peanut1
Sat Jun 17, 2017 6:55 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 14
Views: 375

Re: Rate of Ferritin Decline

Thank you! I have a lot of hope for managing these symptoms better IF I can get the transfusion.
by peanut1
Fri Jun 16, 2017 4:07 pm
Forum: Prescription Medications
Topic: First night of methadone
Replies: 19
Views: 193

Re: First night of methadone

I tried methadone a few years ago and got a grand total of 0 hours of sleep. I did this twice, even cutting the dosage and taking it in the morning and still got 0 hours of sleep. I wish I could find a med that consistently worked. It's like I'm afraid to take meds more than a few nights in a row fo...
by peanut1
Fri Jun 16, 2017 4:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 14
Views: 375

Re: Rate of Ferritin Decline

I'm hoping to get my first transfusion this year. Have an appointment schedule (on the books) with William Ondo in September. It would be interesting to see if people were semi cured with the transfusions coupled with a good diet. With that said, I realize there are some here where diet does not imp...
by peanut1
Fri Jun 16, 2017 3:41 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 44
Views: 3534

Re: Another year of relief

Congratulations on the relief! I know I have to be on a paleo diet or I'm in serious RLS pain. I looked at the low oxalate diet and it looks like I'm not eating high oxalate foods anyway. But I could try cutting out walnuts and advacados for a while and see what happens. Like the others, I am skepti...
by peanut1
Fri May 05, 2017 4:43 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Raising iron levels
Replies: 39
Views: 1334

Re: Raising iron levels

I was doing enzymes with my iron for a couple of weeks and THOUGHT I noticed a difference, but then got off it and have not tracked it since. Not sure if the enzymes could help digest the iron better which might help get to the brain. Will let you know if I see any significant improvement, but first...
by peanut1
Fri May 05, 2017 4:41 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: fresh coconut
Replies: 3
Views: 390

Re: fresh coconut

It doesn't necessarily help the RLS, but what it does do is raise energy levels which can be a good substitute for caffiene, and it's a good source of non heme iron and it's generally good for you. It also is high fat, but not the kind that is bad for you. Right now, I'm doing some research on the f...
by peanut1
Tue Apr 25, 2017 1:26 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 113
Views: 18916

Re: Who is your favorite doctor?

I'm glad it's helpful for her. Also, the weather is much nicer in CO so I'm sure your enjoying that too.

Kathy
by peanut1
Fri Apr 21, 2017 7:53 pm
Forum: General Topics: RLS/WED
Topic: Two hours of sleep
Replies: 82
Views: 2022

Re: Two hours of sleep

Deb,
Yes, I've been there many more times than I would have liked. It sounds like something else is going on that is exacerbating the RLS. I'm not sure where you would get that checked out i.e. neurologist or orthopedics?

Kathy
by peanut1
Fri Apr 21, 2017 4:53 pm
Forum: Everything Else...just no RLS/WED!
Topic: Boston - One Year Ago
Replies: 21
Views: 2240

Re: Boston - One Year Ago

Steve,
This is the first time reading this thread. All I've got to say is WOW! Thank you so much for sharing this.

Kathy
by peanut1
Fri Apr 21, 2017 4:46 pm
Forum: Everything Else...just no RLS/WED!
Topic: Neighbors from you-know-where, anyone?
Replies: 25
Views: 738

Re: Neighbors from you-know-where, anyone?

Leggo,
This sounds like a very stressful situation! I do congratulate you on reporting the child incident to the proper authorities as stressful as that may be.
Kathy
by peanut1
Fri Apr 21, 2017 4:25 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 113
Views: 18916

Re: Who is your favorite doctor?

Steve, Well that makes perfect sense. I didn't realize that you and your wife had moved. I'm also assuming that MMJ means medical marijuana. Let me know if it's something else. My cousin has had MS for many many years and functions quite well. However, I know there are different versions of the cond...
by peanut1
Fri Apr 21, 2017 2:34 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 113
Views: 18916

Re: Who is your favorite doctor?

thanks all! I'm trying not to get too excited until I actually get the transfusion scheduled.

Steve,
Curious why you changed doctors.

Kathy
by peanut1
Thu Apr 20, 2017 4:04 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 113
Views: 18916

Re: Who is your favorite doctor?

Bloody be--I didn't know that the foundation relocated to my city! Yes, I just called Dr. Ondo and am in the process of getting records transferred. The office staff stated that they give regular transfusions--I'm so friggin excited!!!!

THANK YOU SOOOOO MUCH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
by peanut1
Thu Apr 20, 2017 3:47 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 113
Views: 18916

Re: Who is your favorite doctor?

Thanks Steve, I will give the foundation a call. Whatever happened to Dr. Ondo? Did he retire? I don't see him anywhere.
Kathy

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