Restless Legs Syndrome (RLS) Discussion Board

Steve, "Often my legs are not that bad, but somehow I know that I will be up all night." That is interesting. I wonder if most of us have some sort of secondary condition that kicked the RLS into severe mode OR is exacerbating it at the very least. I wonder if this secondary condition of mine be why...

Debbluebird,

How did the move go?

There are times I can somehow get the RLS to calm down and I'm still wide awake as if I took an amphetamine. I always thought this was part of the RLS, but my doctor (william ondo, RLS quality specialist) is saying this is something else and was honest enough to say he didn't know what it was. Whate...

I am at the max amount of my medications (horizant/gabapentin and balsomra) and my doctor is not offering to have me try anything else. I'm thinking about asking him about Lyrica and alternating it with the horizant. It would be nice to have either clonazepam or something else as an add on but docto...

Thanks for keeping us in the loop. Wishing you lots of healing with your cancer treatments. My biggest fear is that I will get a stroke and won't be able to move my legs at all and I will be in 24/7/365 pain without any hope in sight.

Honestly I don't think it was the magnesium or calcium since I take those regularly and have been for many years. I like the magnesium because it's calming. Licorice root is almost like taking meds for anxiety, but you have to be careful how much you take (or there are highly damaging effects long t...

Last night was a bad night, but I'm still hopeful it can help a little. I was surprised that it helped as much as it did for a whole week. I think it's important be open but also to keep the expectations in balance, particularly for us long time sufferers where nothing seems to work. There were thin...

Holy Crap! The celery juice has actually been working. Who would have believed it?

There are things on this diet that activates my RLS i.e. potatoes, bread etc. Hence I'm not going to try it.

Yes, a lot of the things he stated, really didn't add up like apple cider vinegar isn't good for you or doesn't do anything.
At the very least I can enjoy a nice beet or carrot juice with my new blender if the celery juice doesn't give me a little more energy after a sleepless night.

Betty,

Definitely going with the flow. I guess I can't give up hope entirely that I won't be able to at least manage the RLS a little better.

Ann,

I am very grateful for my meditation practice now.

I was in the bookstore the other day, reading a cook book when I glanced at a book called "medical medium". Of course, I had to find out what this was about. Apparently, he is a medical psychic and has helped a lot of people. I thumbed through the book and started getting hopeful: maybe this severe ...

I wish I knew the answer to that. I really think the high stress in my life weakened something that kicked the RLS into severe, 9 years ago. But what is that something called? My RLS savvy doctor (William Ondo) said there is no way of knowing. The one thing I did accomplish in the past 9 years is dr...

I was on the keto diet for a year and recently got off. I can only do Keto or paleo diet or I will get about 0 hours a night sleep with meds.

I know my primary care doctor was very concerned when my ferratin was at a whopping 670 not too long after my transfusion. I cut out the iron tablets right away and now just do the desiccated liver tabs which are like food. I called my neurologist (Ondo) who told me to get off the iron, but also sta...