Search found 13 matches
- Wed Jul 06, 2011 10:24 am
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thanks, Betty...for your comments and you certainly have my sympathy. My friend also often suffers insomnia which may be the result of meds. Specifically, right now, she is using Neurontin since it is the ony one she has been able to get insurance help to pay for. It appears that both Mirapex and it...
- Tue Jul 05, 2011 3:34 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thank you, Ann...your reply is very helpful. My friend has heard of a number of different things and tried some over the years with little success. From what I can tell, her RLS may not be as chronic as some others but it is bad when it does occur. Fortunately, for her, she has nights when she does ...
- Mon Jul 04, 2011 11:46 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
- Mon Jul 04, 2011 12:22 am
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thank you so much, Beth...you have my friend nailed pretty well. She has accepted that RLS is her fate and is coping with it reasonably well considering everything with the help of meds and ativan to sleep. I intend to be very patient and gentle in urging her to seek relief. She woujld love to find ...
- Sun Jul 03, 2011 11:08 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Again, thank you Polar Bear and Betty....for the very helpful information. I am sharing everything I learn with my dear friend and she is very appreciative, too. We will begin planning out a strategy for next steps soon. I will always be open to any information that anyone on the Board has to share ...
- Sun Jul 03, 2011 1:42 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thanks, Betty...I will have to inquire more about this with her but from what she has told me, her insurance paid for the Mirapex and for Requip at some point along the way but have recently rejected paying for it even though properly prescribed by her physician. I do not think she has appealed this...
- Sun Jul 03, 2011 10:24 am
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thank you so much Susan, Beth and Betty for such thoughtful and helpful responses. I suspected about as much from the Goodwin claims...but I feel that I must explore as much as possible from all sides in order to be able to offer informed help to my friend. I really appreciate all of your recommenda...
- Sat Jul 02, 2011 5:32 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
- Sat Jul 02, 2011 1:26 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Sedorum
Any kind of indepth research into a subject always yields some things that sound too good to be true and may not be. I came across a product called SEDORUM which is essentially vitamins, minerals and other things. This particular one seems to contain: Folic acid, Vit. B12, Iron, Magnesium, Calcium, ...
- Sat Jul 02, 2011 11:14 am
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
I continuem to be greatly impressed by the quality responses on this forum. Very good and helpful stuff....Everyone is supplying some really good information. I think my friend has simply resolved that his is her lot in life to suffer RLS. So, she has not been very aggressive about researching and f...
- Sat Jul 02, 2011 9:33 am
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thanks for the very, very helpful information about ferritin....! She is now equipped with a better understanding of what to ask the doctor to order in her next blood test. Her present GP and consulting doctor is an Internist but I am not sure he is up on all the latest information about RLS. Should...
- Fri Jul 01, 2011 6:10 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
Thank you!
I really appreciate the prompt and helpful replies. I have downloaded and printed the Mayo clinic algorithm plus the RLS Medical Bulletin and will spend considerable time reading and dissecting the contents. The suggestion about testing her ferritin level is an excellent one and a good place to star...
- Fri Jul 01, 2011 1:51 pm
- Forum: Just Joined?
- Topic: New Member
- Replies: 30
- Views: 6820
New Member
I have recently reconnected with a dear lady friend that I grew up with. We both turn 70 this year. I discovered she has suffered from RLS for the last 30 years or so. I am just learning about RLS and hope to become much more familiar with her specific symptoms and the things she has tried as well ...