Search found 19 matches

by Dr. Grammy
Sat Aug 22, 2020 10:00 am
Forum: Prescription Medications
Topic: Need pain med that doesn't cause RLS rebound!
Replies: 2
Views: 425

Re: Need pain med that doesn't cause RLS rebound!

Thank you! I'll give naproxen a try. I have an appt. to see my PCP, but it's not until mid-September.
by Dr. Grammy
Fri Aug 21, 2020 6:01 pm
Forum: Prescription Medications
Topic: Movement Disorder Specialist--Really?
Replies: 6
Views: 528

Re: Movement Disorder Specialist--Really?

@ Stainless: You mentioned getting "all bound up" on codeine. Just thought I'd mention that a laxative called Movantik was designed for people taking any sort of opioid. My gastroenterologist prescribes it, and it works wonders.
by Dr. Grammy
Fri Aug 21, 2020 5:49 pm
Forum: Prescription Medications
Topic: Need pain med that doesn't cause RLS rebound!
Replies: 2
Views: 425

Need pain med that doesn't cause RLS rebound!

I have severe RLS plus arthritis. If I exert myself during the day, pain from spinal stenosis keeps me awake much of the night, even if my body isn't jerking. I take 30 mg of methadone daily for my severe RLS (10 mg morning, 20 at night), plus as many 100 mg gabapentin as I care to take for breakthr...
by Dr. Grammy
Mon Mar 03, 2014 9:44 pm
Forum: General Topics: RLS
Topic: I'm back! ..... and scared
Replies: 112
Views: 13079

Re: I'm back! ..... and scared

Dr. Buchfuhrer has a book that recommends methadone as a last resort; the book's now in its second edition. "Clinical Management of Restless Legs Syndrome" (Hening, Buchfuhrer, & Lee). I showed this to my new sleep doc, and he agreed to prescribe methadone. He sent me to a neurologist ...
by Dr. Grammy
Mon Mar 03, 2014 9:38 pm
Forum: General Topics: RLS
Topic: Oxygen deprivation and RLS??
Replies: 4
Views: 908

Oxygen deprivation and RLS??

My RLS began soon about the same time as I had two experiences. 1) I had fairly severe but undiagnosed sleep apnea, probably for several years. In 2001, I woke choking and gasping in the night. The only thing I could think was heart attack, so called an ambulance, but had no heart problems so they s...
by Dr. Grammy
Sun Dec 11, 2011 10:24 am
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

update...

I'm debating that right now. The symptom I'm having as I type is horrible--but it's not RLS. I'm having those full-body spasms associated with Requip withdrawal. What I'm NOT having at this moment is restless legs. So today I'll see if I can stand daytime withdrawal symptoms, or if I give in and tak...
by Dr. Grammy
Sun Dec 11, 2011 7:53 am
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

Update--now taking Percocet

Thanks to both of you who've replied! I feel much better without Requip at night! For two days now, I've managed to get by on just one .5 mg dose during the day. We'll see how that goes this week. If I can manage that, my next trick will be to see if I can push my bedtime back. Somehow, it ended up ...
by Dr. Grammy
Sat Dec 10, 2011 2:35 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

Update--now taking Percocet

My neurologist gave up on me--and I gave up on her. That is, when I told her I was having severe augmentation on Requip, she said she had NOT prescribed that much, so I must have gotten it from some other doctor. Not so! I own a pill bottle with that exact dose on it, and her name as the prescriber....
by Dr. Grammy
Wed Aug 31, 2011 9:56 am
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

New topic: how can I tell if Synthroid is helping?

Fascinating! This really seems to fit what I'm going through. When I can get a new appt with my neurologist, I'll ask about opioids. A related question: I recently talked my PCP into prescribing Synthroid, since my TSH was mildly elevated. As you know, I'm taking Requip 24/7 and getting major myoclo...
by Dr. Grammy
Tue Aug 30, 2011 8:07 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

I'm probably having augmentation on the Requip, then. The symptoms have been increasing steadily ever since I started it--first I needed meds just at night, when a daytime dose, then another and another. I never used to wake up at 4am with full-body jerks; now I do. I remain concerned about opioids....
by Dr. Grammy
Tue Aug 30, 2011 9:55 am
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

I keep wondering if my need to gradually start taking Requip around the clock reflects augmentation.

I'm wondering if I might be able to take an opioid only at night, or if needing Requip 24/7 (in ever-increasing doses) would mean I'd need an opioid 24/7 (in ever-increasing doses).
by Dr. Grammy
Mon Aug 29, 2011 4:12 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

Does hydrocodone truly leave you clearheaded? Side effects of Requip and/or neurontin--feeling vague, confused, and woozy--are making daily life a joyless chore. I felt unbearably sleepy and confused on clonazepam, but my current regimen is almost worse. I can't think creatively. I can only do routi...
by Dr. Grammy
Thu Aug 18, 2011 5:30 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

Excellent--I've printed it out, saved it as an internet Favorite, and also saved it as a computer file for future reference!
by Dr. Grammy
Thu Aug 18, 2011 5:27 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

Thanks--I know it's not a good med. But if it winds up being a hoop I have to jump through, I'll give it a try, and as soon as the 1st side effect emerges I'll call the neurologist, explain what's happening, and tell her I'm discontinuing it. The first time I tried it, I didn't take it as directed. ...
by Dr. Grammy
Thu Aug 18, 2011 5:13 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7135

Thank you--I will definitely consider opioids. I'm relatively new to this neurologist, and suspect she will want me to give Sinemet and probably something else a try before considering opioids. We'll see. Doing her bidding for a few months is part of gaining her trust and goodwill. In the meantime, ...