Search found 17 matches

by SleepyCharlie
Mon Jan 29, 2024 2:38 pm
Forum: Prescription Medications
Topic: Buprenorphine SL vs transdermal, ? tooth damage
Replies: 6
Views: 3688

Re: Buprenorphine SL vs transdermal, ? tooth damage

No problems with teeth so far, have been on buprenorphine SL films for 10 months. Do worry about unexplained weight gain and belly fat. Sleepycharlie
by SleepyCharlie
Mon Jan 29, 2024 2:33 pm
Forum: Prescription Medications
Topic: Buprenorphine
Replies: 1
Views: 240

Buprenorphine

I have taken buprenorphine (film under tongue) with great success for 10 months. Rls is completely under control but side effects include swollen joints upon waking - for about 30 minutes and possibly sudden gaining of belly fat in the last few months. Anyone else with those side effects? Maybe it w...
by SleepyCharlie
Fri May 15, 2020 10:36 am
Forum: Prescription Medications
Topic: severe withdrawal from Mirapex
Replies: 8
Views: 4155

severe withdrawal from Mirapex

I have taken mirapex or pramipexole for twenty years, the past ten at .25 mg once a day. I recently have had severe problems with postural hypertension at night and have just stopped taking the mirapex, suspecting it is the cause. I am having severe withdrawal. Cannot sleepat all due to magnified sy...
by SleepyCharlie
Fri May 01, 2020 3:01 pm
Forum: Prescription Medications
Topic: side effects of longterm use (20 years) of Pramipexole
Replies: 1
Views: 443

side effects of longterm use (20 years) of Pramipexole

I have taken Mirapex for the past 20 years, 10 years gradually increasing the dose, then cutting it down to .25 mg once daily plus Vicodin (10-15 mg daily). Twice this last month I have experienced attacks in the night upon rising quickly to go to the bathroom. I feel very lightheaded, legs are very...
by SleepyCharlie
Wed Feb 06, 2019 12:12 am
Forum: Prescription Medications
Topic: Hydrocodone vs. oxycodone
Replies: 6
Views: 832

Hydrocodone vs. oxycodone

I have been taking 15 mg Vicodin daily at 8 pm for 9 years along with .25 of Mirapex to control retractable RLS. I wonder if it would be better to switch to oxycodone to avoid all of the acetominaphin in the Vicodin. Any advice? Or is a different opiate a better choice?
by SleepyCharlie
Mon Nov 13, 2017 8:55 pm
Forum: Prescription Medications
Topic: Surgery, RLS and opioids
Replies: 2
Views: 905

Re: Surgery, RLS and opioids

Thank you so much. You brought up a few issues I hadn't thought of. I will talk to my physician at the Pre-op appointment.

Sleepiecharlie
by SleepyCharlie
Fri Nov 10, 2017 8:35 pm
Forum: Prescription Medications
Topic: Surgery, RLS and opioids
Replies: 2
Views: 905

Surgery, RLS and opioids

I have refractory RLS and need 15mg of Vicodin and .25 Mirapex daily at 8 pm to control symptoms. I have taken this same dose for 7 years now. I will have sinus surgery in two weeks and am concerned about post surgical pain. Generally Vicodin would be used, but I know from prior experience that my p...
by SleepyCharlie
Sat Jun 17, 2017 3:05 am
Forum: General Topics: RLS
Topic: RLS support group meetings
Replies: 1
Views: 995

RLS support group meetings

I am the program director for our RLS support group in the Pacific Northwest. I would like to use the webinars at our general meetings. Does anyone out there have a good way to project the webinar/slides content to a large group? Any other suggestions about how I could present the webinar to a group...
by SleepyCharlie
Tue Aug 09, 2016 3:23 pm
Forum: Prescription Medications
Topic: Leg cramping in early morning and tingling in hands and feet
Replies: 3
Views: 651

Leg cramping in early morning and tingling in hands and feet

I have some odd symptoms developing over the past year or so. I wake up in the night, and especially early morning, with cramping beginning in feet, involving legs and even hands. After I've been up awhile the cramping lessens, but I'm left with tinginling in hands and feet for most of the day. I ha...
by SleepyCharlie
Thu Jun 09, 2016 7:50 pm
Forum: Prescription Medications
Topic: Hydrocodone
Replies: 4
Views: 655

Hydrocodone

My friend has taken hydrocodone in the past to control her RLS. Our doctor retired, and she cannot find a new one who will prescribe it to her now. Have the rules changed? She has been to three doctors who prescribed other medicaitons with terrible side effects. she has been suicidal over this. What...
by SleepyCharlie
Sat Oct 13, 2012 1:50 pm
Forum: Prescription Medications
Topic: Anyone else tried vicodin?
Replies: 19
Views: 4468

Re: Anyone else tried vicodin?

I have been medicated for RLS/WED for the past 20 years. Sinemet worked for ten, then Mirapex worked for 10, the past two years I have been taking .25 mg Mirapex plus 10 mg Vicodin at 8 PM to control symptoms. It works very well. I am not crazy about taking an opiate on a regular basis, but do not h...
by SleepyCharlie
Mon Aug 29, 2011 6:25 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7802

Yes, I feel absolutely clear-headed after taking hydrocodone. And I've taken it now for 2 1/2 years. My doctor said that it is out of my system in 4-6 hours, and I take it at 8:00 PM each night.

Sleepy Charlie
by SleepyCharlie
Mon Aug 29, 2011 2:26 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 37
Views: 7802

Dr. Grammy, i came across your messages this morning, and wish to add my vote for opiate treatment for your RLS. I have needed medication to control my RLS for over twenty years. Sinemet worked for 10, then I experienced augmentation and switched to Mirapex, which lasted another 10 years. In respons...
by SleepyCharlie
Fri Aug 26, 2011 6:30 pm
Forum: Just Joined?
Topic: New to this site
Replies: 9
Views: 1604

Ann,

Thank so much for that information. I actually have another book by Buchfuher, Restless Legs Syndrome (2007). I will take another look at his chapter on augmentation.

SleepyCharlie
by SleepyCharlie
Fri Aug 26, 2011 3:10 pm
Forum: Just Joined?
Topic: New to this site
Replies: 9
Views: 1604

I had not heard of alternating opioids and Mirapex. I will share that idea with my doctor. She believes that the opioids are safer to take than Mirapex, partially because we have used the opioids for many years and know more about them. We don't really know the long-term effects of Mirapex on the br...