Search found 76 matches

by TimG
Mon Feb 10, 2020 7:30 am
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 1909

Re: Iron Infusion Worked for me

Don't some Naturopathic doctors do IV infusions, inckuding iron? If do,that might be thd easiest approach. I was able to boost my ferritin from less than 20 to 100 by using oral iron supplements. It was a long process but it worked. I've been taking 0.125 mg of pramipexole off snd on for 10 years wi...
by TimG
Sun Dec 22, 2019 5:30 am
Forum: Physical Treatments
Topic: 'Caffeine and RLS
Replies: 10
Views: 1177

Re: 'Caffeine and RLS

I have eliminated many things over the years - rarely does anything seem to matter except ferritin level, excessive exercise (and only for a few days) or things to do with my skin - dry skin, tight clothes, scratchy items that tough me, something cold - and as soon as they are reduced or removed, t...
by TimG
Sun Dec 08, 2019 2:30 am
Forum: Physical Treatments
Topic: 'Caffeine and RLS
Replies: 10
Views: 1177

'Caffeine and RLS

RLS seems to be a mystery malady in many ways and so many folks have found anecdotal evidence that certain physical treatments work for them. I've tried some, not others. Some have worked a little, some have not. I'm wondering if anyone has had problems with caffeine intake and RLS. If I limit caffe...
by TimG
Thu Nov 14, 2019 5:18 am
Forum: Prescription Medications
Topic: Statins
Replies: 3
Views: 420

Statins

I've been taking 0.125 mg pramipexole since 2011 I take it as needed when I have restless legs. Thankfully this has worked successfully for about 8 years. Mostly symptoms are mild, occasionally moderate and infrequently severe. I also find that moderate regular exercise helps. I have a medication qu...
by TimG
Thu Oct 04, 2018 7:22 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 517

Re: Personal Update

Beth--Thanks for your reply and helpful suggestions. Yes, you are right that I should give up blood donation, based on my experience of a year without doing so. And thanks for your advice about further increasing ferritin to eliminate the need for pramipexole.
by TimG
Sat Sep 29, 2018 1:06 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 517

Re: Personal Update

Thanks for your response, Ann. I hope you are right about the pramipexole
by TimG
Fri Sep 28, 2018 3:53 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 517

Personal Update

I've been taking 0.125 mg of pramipexole for restless legs for about 7 years. I take it intermittently as needed to control symptoms, but not on a daily basis. I have not experienced augmentation and still obtain relief with the same dose as I started with. Ferritin level is at its highest level- 98...
by TimG
Tue May 23, 2017 4:05 am
Forum: Everything Else...just no RLS/WED!
Topic: Let's Talk Table Tennis
Replies: 10
Views: 3451

Let's Talk Table Tennis

I started learning to play table tennis a couple years ago. What a fun sport it is! It's claimed that this is one of the best active sports for seniors like myself to play, engaging both brain and body. I've been taking lessons, which has really improved my game. Any other table tennis players out t...
by TimG
Tue May 23, 2017 3:17 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 63
Views: 8458

Re: Rate of Ferritin Decline

I have never had an IV iron infusion. My experience has been that daily iron supplements ( 325 mg ferrous sulfate) have sufficed to raise and sustain my ferritin level high enough to keep RLS symptoms minimized most nights. On those nights when symptoms are increased I take 0.125 mg of pramipexole. ...
by TimG
Thu Dec 24, 2015 6:12 am
Forum: Augmentation
Topic: Topic of the Year
Replies: 50
Views: 23895

Re: Topic of the Year

I've been on pramipexole ( 0.125 mg) for about 4 years. My ferritin was about 20 when I started, and has now increased to almost 100 with a daily 325 mg ferrous sulfate tablet. Thankfully, I have not experienced DA augmentation.
by TimG
Tue Jun 02, 2015 6:06 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin Nearing 100
Replies: 18
Views: 5417

Re: Ferritin Nearing 100

Are you experiencing any improvements to how you feel? I started taking iron a month or so ago and the daily fatigue I felt has dissapeared. It's a huge difference for me. I also have less achiness and pain during the day. I will have my blood rested in 3 months. My level was 33. It's interesting t...
by TimG
Tue Jun 02, 2015 6:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin Nearing 100
Replies: 18
Views: 5417

Re: Ferritin Nearing 100

badnights wrote:What type of iron are you using?


Ferrous sulfate tablets (325 mg, which is 65 mg of elemental iron)
by TimG
Wed May 27, 2015 4:37 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin Nearing 100
Replies: 18
Views: 5417

Ferritin Nearing 100

I've been making a concerted effort since February to raise my ferritin level to 100 by taking 65 mg of iron daily. I'm nearing my goal with a ferritin of 81. My ferritin was low normal at the start.

Hip, hip, hooray \O/ \O/ \O/
by TimG
Wed May 27, 2015 4:27 am
Forum: General Topics: RLS/WED
Topic: Genetics and RLS/WED
Replies: 6
Views: 789

Re: Genetics and RLS/WED

Steve, When you log in to your 23 and Me account, you can access a section called Raw Genetic Data. There they list each chromosome and the genotypes on each. The list is very long and not useful. You can also enter a gene or SNP (Single Nucleotide Polymorphism) search by entering the number your lo...
by TimG
Tue May 26, 2015 4:22 pm
Forum: General Topics: RLS/WED
Topic: Genetics and RLS/WED
Replies: 6
Views: 789

Genetics and RLS/WED

There have been a number of research studies linking RLS/WED with specific genes. I am a member of '23 and me' genetic testing service and was able to compare my own genetic data with the gene regions (SNPs) associated with an increased probability of inherited restless legs syndrome. A number of my...