Search found 84 matches

by TimG
Sat Oct 03, 2020 7:41 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin increased with oral iron, now what?
Replies: 23
Views: 1672

Re: Ferritin increased with oral iron, now what?

I am one of those with RLS (mild to moderate) who has benefited from oral iron. My ferritin was 19 when I first started taking an oral iron supplement. It has increased to about 100 and my symptoms have been alleviated to the point where I only take pramipexole 0.125 mg as needed.
by TimG
Sun Aug 23, 2020 10:13 pm
Forum: Physical Treatments
Topic: BEST MATTRESS FOR RLS
Replies: 11
Views: 609

Re: BEST MATTRESS FOR RLS

We have a firm mattress that I like. When we replace it we plan to get a split King because my movements can wake up my wife.
by TimG
Sun Aug 23, 2020 6:03 am
Forum: General Topics: RLS
Topic: Coronavirus Shutdown and RLS
Replies: 3
Views: 271

Coronavirus Shutdown and RLS

My wife and I have been isolating at home since March, going out once a week for groceries. One thing this time of changes has resulted in is a more routine life. Bedtime the same. Wakeup the same. Daily routine the same. Exercise the same. Diet the same, etc. Interestly, this has had a lessening ef...
by TimG
Tue Jun 30, 2020 1:28 am
Forum: Augmentation
Topic: Pramipexole augmentation
Replies: 32
Views: 2632

Re: Pramipexole augmentation

Beth,

It could be that because I am taking a low dose of 2.5 mg I don't have any side effects related to RLS. I'm one of those people for whom a low dose of some medications seems to work as well as the standard dose.
by TimG
Sun Jun 28, 2020 2:03 am
Forum: Augmentation
Topic: Pramipexole augmentation
Replies: 32
Views: 2632

Re: Pramipexole augmentation

Beth,

Another avenue I have explored is Ambien. When I occasionally use this, either because I can't get to sleep or wake up and am unable to get back to sleep, it works well and seems to calm my restless legs. Also it acts in about 20 minutes.
by TimG
Sat Jun 20, 2020 1:52 am
Forum: Augmentation
Topic: Pramipexole augmentation
Replies: 32
Views: 2632

Re: Pramipexole augmentation

Beth, Yes, it is sometimes a problem to put up with the wait for the pramipexole to kick in, and I don't want to take it every night just in case. It seems that about half the time I need a pramipexole I get symptoms early enough in the evening that I can take a tablet a couple of hours before going...
by TimG
Fri Jun 05, 2020 9:15 pm
Forum: Augmentation
Topic: Pramipexole augmentation
Replies: 32
Views: 2632

Re: Pramipexole augmentation

Thanks for the helpful information, Steve. That's a relief. I take an iron supplement to keep ferritin level at 100; it's remained steady for over a year now, so I am able to cut back on 0.125 mg pramipexole dose from daily to as needed (on average 2-3 times per week). I consider myself lucky that R...
by TimG
Fri Jun 05, 2020 8:30 am
Forum: Augmentation
Topic: Pramipexole augmentation
Replies: 32
Views: 2632

Re: Pramipexole augmentation

I have been taking 0.125 mg pramipexole for 10 years. Since getting my ferriin level to 100 a few years ago I now take pramipexole as needed. Is it inevitable that i will eventually augment?
by TimG
Mon Feb 10, 2020 7:30 am
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2624

Re: Iron Infusion Worked for me

Don't some Naturopathic doctors do IV infusions, inckuding iron? If do,that might be thd easiest approach. I was able to boost my ferritin from less than 20 to 100 by using oral iron supplements. It was a long process but it worked. I've been taking 0.125 mg of pramipexole off snd on for 10 years wi...
by TimG
Sun Dec 22, 2019 5:30 am
Forum: Physical Treatments
Topic: 'Caffeine and RLS
Replies: 10
Views: 1620

Re: 'Caffeine and RLS

I have eliminated many things over the years - rarely does anything seem to matter except ferritin level, excessive exercise (and only for a few days) or things to do with my skin - dry skin, tight clothes, scratchy items that tough me, something cold - and as soon as they are reduced or removed, t...
by TimG
Sun Dec 08, 2019 2:30 am
Forum: Physical Treatments
Topic: 'Caffeine and RLS
Replies: 10
Views: 1620

'Caffeine and RLS

RLS seems to be a mystery malady in many ways and so many folks have found anecdotal evidence that certain physical treatments work for them. I've tried some, not others. Some have worked a little, some have not. I'm wondering if anyone has had problems with caffeine intake and RLS. If I limit caffe...
by TimG
Thu Nov 14, 2019 5:18 am
Forum: Prescription Medications
Topic: Statins
Replies: 3
Views: 495

Statins

I've been taking 0.125 mg pramipexole since 2011 I take it as needed when I have restless legs. Thankfully this has worked successfully for about 8 years. Mostly symptoms are mild, occasionally moderate and infrequently severe. I also find that moderate regular exercise helps. I have a medication qu...
by TimG
Thu Oct 04, 2018 7:22 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 585

Re: Personal Update

Beth--Thanks for your reply and helpful suggestions. Yes, you are right that I should give up blood donation, based on my experience of a year without doing so. And thanks for your advice about further increasing ferritin to eliminate the need for pramipexole.
by TimG
Sat Sep 29, 2018 1:06 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 585

Re: Personal Update

Thanks for your response, Ann. I hope you are right about the pramipexole
by TimG
Fri Sep 28, 2018 3:53 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 585

Personal Update

I've been taking 0.125 mg of pramipexole for restless legs for about 7 years. I take it intermittently as needed to control symptoms, but not on a daily basis. I have not experienced augmentation and still obtain relief with the same dose as I started with. Ferritin level is at its highest level- 98...