Search found 32 matches

by jittery girl
Fri Jun 15, 2012 7:25 pm
Forum: Prescription Medications
Topic: Abilify
Replies: 33
Views: 5654

Re: Abilify

Don't be afraid of taking a drug suggested by your M.D. because it is not approved for RLS. Many, many drugs are used "off label" for everything from cancer to HIV to arthritis to RLS. You are going to have to experiment. The major them I keep hearing is the opiates work. You don't have to...
by jittery girl
Sat May 26, 2012 11:34 pm
Forum: Prescription Medications
Topic: LYRICA??
Replies: 31
Views: 5974

Re: LYRICA??

New Update! Back on Lyrica. Back on Latuda. After only 4 days went downhill fast. So, will need to lose weight by exercise and watch the cravings that are so much more pronounced with Lyrica. The leg "jitters" that came on in the early evening have gone away. Slept like a baby after restar...
by jittery girl
Thu May 24, 2012 2:11 pm
Forum: Prescription Medications
Topic: LYRICA??
Replies: 31
Views: 5974

Re: LYRICA??

To update my Lyrica use: I have stopped taking Lyrica because it does not help the RLS (Tramadol works great for me) and I have gained a lot of weight. I have not had withdrawal symptoms, other than not falling asleep as well as I did. I will wait out this side effect, attempt to calm myself for sle...
by jittery girl
Sat Apr 28, 2012 5:37 pm
Forum: Everything Else...just no RLS/WED!
Topic: Share what you ENJOY doing when you just can't sleep....
Replies: 10
Views: 2533

Re: Share what you ENJOY doing when you just can't sleep....

Kimberly -
I will definitely try the loud music and rocking. I use my iTunes when I walk on my treadmill, so I am set up to listen to music at night when RLS strikes. I will make a special playlist with some good rocking' tunes to play. OR - do you recommend quiet music?
by jittery girl
Sat Apr 28, 2012 12:41 pm
Forum: Prescription Medications
Topic: Abilify
Replies: 33
Views: 5654

Re: Abilify

"From reading these postings, it seems that there is no relief through medications." Yes, sleuth, there is relief. I found it with Tramadol. Very little side effects. I have a severe form of RLS, with crazy horrible miserable nights. Please don't give up. I am also limited with what I can ...
by jittery girl
Sat Apr 28, 2012 12:30 pm
Forum: General Topics: RLS/WED
Topic: Augmentation
Replies: 32
Views: 6980

Re: Augmentation

Doctors have become more cautious about prescribing Tramadol. There is research about depression and Tramadol is pretty easy to overdose. So if you have had suicide attempts or even thoughts of suicide, the doctor won't want you to have large amounts of the drug in your possession. You most likely w...
by jittery girl
Sat Apr 28, 2012 12:16 pm
Forum: General Topics: RLS/WED
Topic: stupid lapse !!
Replies: 5
Views: 805

Re: stupid lapse !!

to Dogeyed - If you have not already found something that works, I second the Tramadol idea. It works great for me as long as I take it like clockwork at 1700 hrs. Before any symptoms begin.
by jittery girl
Sat Apr 28, 2012 12:12 pm
Forum: General Topics: RLS/WED
Topic: Is it really that bad?
Replies: 30
Views: 6328

Re: Is it really that bad?

I know how bad everyone who posted here suffers. I have the same panic reaction when I feel it coming on and knowing the next five hours are going to be misery. I just wanted to thank everyone who shared, I thought I was alone. It is a horrible feeling being the only one awake and feeling like you a...
by jittery girl
Wed Apr 25, 2012 7:02 pm
Forum: Everything Else...just no RLS/WED!
Topic: Share what you ENJOY doing when you just can't sleep....
Replies: 10
Views: 2533

Re: Share what you ENJOY doing when you just can't sleep....

I am very envious of all of you. Being able to sit at a computer or do anything with WED. I can't sit long enough to even google anything.
by jittery girl
Wed Apr 25, 2012 7:00 pm
Forum: Everything Else...just no RLS/WED!
Topic: Temperpedic Mattresses
Replies: 22
Views: 5874

Re: Temperpedic Mattresses

I moved recently and the guys who packed us up said the sleep number beds are not well constructed.
by jittery girl
Wed Apr 25, 2012 6:41 pm
Forum: Help for Relationships
Topic: Awkward question about sex and RLS
Replies: 14
Views: 6618

Re: Awkward question about sex and RLS

O.K. I am just going to come right out and say it. Oral sex is easier to accomplish with RLS going on with either partner! IMO
by jittery girl
Wed Apr 18, 2012 4:28 pm
Forum: Physical Treatments
Topic: Weight - Too Much Of It
Replies: 15
Views: 3996

Re: Weight - Too Much Of It

I don't know. But I have arm involvement about 90% of the time when I have a bad night. I have not had a bad night since early March. I am taking my meds on time and have been lucky. Tramadol is truly a wonder drug for me. I don't have an issue with addiction. I have been on 100mg for as long as I h...
by jittery girl
Mon Apr 16, 2012 7:31 pm
Forum: Physical Treatments
Topic: Weight - Too Much Of It
Replies: 15
Views: 3996

Re: Weight - Too Much Of It

I can't grip anything. my hands spasm so much when I am having a really bad RLS night.
by jittery girl
Sat Apr 14, 2012 1:33 pm
Forum: Physical Treatments
Topic: A heating pad works for me
Replies: 30
Views: 8106

Re: A heating pad works for me

Betty/WV wrote:jittery girl.: Maybe that is my problem, not taking my meds on time. Thanks for the advice. I know if you mess up and let the WED get started, even if you take your meds. the WED doesn't want to stop.

Thanks again.

BETTY/WV

If I helped you one tiny bit I am thrilled!
by jittery girl
Fri Apr 13, 2012 11:26 pm
Forum: Physical Treatments
Topic: A heating pad works for me
Replies: 30
Views: 8106

Re: A heating pad works for me

rthom-
I am passed out like a drunk.

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