Search found 197 matches

by Joanie60
Mon May 17, 2021 12:54 pm
Forum: Physical Treatments
Topic: Sleep Pod
Replies: 5
Views: 10271

Re: Sleep Pod

Good point, I have to be mentally prepared before I buy it or enter the trial! UGH.

Thanks Beth
by Joanie60
Sat May 15, 2021 2:46 am
Forum: Physical Treatments
Topic: Sleep Pod
Replies: 5
Views: 10271

Re: Sleep Pod

I agree, it is anti-intuitive but at my worst, I will contort myself into the tightest workout pants I have. It helps! But God forbid my husband drape his leg over mine..I hit the roof haha.
by Joanie60
Sat May 15, 2021 12:49 am
Forum: Physical Treatments
Topic: Sleep Pod
Replies: 5
Views: 10271

Sleep Pod

https://hugsleep.com/products/sleep-pod Does anyone have experience with this? I may be able to join a clinical trial, using the sleep pod to assist with RLS. The problem is, my legs are freaking out. Despite having a stable drug therapy for the last six plus years, I have hit a brick wall. I have b...
by Joanie60
Sat Jul 21, 2018 5:33 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 4854

Re: Prescription Refills

Backlash of the opiate abuse epidemic. I understand the medical profession is doing their best to undo the damage they wrought (together with big Pharna). We are the unintended collateral damage.

Scary
by Joanie60
Fri May 18, 2018 5:30 am
Forum: Physical Treatments
Topic: Alpha Stim again
Replies: 3
Views: 2313

Re: Alpha Stim again

Thanks Susan!
by Joanie60
Fri May 11, 2018 9:00 pm
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 1688

Re: Airsickness meds?

I asked at homeopathic pharmacy in Ingolstadt (Germany) and pharmacist gave me capsules with 250mg ginger in them. He said it was specifically for motion sickness and there is, obviously, no taste. I took one today to make sure I didn't have some random reaction (i didn't) so I will report back. I'v...
by Joanie60
Fri May 11, 2018 5:23 am
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 1688

Re: Airsickness meds?

Thanks Holland, that sounds easiest of all!
by Joanie60
Thu May 10, 2018 6:30 pm
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 1688

Re: Airsickness meds?

Thanks for the suggestion..I've put it on my Amazon list. I've never gotten sick on the way home (Germany to US) but I think I'll drink some gingerale in addition to the copious amounts of water I slosh down (and walking to the bathroom is always helpful with RLS lol). These hot flashes are a major ...
by Joanie60
Thu May 10, 2018 5:17 am
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 1688

Re: Airsickness meds?

This is great!! Lots of non-medicine ideas. Just what I need. Many thanks! Crystalized ginger...where do I get that? I wasn't sure if ginger ale was something made up by my parents (and the idea of being able to drink carbonated beverage was a thrill!!). Yawny-I never go anywhere without a fan or tw...
by Joanie60
Wed May 09, 2018 7:16 pm
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 1688

Airsickness meds?

Does anyone have experience with airsickness? Are there any meds that will not make RLS worse? I am afraid Dramamine will (I guess because it is sedating like Benedryl??). I have thrown up on my last three flights to Germany, shortly before landing. I have cut out almost all the airline food (except...
by Joanie60
Thu May 03, 2018 10:12 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 4854

Re: Prescription Refills

Best of luck!! Maybe taking the short release during the day and taking the ER a bit earlier in the evening might bring continuous relief?? I know that is what we all aim for I only took ER oxycodone for a very short period and let the side effects turn me off. I regret that now but also didn't like...
by Joanie60
Thu Apr 26, 2018 1:53 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 4854

Re: Prescription Refills

Oh man I feel your pain!! I think our doctors figure out pretty quickly who is drug seeking and who is not! I’ve yet to meet or hear of an RLS sufferer who is drug seeking. When opiates are your last line of defense against this horrid disease, last thing I’m going to do is lose the trust of my doc....
by Joanie60
Sat Apr 21, 2018 1:02 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 4854

Re: Prescription Refills

I have drawn the line on a $1000 "thing" my Doc has suggested. Alpha-Stim unit. Looks like a heck of a lot of time/work and seems to promise the world (RLS, pain, depression, anxiety). I am hoping to find a clinical trial haha. But $32.90? I would have done it. That is about what I spent o...
by Joanie60
Fri Apr 20, 2018 12:40 pm
Forum: Prescription Medications
Topic: methadone long-term
Replies: 7
Views: 1516

Re: methadone long-term

I hope you find an answer that doesn't involve risk of impulsive behavior!!!! Isn't it crazy when some tiny neurological "thing" controls so much of my life?? My sanity, my behavior, my calendar, my activities, my relationship with pharmacist lol. I know others carry much heavier loads but...
by Joanie60
Fri Apr 20, 2018 12:30 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 30
Views: 4854

Re: Prescription Refills

I have tried absolutely every single crazy "cure" that has been suggested to me. Mostly so I can say: thanks, I will try that/thanks, I have tried that. I'll confess though, a tiny part of me hopes that a bar of soap under my bedsheets will be the answer haha. I am on Methadone because I d...