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by debbluebird
Wed Apr 24, 2019 4:05 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

Third night of sleep. Yeah ! Had to take Kratom for mild spasms, but it worked. The only time is doesn't work are on the stronger spasms.
First time in a very long time, I have some energy in the morning. I feel like I could do a lot of things today. I don't remember when I last felt like this
by debbluebird
Tue Apr 23, 2019 7:59 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

I decided to take a mirapex, 3 am Monday morning. I was tired of the spasms. I slept until 1 pm in the afternoon. Then last night I went to bed about 10 pm. Slept until 9 am this morning. I was awake for an hour in the middle. No spasms. Yeah !! So tonight it will begin again, spasms. I just don't d...
by debbluebird
Tue Apr 23, 2019 7:53 pm
Forum: Everything Else...just no RLS/WED!
Topic: Very Sad
Replies: 14
Views: 1022

Re: Very Sad

I would love another dog, except we would be 80 Yes old at the end of their life. We just don't have the energy to take care of another dog.
I didn't know I was going to be so emotional this long. It's been 3 days. All I think about is him.
by debbluebird
Sat Apr 20, 2019 5:49 pm
Forum: Everything Else...just no RLS/WED!
Topic: Very Sad
Replies: 14
Views: 1022

Re: Very Sad

Our dog died this morning. He would have been 11 yrs old in a couple of weeks. He was a german shepherd, husky mix. He looked more like a shepherd. He has had some sick spells during the last year. He was fine yesterday. Went for a walk. About 2 am, he all of a sudden had difficulty walking. After a...
by debbluebird
Sat Apr 20, 2019 1:42 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

It's hard to say what will happen. I just might keep the mild spasms. Sometimes if I lie on the leg, on my side, I can sleep through them. Who knows, I might not be able to get off the methadone or gabapentin.
I am battling my weight right now. I hate it.
by debbluebird
Sat Apr 20, 2019 1:37 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 9
Views: 138

Re: Opiate (Methadone) & Sleep Quality

How how I wish we didn't have to take these drugs. Ever so often I feel "normal". Luckily we have a very small house. I do very little.
by debbluebird
Wed Apr 17, 2019 11:10 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 9
Views: 138

Re: Opiate (Methadone) & Sleep Quality

Yes, take it early.
by debbluebird
Wed Apr 17, 2019 1:24 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

I've noticed that my sleep is getting better, slowly. I contribute it to my back fusion. The spasms have gotten so much more mild, but enough to wake me up at times. I'm averaging about 8 hours of sleep a night, which is so much better. When I reduce the methadone by another 2.5 mg in a couple of we...
by debbluebird
Wed Apr 17, 2019 1:13 pm
Forum: Prescription Medications
Topic: Anyone NOT experience augmentation on ropinirole?
Replies: 9
Views: 134

Re: Anyone NOT experience augmentation on ropinirole?

I've been using levo-carbidopa for breakthru symptoms for 5 or so years now without augmentation. I am careful to use it no more than 3 times a week and no more than two nights in a row. I tried levo-carbidopa. For me I had faster augmentation with it than with Mirapex. I'm only taking the mirapex ...
by debbluebird
Tue Apr 16, 2019 6:42 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

Deb, I don't either. But remember, Mirapex operates on the dopamine system, affecting the urge to move symptom. Meds that help with sleep seem to be gabapentin (and Lyrica/Horizant), THC, kratom, dipyridamole, IV iron. Opioids are a mixed bag for sleep. The others I mentioned are either known to af...
by debbluebird
Tue Apr 16, 2019 4:05 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

I just don't whether to take anymore mirapex. I keep track of my sleep and it has only been the last 2 times that this has happened. This makes since because everytime I try adding mirapex my sleep time gets shorts. So it will continue to happen.
by debbluebird
Mon Apr 15, 2019 6:06 pm
Forum: Augmentation
Topic: Suicidal thoughts
Replies: 14
Views: 388

Re: Suicidal thoughts

Thanks Steve. I think I Just have to keep weaning the Methadone. Then pray I can get rid of gabapentin next. My husband weaned off his oxycodone. It's been about a month. The doctor said to him to stay off 3 months before restarting it. So he has 2 months left to go. He's pretty miserable too. Most ...
by debbluebird
Mon Apr 15, 2019 6:00 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

I was finally able to sleep this morning, about 8 am to noon.
by debbluebird
Mon Apr 15, 2019 11:09 am
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

I have only been taking mirapex once a week. Otherwise it doesn't go well. I have begun to notice a pattern. On the night I take it, I sleep fairly well. No spasms. The next night I find it difficult to sleep. Tonight I slept about 2 hours midnight to 2 am. I went to bed about 10 pm. I was sleepy bu...
by debbluebird
Tue Apr 09, 2019 4:48 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 38
Views: 364

Re: Very Tired

Since I have been trying to wean off methadone, it's getting interesting. I'm starting to get some sleep. Night before, I had spasms most of the night. Even taking most of my extra stuff, wasn't working, then finally slept 4 hrs. Last night I slept all night. 10 hrs, without my extra stuff, (Kratom,...

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