Search found 2119 matches

by debbluebird
Mon Jul 13, 2020 4:04 pm
Forum: Everything Else...just no RLS!
Topic: Biggest fear
Replies: 4
Views: 41

Re: Biggest fear

Thanks Steve
by debbluebird
Mon Jul 13, 2020 1:42 am
Forum: Everything Else...just no RLS!
Topic: Biggest fear
Replies: 4
Views: 41

Re: Biggest fear

by debbluebird
Sun Jul 12, 2020 2:27 pm
Forum: Everything Else...just no RLS!
Topic: Biggest fear
Replies: 4
Views: 41

Biggest fear

One of my biggest fears, is having to live in a nursing home where they wouldn't give me my gabapentin and methadone.
Then to top it off I now have breast cancer. How will all of this affect my legs, the treatments, the meds and surgery ?
by debbluebird
Sat Jul 04, 2020 3:42 pm
Forum: General Topics: RLS
Topic: Dealing with doctor
Replies: 10
Views: 150

Re: Dealing with doctor

I do need to tell you that I had nausea for a couple of months when I first started taking it. I took something for that, then it went away.
by debbluebird
Mon Jun 29, 2020 2:54 am
Forum: General Topics: RLS
Topic: Inconsistent Sleep Quality
Replies: 9
Views: 234

Re: Inconsistent Sleep Quality

I'd like to add to my post to better answer your question. I've had a little more sleep the last 2 nights. Ha ! Yes every night is a crap shoot. I hate that that is the case. I take methadone 5 mg every 8 hours. Gabapentine 600 mg every 8 hours. Both at 10pm, 6am, 2pm. I recently added CBD/TCH 1:1 ....
by debbluebird
Mon Jun 29, 2020 2:46 am
Forum: General Topics: RLS
Topic: Dealing with doctor
Replies: 10
Views: 150

Re: Dealing with doctor

Hi ! I took mirapex for almost 15 years. It worked the first few years. They increased my dose. I finally started augmenting, but my Doctor was not informed that, that could happen. He increased my dose more. Then he wanted me to have a sleep study, which I got. He also thought that I didn't have RL...
by debbluebird
Thu Jun 25, 2020 5:34 am
Forum: General Topics: RLS
Topic: Inconsistent Sleep Quality
Replies: 9
Views: 234

Re: Inconsistent Sleep Quality

I have had several bad nights lately. Having a hard time going to sleep. Then sleeping only a couple of hours. Leg has been pretty good, just awake. I am so tired. I hope I sleep some tonight. What I hate about this is, I don't feel like doing anything. Just too tired. Only 2 hours last night. Lucki...
by debbluebird
Mon Jun 01, 2020 3:19 am
Forum: General Topics: RLS
Topic: Involuntary leg movements & knee surgery
Replies: 7
Views: 203

Re: Involuntary leg movements & knee surgery

First I had meniscus repairs in both knees. Then 10 years later total replacements in both knees. I told the Doctors of my RLS and spasms before the surgeries.
Good luck.
by debbluebird
Wed May 27, 2020 11:55 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 770
Views: 59305

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Wow, very good ! Isn't it amazing to be so ecstatic over one good night. It always feels so good. Then I pray for a second night.
by debbluebird
Sun May 17, 2020 10:49 pm
Forum: General Topics: RLS
Topic: YouTube RLS videos
Replies: 4
Views: 148

Re: YouTube RLS videos

I was given those pads by my Doctor. They didn't help. He was so surprised. They just made my feet hurt. I took them off.
by debbluebird
Fri May 15, 2020 10:25 pm
Forum: General Topics: RLS
Topic: Regular Sleep Schedule
Replies: 15
Views: 285

Re: Regular Sleep Schedule

As a 30-year sufferer, I have to laugh about the advice one sees in literature from all sources. Most "helpful" articles on RLS say to "maintain a regular sleep schedule". Are they joking? None of these writers have actually experienced RLS. That is the oxymoron. One can't. You can't sleep at night...
by debbluebird
Thu May 07, 2020 7:45 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Is it worth scrapping ever tiny bit of caffiene?
Replies: 14
Views: 641

Re: Is it worth scrapping ever tiny bit of caffiene?

I can't have any caffeine. I can get away with some chocolate, just not the good chocolate. I hate ot, but I'd rather sleep.
by debbluebird
Mon Apr 27, 2020 1:10 pm
Forum: General Topics: RLS
Topic: Really, it's funny! (or not)
Replies: 6
Views: 224

Re: Really, it's funny! (or not)

My brain is so out of it these days, I'm not even sure what happened or what you're talking about. I'm sure it will work out for you.
by debbluebird
Fri Apr 24, 2020 6:41 pm
Forum: Prescription Medications
Topic: Reputable Online Seller Kratom
Replies: 3
Views: 181

Re: Reputable Online Seller Kratom

This is where I order my kratom online. Reasonable price.
SoCal Herbal Remedies LLC
WWW.SOCALHERBALREMEDIES.COM