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by debbluebird
Sun Nov 10, 2019 6:13 pm
Forum: General Topics: RLS/WED
Topic: RLS through the night
Replies: 8
Views: 80

Re: RLS through the night

I could tell.
by debbluebird
Sun Nov 10, 2019 7:19 am
Forum: General Topics: RLS/WED
Topic: RLS through the night
Replies: 8
Views: 80

Re: RLS through the night

I love it too ! You are so talented, especially when there is no rest.
by debbluebird
Thu Nov 07, 2019 4:18 am
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 17
Views: 303

Re: Insomnia

QyX wrote:Oh wow, so you already tried all the other major opioids available for prescription?


Yes
by debbluebird
Wed Nov 06, 2019 12:11 am
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 17
Views: 303

Re: Insomnia

Other opioids like Oxycodone or Morphine don't increase the Qt-interval. Methadone can indeed be very problematic regarding the cardiovascular system which is why I don't understand why so many physicians in the U.S. prefer using Methadone as first line opioid for RLS when many other alternatives a...
by debbluebird
Mon Nov 04, 2019 4:46 am
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 17
Views: 303

Re: Insomnia

It's no longer working. I can't increase the dose because of my heart. I'm lucky my Doctors agree to let me take methadone in the first place.
by debbluebird
Sun Nov 03, 2019 12:26 pm
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 17
Views: 303

Re: Insomnia

The last few nights it has not been insomnia. It's RLS and my leg spasms. I was only able to sleep 30 min earlier tonight. Legs are keeping me from sleeping. I probably need to wean off methadone, but I have nothing to replace it, even temporary.
by debbluebird
Wed Oct 30, 2019 9:48 am
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 17
Views: 303

Re: Insomnia

I'm not buying hemp oil anymore. Just too expensive for me. It didn't always help anyway. I find that I sometimes can sleep from about 10 pm to around 2am. Then I'm awake until sometime in the morning. 5, 6, 7 or 8am. Then so usually can sleep a few more hours. Sometimes I don't sleep in the evening...
by debbluebird
Wed Oct 30, 2019 9:34 am
Forum: Just Joined?
Topic: How do you parent ?
Replies: 4
Views: 89

Re: How do you parent ?

If you are financially able, get a nanny in exchange for room and board with a small salary. I was lucky, my RLS had not started yet. Also my Daughter slept well. On the weekends I taught her to get her own breakfast. She was 3 yrs old. I had a cup of milk in the fridge. The cereal was already poure...
by debbluebird
Mon Oct 28, 2019 8:42 pm
Forum: Just Joined?
Topic: when did pharmacist become judge and jury
Replies: 8
Views: 143

Re: when did pharmacist become judge and jury

I'm so sorry this has happened to you. I've been taking Methadone since 2010. We moved in 2011. I started taking my script to Safeway. Luckly I have never had a problem. They know us by name. They know we are going to get meds filled every month. My husband takes oxycodone. The only problem I will h...
by debbluebird
Sat Oct 26, 2019 2:32 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 193
Views: 5159

Re: Attempting to get off Ropinirole - again

I can't take lyrics or amitriptyline. Both on my long list of tried, and will never take again. Glad lyrics works for you.
by debbluebird
Fri Oct 25, 2019 7:59 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 193
Views: 5159

Re: Attempting to get off Ropinirole - again

The first time I tried to wean off mirapex, I found it impossible. Also at the time, no Doctor gave me anything to replace it and I didn't know anything either. A year later they gave me other meds, I stopped the mirapex, but I was over medicated. It took several months before I got straightened out...
by debbluebird
Sun Oct 20, 2019 9:12 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 28
Views: 593

Re: Infusion #3

So glad the infusions are working.
by debbluebird
Fri Oct 18, 2019 4:51 am
Forum: Prescription Medications
Topic: Medication for irregular use
Replies: 15
Views: 347

Re: Medication for irregular use

I would not use Sinemet. I believe that you augment more quickly with it rather than mirapex. .125mg is even a lower dose used for mirapex. Personally, I would use an opioid for those 15 nights or so.
Good luck
by debbluebird
Fri Oct 11, 2019 6:18 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 193
Views: 5159

Re: Attempting to get off Ropinirole - again

There is weight gain with gabapentin too. I'm hungry all the time. Fighting it everyday.
by debbluebird
Thu Oct 10, 2019 7:42 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 193
Views: 5159

Re: Attempting to get off Ropinirole - again

It seems to me that health care in all of our countries needs to change. I went to the ER a few years ago when my Pulmonary/sleep Doctor wanted me to try to go without methadone. They replaced it with mirapex and gabapentin. It didn't work. I was only getting 2 hours of sleep. Needless to say I was ...

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