Search found 1832 matches

by debbluebird
Mon Aug 13, 2018 10:22 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 133

Re: weather

My kids left for California today. Will be spending time at the beach, going to a Dodgers base ball game ending with 3 days at Disneyland. Wish I was going too. They need a vacation.
by debbluebird
Mon Aug 13, 2018 7:52 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 133

Re: weather

We are st 8,100 feet in Colorado. 80 and 90's. It has been warmer this summer, at times. Like Steve said, cools at night, sometimes in the 40's.
I like 60's the best.
by debbluebird
Mon Aug 13, 2018 7:35 am
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 309

Re: What med cocktail works for you??

I started out with one drug. Then over the course of 20 years, I have tried about 20 meds. I slowly stopped them all when I started methadone. Then that didn't work by itself anymore. Started adding drugs again. Right now mine is similar to Steve's. Methadone 2.5 mg every 6 hours to avoid hyper aler...
by debbluebird
Sun Jul 29, 2018 10:26 pm
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 7
Views: 141

Re: Need Sleep

I am now taking 3 meds spread out, at all small doses. It is working for me. Methadone 2.5 mg every 6 hours Gabapentin 600 mg twice a day, 2 pm and 8 pm DA, mirapex .125 mg one every four days 8 pm I am getting loads of sleep finally. 4 to 6 hour stretches, then back to sleep for more after potty br...
by debbluebird
Wed Jul 25, 2018 9:45 pm
Forum: General Topics: RLS/WED
Topic: Camping
Replies: 21
Views: 287

Re: Camping

It sounds like you will be all set. I always had a little port a potty in our tent. I hated walking at night to out houses, in the woods. I wouldn't mind walking outside around the tent though.
by debbluebird
Wed Jul 25, 2018 10:39 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 25
Views: 1197

Re: What Calms You in the Night?

I think that because of all of the meds that I take they have really messed up my ability to fall asleep without them. As I lie here feeling exhausted, my legs are calm and nothing hurts, but I feel like I can't fall asleep. I think that I have become used to the meds making me fall asleep. So many ...
by debbluebird
Wed Jul 25, 2018 9:49 am
Forum: Everything Else...just no RLS/WED!
Topic: Unhappy
Replies: 6
Views: 1573

Re: Unhappy

I like what Betty and Steve posted.
by debbluebird
Fri Jul 20, 2018 8:00 pm
Forum: Physical Treatments
Topic: Training Brain to Release Dopamine earlier
Replies: 7
Views: 295

Re: Training Brain to Release Dopamine earlier

Doesn't Advil pm have benadryl in it? I didn't look it up. I know some pm meds do. Plus some people need to be careful with kidneys. I can't take it for that reason. I took mirapex for many years. Had problems I didn't realize because of it. Have been off for almost 8 years, but now I am taking lowe...
by debbluebird
Fri Jul 20, 2018 7:51 pm
Forum: General Topics: RLS/WED
Topic: The lighter side of WED/RLS
Replies: 7
Views: 602

Re: The lighter side of WED/RLS

Wonderful! I exercise at night. I never feel like doing it during the day, even though I have the time.
by debbluebird
Sun Jul 01, 2018 7:25 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 47
Views: 2204

Re: Methadone and Gabapentin no longer working well

This is very odd. My poor husband can't sleep tonight because of his legs. He is having pain. First it was on the back side of his thighs, now in the back side of the calves. He is sitting in bed, with knees bent, less moving from side to side not together. He says it makes the whole body feel bette...
by debbluebird
Sat Jun 30, 2018 4:51 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 47
Views: 2204

Re: Methadone and Gabapentin no longer working well

This has been a strange few days. My husband is sick with shingles. He is very miserable. At times he has been pacing. I realized something, that I live day to day maybe more than some people. I won't know when I will no longer be able to sleep with my current meds. It will just happen. Of course no...
by debbluebird
Thu Jun 28, 2018 11:45 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 32
Views: 6318

Re: RLS and Increasing Circulation in Legs

I have had decreased circulation for over a year now. I can't get the swelling in my legs to be gone. I don't know if this has changed my RLS and spasms.
by debbluebird
Wed Jun 27, 2018 6:01 pm
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 47
Views: 2204

Re: Methadone and Gabapentin no longer working well

Could be. It feels like tolerance. I can't stop methadone right now. Too much is going on. My son in law's cancer is not good. I don't think he has long. Maybe a few months. Then my husband got shingles. He is pretty sick, even though we both got vaccine. My issues just aren't that important right n...
by debbluebird
Wed Jun 27, 2018 10:54 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 47
Views: 2204

Re: Methadone and Gabapentin no longer working well

I was able to sleep a couple of hours or so early in the evening with a 1/2 tab of percocet, but that has been all. Spasms have been very active. I realized awhile ago I should have taken the mirapex tonight, but didn't. I felt it was too late. I didn't realize that I would be up the rest of the nig...

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