Search found 1838 matches

by debbluebird
Tue Sep 25, 2018 4:09 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 1
Views: 18

Re: Back Surgery and RLS plus spasms

Today I looked up information regarding my back. I couldn't believe it, when I saw exactly my symptoms. Spasms in leg, also numbness, tingling and nerve pain. I can't tell you what a relief it was to read all of that. I am concerned about if I have the surgery, what will be left. Not all back surger...
by debbluebird
Tue Sep 25, 2018 1:01 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 1
Views: 18

Back Surgery and RLS plus spasms

I went to the pain Doctor today, hoping to get scheduled for an injection in my back. I am loaded with arthritis, plus I have had a laminectomy, and had a herniated disc in the same area. Since my spasms have become progressively worse plus my pain and I have had to add several meds in the last year...
by debbluebird
Tue Sep 25, 2018 12:49 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 417
Views: 96694

Re: Published Research - General Sleep and RLS (WED)

I lost most of my sense of smell and taste in 2006, after a cold. It is frustrating.
by debbluebird
Sat Sep 01, 2018 2:01 pm
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 52
Views: 3184

Re: Methadone and Gabapentin no longer working well

I can't take Lyrica, made me suicidal. I don't remember what it did for my legs. I took it several months. Gabapentin helps me with my nerve pain and the spasms I get. Since my RLS and leg spasms come from my back, I think it is time to get another injection in my back. It has been causing me more p...
by debbluebird
Fri Aug 31, 2018 7:50 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 52
Views: 3184

Re: Methadone and Gabapentin no longer working well

Well, let's see. I take gabapentin 600 mg, afternoon and evening. Methadone 2.5 mg every 6 hours Mirapex .125 mg. The fifth night I take it again. The first two nights I sleep wonderfully. Oxycodone 2.5 mg on night three and four when mirapex no longer working. I think I need to stop the oxycodone. ...
by debbluebird
Thu Aug 30, 2018 1:14 am
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 506

Re: Need Sleep

They told me the same thing: get sleep apnea under control and that will improve the RLS. For me I really don't know if it made any difference.
I do recommend small Amy's of the DA with days in between, as stated above.
by debbluebird
Mon Aug 13, 2018 10:22 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 1153

Re: weather

My kids left for California today. Will be spending time at the beach, going to a Dodgers base ball game ending with 3 days at Disneyland. Wish I was going too. They need a vacation.
by debbluebird
Mon Aug 13, 2018 7:52 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 1153

Re: weather

We are st 8,100 feet in Colorado. 80 and 90's. It has been warmer this summer, at times. Like Steve said, cools at night, sometimes in the 40's.
I like 60's the best.
by debbluebird
Mon Aug 13, 2018 7:35 am
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 685

Re: What med cocktail works for you??

I started out with one drug. Then over the course of 20 years, I have tried about 20 meds. I slowly stopped them all when I started methadone. Then that didn't work by itself anymore. Started adding drugs again. Right now mine is similar to Steve's. Methadone 2.5 mg every 6 hours to avoid hyper aler...
by debbluebird
Sun Jul 29, 2018 10:26 pm
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 506

Re: Need Sleep

I am now taking 3 meds spread out, at all small doses. It is working for me. Methadone 2.5 mg every 6 hours Gabapentin 600 mg twice a day, 2 pm and 8 pm DA, mirapex .125 mg one every four days 8 pm I am getting loads of sleep finally. 4 to 6 hour stretches, then back to sleep for more after potty br...
by debbluebird
Wed Jul 25, 2018 9:45 pm
Forum: General Topics: RLS/WED
Topic: Camping
Replies: 21
Views: 696

Re: Camping

It sounds like you will be all set. I always had a little port a potty in our tent. I hated walking at night to out houses, in the woods. I wouldn't mind walking outside around the tent though.
by debbluebird
Wed Jul 25, 2018 10:39 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 26
Views: 1579

Re: What Calms You in the Night?

I think that because of all of the meds that I take they have really messed up my ability to fall asleep without them. As I lie here feeling exhausted, my legs are calm and nothing hurts, but I feel like I can't fall asleep. I think that I have become used to the meds making me fall asleep. So many ...
by debbluebird
Wed Jul 25, 2018 9:49 am
Forum: Everything Else...just no RLS/WED!
Topic: Unhappy
Replies: 6
Views: 1747

Re: Unhappy

I like what Betty and Steve posted.
by debbluebird
Fri Jul 20, 2018 8:00 pm
Forum: Physical Treatments
Topic: Training Brain to Release Dopamine earlier
Replies: 11
Views: 1120

Re: Training Brain to Release Dopamine earlier

Doesn't Advil pm have benadryl in it? I didn't look it up. I know some pm meds do. Plus some people need to be careful with kidneys. I can't take it for that reason. I took mirapex for many years. Had problems I didn't realize because of it. Have been off for almost 8 years, but now I am taking lowe...
by debbluebird
Fri Jul 20, 2018 7:51 pm
Forum: General Topics: RLS/WED
Topic: The lighter side of WED/RLS
Replies: 7
Views: 768

Re: The lighter side of WED/RLS

Wonderful! I exercise at night. I never feel like doing it during the day, even though I have the time.

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